I saw the consultant hepatologist yesterday with my youngest daughter just before I went for a gastroscopy to look at an ulcer in my small bowel. The hepatologist explained that it is difficult to make a diagnosis of AIH and various symptoms and tests are needed. He mentioned NASH as well but he said people with nash don't tend to have anything like the number of spider naevie I have, my upper body is virtually covered with them. I said about my concerns with the steroids and the effect they had on my diabetes last time. He said I would be on them no longer than 4 weeks. Then start AZ. He wants to do a liver biopsy but wants to discuss it with a colleague whether to do it trans jugular or through the abdomen. He seemed surprised that I was so well informed. I told him that I had read everything I could on the British liver trust website. I asked him which way he was veering between nash and aih and he said aih.
I then went for my gastroscopy ( a different consultant, more interested in my bleeding ulcer) I was given a letter for my gp to start me on beta blockers and a report on the findings. I have early varices which was a shock as I'd had a gastroscopy in july which showed no varices. My youngest daughter who is 28 did a bio medical degree and now works as a senior scientists for big pharma is absolutely distraught and scared for me. We have always had a difficult relationship, I was her verbal punchbag when she was younger. She had an eating disorder which was horrendous but at the same time I am incredibly important to her and the thought of me not being around or being really poorly frightens her to death. I've told her that I am going to be very closely monitored and that if I hadn't had my diabetes blood tests in February we'd be none the wiser. So it's a positive thing. I'm having another gastroscopy in 8 weeks so everything is in hand.