She’s once again back in hospital. She was admitted yet again last Wednesday.
As many of you may know, Jaycee has been suffering with some post-transplant issues. Her body it would appear isn’t making enough white blood cells, and those ones it is making are damaged. She has had a number of blood transfusions but this is just a short-term fix. They are presently awaiting for blood test results to come back where they hope to rule out PTLD : lymphoma-action.org.uk/type...
She is now being scheduled for a bone marrow biopsy on Monday or Tuesday to either rule out, or test for bone cancer. If this is then ruled out, it will then be back to the Royal Free to try and find a different course of anti-rejection medication for her.
Many of you will have been sharing in Jaycee’s transplant journey this year, and will know of her roller coaster journey just to get a liver transplant in the first place. She still remains so grateful and positive, and is, very much a glass half full sort of person, she longs to make a full recovery.
She’s also one fell of a fighting, gutsy lady.
She's able to login to this site, and I know many of you will want to wish her well and a speedy recovery.
Jaycee, in sincerely sorry to hear that you're not doing so good at present. As we all know your full of fight and and I'm shouting that you make s full recovery. x
Life is so unfair sometimes , you have had more than your share of troubles, I hope they find a solution soon and you get a break you really do deserve it, you are an inspiration 💞
No not really Kate. On this site there are so so many going through so much more. People who suffer so much. We are one huge family.
in reply to
Thank you for letting us know
You really are inspiration to us all. Hope they are going to sort you own then . Thinking of you, you are in my thoughts and prayers .ots of love and hugs Lynne xxxx
Some are blessed and have a transplant however, we do not all come back in the same boat. Some come back in a speedboat, full health beckons.
Some come back in a rowing boat, journey is a little longer.
Then there are some in same rowing boat but with only one oar.
Finally there are some row boats that have a hole in them too.
Just makes the journey a good bit longer.
This site makes us strong. Those waiting and suffering the support is awesome. The real love you receive is so welcome. This is your chosen family your liver family. I appreciate each and everyone of you.
I in the return boats. Have the strength to bail out the water. Lol 😂
Jaycee - you are always so positive; you remind me how how lucky we are and to always make the most of it even in the face of adversity. I’m sure you boat will be patched soon and you can continue your journey to full recovery.
Hiya jaycee xxx fingers crossed its just the anti rejection tablets I had the same problem a few months post my wbc were none existient and I had to be locked away in a private room for a fortnight....
You keep the positive attitude it helps immensely when we're facing these hurdles.. Love to you 😊 😘😘😘
All the very best, you have come such a long way with positivity. Sending lots of good vibes that they get you sorted and up and at em soon. Speed boat on the horizon 🌻
Jaycee, you poor girl, what can I say. I thought your recovery was on track, and then to hear of these problems. We all know your a fighter, and will come through this set back.
My thoughts and prayers are with you for a speedy recovery🙏🙏🙏
Your very welcome Jaycee, you deserve it 😊😊😊 You are right about the differences with "family" here, and our real family who sometimes just don't understand the daily trials and tribulations of liver disease.
Hi Jaycee hope they can find what’s going on and get the right treatment for you. You encouraged me when I needed it, so hopefully you can feel the same coming back to you x
Hi Jaycee , can I just say it’s people like yourself that make the site what it is and regardless of how many times you say you are not, you truly are an inspiration and your positivity has definitely lifted my spirits this weekend, 😘😘
Hi Jaycee, I love this site for the support and sharing of ideas together. It makes others feel not alone. Regardless I still think you are a light in the dark
Thinking of you Jaycee! Sending you tons and tons of healthy + positive vibes! Remember how strong you are and all you've conquered! We are all pulling for you lady! We are all here for you! XoXo
Wishing ypu all the best Jaycee, great team at the Royal Free - remember Dr. Patch likes chocolate buttons & not the small ones 😀 hoping they find out the cause of the problem quickly for you
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Jaycee, (Blackpearl) Update
Continuous hospitalisation
journey to transplant
New journey - 40 units a week, enough is enough
