6 months post transplant: Hello everyone... - British Liver Trust

British Liver Trust
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6 months post transplant

Jaycee19
Jaycee19
74 Replies

Hello everyone, I was delighted yesterday to be 6 months post transplant.

Feeling grand, and I think like I should be in recovery. Great!

Just thought I would mark this day by saying a HUGE THANK YOU, to each and everyone of you. For your support in what was a few difficult months.

I am sure I am out the other side now. Ready to live my new life. (I have the force with me). LOL.

Seriously, one and all you know who you are, thank you so much, for all your love and support.

Jaycee

74 Replies
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davianne

Oh Jaycee, what truly wonderful news, I am so so happy for you. You've just cheered up my day 😊😊😊. There is sad news on here too often. Your obviously getting everything right, so just carry on as you are,

Best Wishes,

David

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Jaycee19
Jaycee19
in reply to davianne

Thank you David xxx Yes there is a lot of sadness on the site, sometimes. I guess it is the support you get from everyone that helps so much. Along with someone’s positive news that lifts the soul. I know for me, on a personal level it was like that. My post was really to say thank you to you all. Jaycee

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alfredthegreat

Hi Jaycee. Great to hear that you are feeling good and that everything now is on the up. Congratulations on your 'half liverversary' :-) :-) :-) :-) :-) :-) A big smile for each month x

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Jaycee19

Thank you, I know it is only 6 months but it has been a tad fraught 6 months. So yes, a bit of a positive milestone for me. Jaycee

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chrisw740

Your expressive well being , good news, and optimism become those things too for everyone reading your update. May the force stay with you. Chris xx

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Jaycee19
Jaycee19
in reply to chrisw740

Thank you Chris xxx

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Laura009

Jaycee, this is the fantastic news I've been waiting to hear from you after you've had such a tough time, I am over the moon for you. Live your life to the full now. Massive hug to you, you gorgeous lady.

Lots of love

Laura xxx

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Jaycee19
Jaycee19
in reply to Laura009

Thank you Laura, I am just so grateful for all the real friends I have now. My liver sisters and brothers who supported and loved me through. I stand to applaud you all xxxx jaycee

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ThreeSmiles

That’s so great to hear Jaycee!

I never forget you telling me SEGA SEGA! I still think about that on the not so brilliant days 😁👍. Thanks for that!

Miles

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Jaycee19

Oh Miles is it not so awesome that we are all here for each other xxx jaycee

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ThreeSmiles

Oh my goodness - it really really is 👍

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Trust1
Trust1Administrator

Thank you for sharing such a positive post and we wish you continued good health.

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Jaycee19
Jaycee19
in reply to Trust1

Thank you x

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P13jne

Jaycee, that’s fantastic news. Onward and upwards in your new life. Jane xx

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Jaycee19

Jane lovely to hear from you xx. Thank you hugs to you. Jaycee

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TT-2018

Congratulations Jaycee, thank you for the wonderful message. Best wishes for the many, many more months ahead. x

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Jaycee19
Jaycee19
in reply to TT-2018

Thank you my friend xx Jaycee

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Oldham12
Oldham12
in reply to Jaycee19

Jaycee, I'm so so pleased for you. You have had such a rough time and now it's your turn to glow. You have been and still are an inspiration to us all. Love and hugs Lynne xxxx

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Jaycee19
Jaycee19
in reply to Oldham12

Thank you Lynne xx. It means so much especially with all you are going through you are still in my heart and prayers.

Love Jaycee

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Oldham12
Oldham12
in reply to Jaycee19

Thank you so much for your kind words. You are always in my prayers tpp. Love and hugs Lynne xxxx

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Beture47

So good to hear 6 months is a massive milestone.xx

Eluzabeth

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Jaycee19
Jaycee19
in reply to Beture47

Thank you Beture, not such a huge milestone but the getting there has been one that has been a tad fraught. I am so happy to be feeling well again.

Thank you for your message. I love it xx Jaycee

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david5354

What Fantastic news

I am at nearly 18 months and doing really well, I know that when at I was 6 months I thought I was better but, 18 months I am still getting back to normal.

Just old age now to contend with!

Plus getting used to cutting the grass etc etc

But so glad I can do it again!

David

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Jaycee19
Jaycee19
in reply to david5354

Hello David, 18th months doing well but still trying to get back to normal?? I am so happy for you. All the same, it has made me think; just how much I tend to rush things.. My favourite saying on here is “sega sega”. Which is Greek for slowly slowly.

