Jaycee's Journey - continues

Our poor Jaycee is back in the wars again.

She’s once again back in hospital. She was admitted yet again last Wednesday.

As many of you may know, Jaycee has been suffering with some post-transplant issues. Her body it would appear isn’t making enough white blood cells, and those ones it is making are damaged. She has had a number of blood transfusions but this is just a short-term fix. They are presently awaiting for blood test results to come back where they hope to rule out PTLD : lymphoma-action.org.uk/type...

She is now being scheduled for a bone marrow biopsy on Monday or Tuesday to either rule out, or test for bone cancer. If this is then ruled out, it will then be back to the Royal Free to try and find a different course of anti-rejection medication for her.

Many of you will have been sharing in Jaycee’s transplant journey this year, and will know of her roller coaster journey just to get a liver transplant in the first place. She still remains so grateful and positive, and is, very much a glass half full sort of person, she longs to make a full recovery.

She’s also one fell of a fighting, gutsy lady.

She's able to login to this site, and I know many of you will want to wish her well and a speedy recovery.

[Countrywalks]

I hope she gets well soon a loveley lady very brave x

[Hidden in reply to Countrywalks]

Still fighting xx

[Hidden in reply to Hidden]

Hi jaycee

Sorry to read that your having to fight your corner again which I'm presuming must be really tough for you right now.

Hopefully the medical team are treating you well and you have some soft pillows to rest your weary head on!

I'm sending you some virtual strength and a hug !

Take care Jaycee

Loads of love Trish ❤

Thanks Richard for making me aware!

[LAJ123]

Hi,

Best wishes and our thoughts are with you.

Jim, Lucy and others from the Royal Free transplant 'family ' X

[Hidden in reply to LAJ123]

😊 thank you

[Hidden]

Thank you Richard as you say I am a cup half full kind of girl. So I still wake each day with a grateful heart.

I am sure they will sort this out. Jaycee

[Poobear69 in reply to Hidden]

Jaycee, in sincerely sorry to hear that you're not doing so good at present. As we all know your full of fight and and I'm shouting that you make s full recovery. x

[Hidden in reply to Poobear69]

Will do ! For sure.

[Kate50 in reply to Hidden]

Life is so unfair sometimes , you have had more than your share of troubles, I hope they find a solution soon and you get a break you really do deserve it, you are an inspiration 💞

[Hidden in reply to Kate50]

No not really Kate. On this site there are so so many going through so much more. People who suffer so much. We are one huge family.

[Hidden in reply to Hidden]

Thank you for letting us know

You really are inspiration to us all. Hope they are going to sort you own then . Thinking of you, you are in my thoughts and prayers .ots of love and hugs Lynne xxxx

[Hidden in reply to Hidden]

Thank you hope you are ok also xx

[Hidden in reply to Hidden]

Thank you. Love and hugs Lynne xxxx

[Laura009 in reply to Hidden]

Sending you lots of love Jaycee and wishing you a speedy recovery xxxx

[Hidden in reply to Kate50]

No no I am not truly.

The site is inspirational not I.

We all are in the same boat on our journey.

Some are blessed and have a transplant however, we do not all come back in the same boat. Some come back in a speedboat, full health beckons.

Some come back in a rowing boat, journey is a little longer.

Then there are some in same rowing boat but with only one oar.

Finally there are some row boats that have a hole in them too.

Just makes the journey a good bit longer.

This site makes us strong. Those waiting and suffering the support is awesome. The real love you receive is so welcome. This is your chosen family your liver family. I appreciate each and everyone of you.

I in the return boats. Have the strength to bail out the water. Lol 😂

[Peter_Plymouth in reply to Hidden]

Jaycee - you are always so positive; you remind me how how lucky we are and to always make the most of it even in the face of adversity. I’m sure you boat will be patched soon and you can continue your journey to full recovery.

All the very best - Peter xx

[Hidden in reply to Peter_Plymouth]

Thank you Peter you boat needs a few patches too. We will get home together. We are all strong together.

Jaycee

[Hidden in reply to Hidden]

I know this site is fantastic. I've got a good support network and everyone in here so I know I'm lucky . Lots of love and hugs Lynne xxxx

[Hidden in reply to Hidden]

Lynne my friend I am always thinking of you and your on going issues. Your bravery in the face of everything.

You are right of course. We are lucky. To have each other.

Our chosen family.

All of whom understand and support us in good times and bad. I applaud you all. Jaycee

[Hidden in reply to Hidden]

- "Safe within the lifeboat, sailor, pull for the shore". Best wishes and lots of love to you.

[Hidden in reply to Hidden]

I am in there not ready to go overboard yet lol 😂

[Hidden in reply to Hidden]

That's good news!

[Cats2018]

I wish you the best Jaycee!

[Hidden in reply to Cats2018]

Thank you Cats xx

[P13jne]

Thanks Richard, I’ll send her a message xx Jane

[Laura009]

Such a lovely lady, very sad she is suffering so much. Sending her love and wish her well xxxx

[jojokarak]

Hiya jaycee xxx fingers crossed its just the anti rejection tablets I had the same problem a few months post my wbc were none existient and I had to be locked away in a private room for a fortnight....

