Sadly, my husband died from Cirrhosis on Monday. I am grateful to the community nursing team, palliative care services, Marie Curie nurses and my own GP. Their kindness, care and support made such a difference to both of us.
I’ve also appreciated the help and information I found on this site. Also thanks to the British Liver Trust for clear, easily understood guides to various aspects of liver disease and its treatment. I used the helpline and urge anyone who needs it to call. Much better than suffering in silence or terrifying yourself with Dr. Google.
My kindest best wishes to you all whether you have this illness or care for someone who does.
Written by
Fabrica10
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I am so sorry to read your post. Please remember the happy times you spent together, but I know this will be very difficult at the moment. Thank goodness for the support you have been given by your caring Nurses, Doctor and other medical professionals alongside this honest BLT site. There is nothing I can say to bring joy to you at it is an incredibly sorrowful time. Do take care and sending sincere thoughts to all. ❤️
I’m so sorry for your loss. You meet some amazing people on this journey that restore your faith in humanity. I know nothing will take away the pain of grief at the moment, so just sending a big hug
Thank you Katie. Your posts on this site have been inspirational and I think you have helped many people with them. I hope your husband continues to thrive post transplant.
Sadly, diagnosis was much delayed in post Covid environment. By the time he was referred to specialist Hepatology services he had decompensated. He did stop drinking immediately - too late to make a difference by then unfortunately. Frailty and age 70 ruled out a transplant.
so sorry to hear your sad news . My thoughts are with you and I hope happy memories of your life together bring you some comfort . Sending love Carol x
I’m sorry for your loses. I have cirrhosis Nash and tumor off the lung. I have mild jaundice, spinal problems,arthritis’s in both hips. I need an operation on my lungs but it looks like I won’t get it because off the liver .
I feel so sad now . have no children or a partner . I live with my disabled brother how’s 60 and I’m 52. I fear going into a hospice and and being alone in pain every day.
Your husband was a very brave man. I can’t imagine how he felt about leaving you. And your sadness as a career. I wish you all the best.
Thank you. I feel much sympathy for the issues you are experiencing. My husband needed operations that couldn’t happen too. I do hope your doctors are referring you to the right people to offer support. Try the helpline of the British Liver Trust, you will find a great deal of help there. Best wishes x
Hi Peter, I’m so sorry to hear that you are struggling with this on your own. Please be reassured that hospices are wonderful places. You definitely won’t feel lonely once you’re there. They are often funny and joyful places full of wonderful staff and volunteers who will look after both you and your brother.
So sorry to hear , sending you love and hugs 🫂 he was very lucky to have you in his life and to care for him. So good to hear you had help and support because it can be a sad and lonely job caring for someone. Xxx
It can be sad and lonely. There are quiet, happier times too even in the midst of it. We often lay down together, safe and warm, listening to audiobooks. I was fortunate to be referred to the right services at the appropriate time. Thank you for your good wishes x
When the dust settles never feel too alone ping people on here. You want to be angry shout let off steam ping me I don’t mind. It’s important that you have outlets just for you. Was a councillor for many years . It’s your time for you to heal and feel the love. You deserve it for all that very difficult work that you have been doing. You will get through this very difficult period but in time it will get better. Take care lots of people on this site alone know how you feel and are there for you. Regards.
Im so sorry to hear of your loss. Please take care of yourself. I too, have relied a lot on agencies and charities including for therapy after losing loved ones. They are the all too often Unsung Hero's. Lots of loveEwife
So very kind of you; to share your best wishes with the community here - at this difficult time for you, your family, friends and neighbours.
Also really appreciated; your having shared your support experience via the various organisations and services - thank you for that generosity.
I hope our community might find solace from learning of "the real World" via your shared experience - rather than encountering some of the messaging - all too often inconsiderately fed to society (via the popular press / social media / internet algorithms etc.).
So sorry to hear about your loss. Just reading your previous post it looks like he battled on for a good few months. I also lost my partner in September from Decompensated liver disease, however he was only in hospital for 3 weeks before passing away with ascites and various other symptoms. We didn’t know he had it despite being poorly for some time. This website and a FB group about HE is also helping me come to terms with it.
Thinking about you and hoping you have plenty of support around you, take care x
He did battle on for over a year after diagnosis. He had been feeling not quite right intermittently for at least a year before that. Almost without realising it, we were making adjustments to our life together to accommodate increasing fatigue for instance.
I am sorry for your loss too and thank you for taking the time to reply to me x
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