Then quite often do not heed my own advice. LOL. Thank you for the reminder, that really I should try have more patience and sega sega... I think I expect too much maybe from myself.

I have old age to contend with also .. We will get there. I have every confidence.

Continue to do well David, virtual hugs heading your way.

Jaycee.

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david5354
david5354
in reply to david5354

Normal i.e. being able to do everything I could before being ill

I am 70 % there, the marathon is a little way off!

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Jaycee19
Jaycee19
in reply to david5354

Hi David, thank you for your reply.

I was thinking about what you said about normal life before we were ill. Not totally sure we can expect that as it was. After all our bodies have been through a huge change, I long for the 70% as you are..to search for 100% maybe is asking too much from our battered bodies? Although what do I know, truly I know nothing about anything. I was just thinking about what you said.. Do you think you will become 100% as you were? Jaycee

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david5354
david5354
in reply to Jaycee19

Hi

That is a very good question

All I can say is that at 18 months I now know how much I have improved from the 6 months stage

I was wrecked for over 8 years and I had become at lot weaker, plus I was 55 when diagnosed and now I am 66, so I am not sure how I should feel at this age.

I doubt I will ever get fully back, but that is not going to stop me trying. Its very least I can do to honour my donor , every day I think of how lucky I have been.

You are right the recovery is taking a lot longer than I thought it would and I am still on the journey, but will try and be the best I can get

David

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Maxey666

Hi Jaycee

I'm thrilled that you are feeling so well and up beat. You've done really well all things considered. Thanks for your positive words.

Max x

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Jaycee19
Jaycee19
in reply to Maxey666

Maxey my dear liver brother how are you doing? What is going on? I hold you in my thoughts xx. Jaycee

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Maxey666
Maxey666
in reply to Jaycee19

Hi Jaycee

My lethargy seems to be at an all time high at the moment due to insomnia, but you'd know all about that.

Waiting for call no 6 without trying not to think about it all the time. Xx

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Jaycee19
Jaycee19
in reply to Maxey666

Oh, I really do know my friend. Please try to stay positive, you are so near, I know it is hard truly I do.

However, not being on the list, on the other hand is so much worse, you are at the very top of the list of this I am sure.

I want this so much for you. Everyone here does. We are all holding you up, in our thoughts and prayers.. Have you ever used the “Calm” app ? I am not 100% sold on it but would try anything to sleep.

A breathing app helped me (a little).

I bought a Apple Watch, because I was so terrified of missing the call.

It was good for me, because it had a breathe app on there which did help. It had my exercise app which I totally obsessed on...

I used to walk everyday and listen to my music as I walked. This used to take my mind off things, it was great. I then had to beat each day, until I walked between 8- 16 kilometres a day.

Just waiting for that call drives you nuts... I know.

What about reading do you read a lot Maxey?

Have you got a list of things you want to do afterwards? Looked into holidays, do you keep a diary to remember your journey.

Do you have a list of goals.

I made promises to myself as well, like spending time with my grandchildren. Knowing life is too short.

Anyway, I ramble on too much, just know we are all thinking of you. So, stay strong Maxey, we believe in you.

Let go of the lethargy and believe in yourself, you are stronger than you think.

For you to think about for the very near future.

“From every wound, there is a scar, and every scar tells a story. A story that says, I survived.”

Jaycee x

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Maxey666
Maxey666
in reply to Jaycee19

What a lovely reply. Thanks Jaycee. I have tried a few different methods to assist sleeping but they never seem to work. I do like reading but at the moment with all this going on nothing really gets retained. Walking is a good therapy though especially for the senses. My whole body just feels weird at the moment, it's like it affects everything and nothing. I'm probably not making much sense but it's as if its pulsing through me. Its hard to put it into words. Xx

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Jaycee19
Jaycee19
in reply to Maxey666

Maybe an audio book, saves all the holding the book LOL. I get weird as well, my friend. Worry not, you make perfect sense. The really great news in all - is it is not far away. Your rebirth is so near. I can taste it. So hold on my friend. Stay on the site talk to everyone they are all here for you. Soak in the love and support they will give. Refresh your soul.

Jaycee xx

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Oldham12
Oldham12
in reply to Maxey666

Hi.

