Blackpearl (Jaycee) update.: Sadly... - British Liver Trust

British Liver Trust

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Blackpearl (Jaycee) update.

28 Replies

Sadly, Jaycee’s had some setbacks with her transplant recovery.

It would appear that her immune system is attacking the liver. She is presently jaundiced, and has had two blood transfusions as her haemoglobin levels were low. They have increased her anti-rejection medication, and have done a liver biopsy. The results of which haven’t shown anything wrong.

Apparently, this can be quite common. I guess I was just so fortunate not to have had such problems.

Jaycee remains in good spirits and is still grateful for this second chance of life. She has problems connecting to the hospital’s wifi, and she keeps losing the signal on her mobile phone, so she’s unable to access HealthUnlocked herself.

I have been keeping her informed about some of these posts, and have passed on all your messages of support, love, and best wishes.

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28 Replies
Popel profile image
Popel

Makes you realise how lucky some of us are.i don’t know her but I’ll pray for her.and send her my love and best wishes.x

jazzjam profile image
jazzjam

Oh no, it is a scary time, good for her keeping her spirits up and having positive thoughts, it must be so hard. Having friends and support as she has with you and others on this site and in her life will keep her pushing through I’m sure. And the positive I got from your message is ‘it is quite common’ so that would mean they know what needs to be done and they are on top of it, they are not dealing with the unknown. I really hope this means a setback only and she will be out of the woods soon and back on her feet. Sending my thoughts and prayers.

Yuiop profile image
Yuiop

She’s a fighter, and these doctors are amazing. I hope things settle down soon for our trooper x

Agnes

P13jne profile image
P13jne

Sending luv n hugs I’ll keep Jaycee in my prayers. Thanks Richard x

Wishing her well Richard xx

Sending my very best thoughts to Jaycee. Keep your spirits up 🌹.

Smyally profile image
Smyally

Keep your chin up Jaycee. You got this cod your a fighter. Thanks for keeping us informed Richard

IPCN profile image
IPCN

Sorry to hear she’s having a tough time. My husband had really bad rejection, 3 biopsies, jaundice,high dose steroids and various other complications post transplant but got there in the end with no lasting problems. He’s now over a year post transplant and takes only anti rejection meds twice a day! Chin up Jaycee, hopefully you’ll get through this difficult stage quickly and soon enjoying your new life. Love Pam xx

Peter_Plymouth profile image
Peter_Plymouth

Good luck Jaycee - I hear it’s not that uncommon but that’s little help for you. Your a fighter and I’m sure they will get on top of it. Once passed they say there is no lasting effect either on the wellness nor longevity of the TP liver - just got to get round this hurdle. Push on and your’ll soon be running round the ward lol - Best wishes to you - Peter xx

jojokarak profile image
jojokarak

They prefer you to have rejection in the first year and as unfortunate as it is she couldn't be in a better place to have it now... I had it after six months but they then know what you're body needs and how to deal with it

Love and thoughts to you my dear 😊 😘

GrandmaDylan profile image
GrandmaDylan

Wishing you well jaycee. I hope things start to improve for you soon. Take care, Deb

Hi

Thank you for keeping us informed, Richard.

I'm sorry you are going through a rough patch, Jaycee, you are in the best hands. I'm sending all my love, hugs and Pty to you Jaycee. Lynne. Xxxx

Radnor profile image
Radnor

Please pass on my love to her and to stay positive. Some of us have immune systems that don't play fair. I almost lost my life because of a cytokine release. Well before my liver was damaged with methotrexate. I tolerated it incredibly well too, so it shows how our immune systems are so complex. She is in good hands so hopefully she will soon be on the road to recovery. Hazelx

1football profile image
1football

Sending good wishes and hoping to hear from her soon chin up Jaycee x

My thoughts are with you, by all the comments on here lets hope you are soon on the up and up

Beture47 profile image
Beture47

So sorry to hear the news I have every thing crossed for her

5 weeks after my transplant I had a very serious rejection. Since recovering from the rejction I have not had any other serious problems relating to the liver.

Hope it's the same for Jaycee

Love and best wishes

Elizabeth

davianne profile image
davianne

Oh No, I am so sorry Jaycee, I hope the increase in anti- rejection meds will put it right for you. You are in my prayers,

David

Supportinghubby profile image
Supportinghubby

Please pass on my best wishes to Jaycee. It sounds like others have come through similar issues & although it must be worrying, I'm glad to hear she's in good spirits 💐

Treeclimber62 profile image
Treeclimber62

Thanks for keeping us informed I don't post much but sorry to hear about this jaycee is in good hands BTW way I live in Wrexham your old stomping ground I think is jaycee in the qe that's where I had my tx anyway atb from North wales

Julie8 profile image
Julie8

Thank you Richard for keeping us informed

Nictesla profile image
Nictesla

Tell her to keep fighting mate. All the best Martin.

Millie2014 profile image
Millie2014

All the best to Jaycee. Sorry to hear about the setbacks. Wishing her a full recovery.

Keep fighting Jaycee good luck

Lenny xx

mncold profile image
mncold

Hi Richard,

Please let Jaycee know she is in my thoughts and prayers.

I see others here went thru similar tough times with a transplant and while that does not ease one's own journey it can provide even more hope.

Best wishes,

Mary

Dogbot profile image
Dogbot

Good luck Jaycee I hope it all starts to work properly my very best wishes and thoughts go to you 👍

Coralsun profile image
Coralsun

I'm really sorry to hear that jaycee is having these problems. I hope that with such a great team and jaycee's huge spirit, that things will start to improve very quickly. With love and best wishes.

Coralsun

Brett11 profile image
Brett11

Hi Richard,

Tell her I will post a joke when she is well enough.

Hugs 🤗

Red50 profile image
Red50

Thanks Richard for keeping us posted 🤗 My best wishes and prayers are with her please tell her to stay positive , please let her know 🙏

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