You keep the positive attitude it helps immensely when we're facing these hurdles.. Love to you 😊 😘😘😘

[Hidden in reply to jojokarak]

Thank you 😊

[jazzjam]

All the very best, you have come such a long way with positivity. Sending lots of good vibes that they get you sorted and up and at em soon. Speed boat on the horizon 🌻

[Hidden in reply to jazzjam]

Thank you, I assure you I will be there to look for said speedboat dear jazz jam.

Jaycee

[davianne]

Many thanks for the update on Jaycee, Richard.

Jaycee, you poor girl, what can I say. I thought your recovery was on track, and then to hear of these problems. We all know your a fighter, and will come through this set back.

My thoughts and prayers are with you for a speedy recovery🙏🙏🙏

Love,

David

[Hidden in reply to davianne]

David my friend how kind, thank you.

I am constantly blown away by the love and support we all receive from everyone here.

Truly a fabulous family.

I say that in truth as one knows you cannot always speak to your real family, the support on here is totally unconditional xxx

Jaycee

[davianne in reply to Hidden]

Your very welcome Jaycee, you deserve it 😊😊😊 You are right about the differences with "family" here, and our real family who sometimes just don't understand the daily trials and tribulations of liver disease.

David

[Steak]

Hi sorry 2 here about jaycee hope they get to the bottom of what's wrong and get it sorted . Best wishes. X

[Hidden in reply to Steak]

Thank you Steak xxx Jaycee

[Julie8]

Hi Jaycee hope they can find what’s going on and get the right treatment for you. You encouraged me when I needed it, so hopefully you can feel the same coming back to you x

[Hidden in reply to Julie8]

Thank you Julie feel it for sure xx

[Waiting-in-wiltshire]

Best wishes from us Jaycee

Maggie & Simon

[Hidden in reply to Waiting-in-wiltshire]

Thank you

[Kristian]

Good luck Jaycee. Hope it gets sorted soon for you.

[Hidden in reply to Kristian]

Me too my friends xx

[Mirlo]

Bless her, for her bravery and positivity through it all. She is an inspiration. Sending loving and healing thoughts.

[Hidden in reply to Mirlo]

Truly I am not, it is what everyone does on this site that is inspirational xx we are one big family.

[Kate50 in reply to Hidden]

Hi Jaycee , can I just say it’s people like yourself that make the site what it is and regardless of how many times you say you are not, you truly are an inspiration and your positivity has definitely lifted my spirits this weekend, 😘😘

[Hidden in reply to Kate50]

Thank you Kate xx

[Hidden in reply to Hidden]

Just a brief note to say I'm thinking about you Jaycee and hope your fighting your corner still.

Love Trish ❤ x

[Hidden in reply to Hidden]

Hi Trish, fighting my corner, lol I think I was born with boxing gloves on.

We are nearly at the end of the trail of what has caused this. I am supremely confident it will be the meds. Thank you Trish. Jaycee

[ThreeSmiles in reply to Hidden]

🤞🤞🤞 Jaycee 👍

[Mirlo in reply to Hidden]

Hi Jaycee, I love this site for the support and sharing of ideas together. It makes others feel not alone. Regardless I still think you are a light in the dark

Thank you x

[Hidden in reply to Mirlo]

Hi there Mirlo, I am now confident that there is going to be an answer very soon. Hopefully I will be back home soon. Thank you for your message.

[Yuiop]

Hi Jaycee, get those boxing gloves on, and fight like you’ve never fought before.. hugs xxx Agnes xxx

[Hidden in reply to Yuiop]

Gloves on and in constant use xx

[Katmando]

Sending positive vibes, a huge hug and love ....keep fighting xxx

[Hidden in reply to Katmando]

Thank you Katmando. Hugs and love always welcome and appreciated xxx Jaycee

[Melwoods]

Sending lots of best wishes and a speedy and safe recovery x

[TwinkleToes02]

Thinking of you Jaycee! Sending you tons and tons of healthy + positive vibes! Remember how strong you are and all you've conquered! We are all pulling for you lady! We are all here for you! XoXo

[Hidden in reply to TwinkleToes02]

Twinkle, Awesome thank you. I feel the answer to all this will be soon. Jaycee

[Beture47]

Please pass on my best wishes for a speedy recovery

Elizabeth

[Hidden in reply to Beture47]

Thank you Elizabeth xx

[Hidden]

Thank you for sharing this Richard and Jaycee, we send you our very best wishes for a speedy recovery,

Trust1 and all at the Trust

[Hidden in reply to Hidden]

Thank you 😊 Jaycee

[Adelou]

Wishing ypu all the best Jaycee, great team at the Royal Free - remember Dr. Patch likes chocolate buttons & not the small ones 😀 hoping they find out the cause of the problem quickly for you

[Hidden in reply to Adelou]

Yes I remember he said that at the 2000th celebration. I have personally seen him, maybe once at assessment.

Then once on ward. So don’t know him as well as other doctors. However I am not there I am in Bournemouth hospital. The staff here are all awesome.

I am supremely confident the will find the cause. Neutrophils now down to 0.04.

Jaycee

[Isabelle2]

We transplantees are a hardy bunch. Hope they find the cause and she’s up and about soon.

Lots of love to her

Izzy

[redpoint72]

I wish you all the best my love,stay strong my best wishes ,chris