Sorry to but in. Lack if sleep is horrendous, an hour or less each night cos of pain. You will get there , I know you will. Love and hugs to you and yours. Lynne

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Maxey666
Maxey666
in reply to Oldham12

Thanks Lynne x

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Oldham12
Oldham12
in reply to Maxey666

You are very welcome. How are you feeling tonight ? Take care of yourself

Lynne

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Jaycee19
Jaycee19
in reply to Oldham12

Hi Lynne you are constantly in my mind, as I suffer with lack of sleep as well. However, it is not on the same scale as you at all. I just have insomnia, whereas you are in constant pain. My heart is with you always Lynne. Xx

Jaycee

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Oldham12
Oldham12
in reply to Jaycee19

Thank you so much for your kind words. Pain worse than ever first thing this morning. I couldn't move, I thought I'm seeing my Dr on Monday and consultant in Thursday so I will lay it on the line then.

How are you feeling today? Love and hugs Lynne xxxx

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ThreeSmiles

Maxey

It makes perfect sense to me. And probably most of the people here awaiting a TP......

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Maxey666

Main symptoms aside Miles the disease is just so strange with a twinge here and an involuntary digit movement there. I actually got cramp in my Achilles heel the other day WTF is all that about. I'm chuckling to myself re all the bizarre oddities liver cirrhosis presents.

Max

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ThreeSmiles

Wait till after your TP then you will see some major twitches and arm thrashing after you come out of an uncommanded nap on a busy train! Poor wife got bashed across the head on a lot of those train journeys back from the clinic at the QEHB..... And, I can’t think why, but I did get some odd looks...

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ThreeSmiles

I meant to say that this doesn’t go on for ever! It is one of the tablets I’m sure lol.

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ballie52

Awww it's so nice to hear how well people are doing post transplant!

It does change people's outlook on life and most people go on to move forward with their future with a new vigor to live life to the full!

I'm happy to hear your doing well and good luck with moving forward in your life. 💕

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Jaycee19
Jaycee19
in reply to ballie52

Hello Ballie, thank you so much for your reply. So appreciated. I always took comfort in seeing how others were post transplant whilst I was on the list. I am indeed feeling great now, but it has been an uphill struggle at times.. All the same constantly look each day in the eye with a very grateful heart. Hope your journey is good also.

Jaycee

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ShropshireLass2019

Whoopiii Jaycee ! What brilliant and amazing news!'

How are you celebrating your 6 months anniversary?

I suggest you blow up 6 balloons with helium🎈🎈🎈🎈🎈🎈add we notes then let them blow free to the wind .......

Now party my lovely friend 🎊🎉🎈🍦☕🍰🍽🍭🍬

Loads of love Trish ❤🎊x

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Jaycee19

Thank you Trish, going out for a meal on Thursday with some friends, so I will have a quiet smile on my face thinking about the donor, the team at RFree, and everyone on this site. In quiet contemplation. With a huge grin on my face...

How you doing Trish??

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ShropshireLass2019

I'm being good and sort of resting today! No gym but keeping busy doing things around the house !

Just had a bit of a scare ! I was just checking my SkyLine Venue Page online covering my dive at Tilstock Airfield Whitchurch when I noticed that somehow my dive location had been changed to another airfield at Salisbury ....Grrrr! I telephoned there HQ and there now looking into the error and why my online skyline page had been altered !!!

I'm so glad I was just browsing my web page for information on what I should be wearing on the day!!!!!

I've notified them that the news paper had announced my flight and they must get it sorted ....

I'm ok otherwise and thank you for asking. Have a wonderful meal Thursday!

Love Trish xxx

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Jaycee19

Oh bother, that is annoying, hopefully they will sort it out.

Great that you were on top of things and spotted it. Well done you.

Not sure I like the sort of resting???? I think either resting or not resting is the answer here? You must rest my friend, maybe you are doing too much, you try so hard.

You have your adoring fans to think about as well. Your sky dive has to go ahead. So, you must stay fit and well. So in turn you must REST, my darling not sort of rest.. LOL

Your health comes first my dear friend, your health is all that matters here...

Thinking of you always xx. Jaycee

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ShropshireLass2019

Oh Jaycee,

I cannot sit/rest all the time! Lol

I sat whilst at the computer😊

I was sitting whilst flicking through some LP's.😊

I was sitting whilst eating lunch 😊

Standing whilst cooking lunch 😣, Standing whilst vacuuming, 😣

Standing whilst cooking dinner😣

Kneeling whilst sorting the fridge😣

Kneeling /Standing whilst emptying my suitcase

But in between all of the above and typing messages I was really resting 🤣🤣🤣🤣.

Feet are now elevated and resting on pouffe I promise 🤣🤣🤣

Loves ya Jaycee ! I will try better tomorrow .......lol

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Jaycee19

Like my very own school report “could try harder”. LOL Love Jaycee

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ShropshireLass2019

Will do better Miss 🤣.....

Nighty Nite Jaycee ❤

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ShropshireLass2019

6.06am .....Good Morn Jaycee !

Just wanted to wish you a lovely day and a Supa celebration meal tonight!,

My feet are elevated so smiles all round 😊

Love Trish ❤

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Jaycee19

Thank you for your kind thoughts and I am delighted keep resting my friend. Baby steps, sega, sega. Love Jaycee

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ShropshireLass2019

Hi Jaycee

With out sounding like an idiot ! What does sega sega stand for ! I've even asked hubby and looked up the meaning up on the web..... what am I missing here! I see you and ThreeSmiles have jokingly used it before .... I'm dying to know ...

Love Trishy xxx

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Jaycee19

Well you may not have found it easily my dear friend. LOL I lived in Cyprus for over 25 years and it means “Slowly slowly”. LOL.

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ShropshireLass2019

Cheers Jaycee ! That's cleared that mystery up! Lol xxx

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Oldham12

How annoying, hope it gets sorted!! Lots of love and hugs Lynne xxxx

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ShropshireLass2019

Cheers Lynne x

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Oldham12

You are very welcome. Have they got back to you yet. Love and hugs Lynne xxxx

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ShropshireLass2019

Lynne you've lost me! Who got back to me?

Ah you mean the sky dive, not yet!

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1football

Hi Jaycee

This is great news am so happy for you😊

Hope you to continue your amazing journey & recovery

All the best

Huw x

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Jaycee19
Jaycee19
in reply to 1football

Thank you Huw, so appreciated, hope you have the force with you also. LOL. Stay well and happy. Jaycee

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sunnysmile

What a wonderful post Jaycee - so positive - you've been there and come through the other side. A joy to read. Onward and upwards it is for you now. Well done honey :) xxx

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Jaycee19
Jaycee19
in reply to sunnysmile

Hello sunnysmile what a lovely name are you like that by nature?

One of those folks with a sunny smile always. I do hope so.

Thank you for your message.

I really do appreciate it.

It has been a journey, but like I said not so bad as some. I know on this site.

Along with others who still suffer after transplant years on.. so, I really am so very lucky.

Could be because I and Luke Skywalker have the force !! LOL.. Have a great day. Jaycee

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sunnysmile
sunnysmile
in reply to Jaycee19

Hi there Jay, yes my nature is always sunny and even if I don't feel it. I am a young 69 and my friends always ask when can they have a sleepover and early PJ's lol lol. Yeah u have weathered the storm just brilliantly - I admire you. But who the hell is Luke Skywalker ? I just know you are going to say he is in something creepy on TV or Film.

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ThreeSmiles

Lol sunny he is a character in the film series Star Wars. Bet you knew that really 😁

Miles

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sunnysmile

Naa mate never watched it .

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ThreeSmiles

Well there you go - you’ve learnt something . I’m sure you feel better for that......😁

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Jaycee19

Hi Miles, hope you are ok ?

Clearly not. For the lovely Sunnysmile.

Richard sent this to me.

This is now my most favourite song.

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ThreeSmiles

Thanks Jaycee 👍. I’ll listen when it’s quiet here 👍. You can guess what I mean hehe!

My least favourite thing in the world is to be called “mate” - as you may have gathered. 😁

Miles

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sunnysmile

Oooops sorry :(

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ThreeSmiles

Np 😁😁 sunnysmile. Just a little thing of mine - it’s my age you see. Grumpy Old Men.... haha.

Miles

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Jaycee19
Jaycee19
in reply to sunnysmile

Hi sunnysmile, I also am a young 68 year old. Well almost 69 in 2 months.

I am so surprised you have never heard of Luke Skywalker and Darth Vader? From Star Wars. Lol. I used to watch with the children.

Jaycee

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Jaycee19

All good here thank you for asking. Hope it goes well with the doctor on Monday. Xxx hugs xxx. Jaycee

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