I am on my way to London right now. I am trying hard not to get my hopes up and I know I could be heading home by this afternoon. But if anyone feels like offering up a prayer. I would be be grateful XX Jaycee
Hi, wish you all the best and hope all goes well. Every thing crossed for you and continuous positive prayers for you you are in really great hands from above and where you are heading .
Thank Marydel63 your thoughts are appreciated xx. Jaycee
I've got my fingers crossed that all goes well for you. Your thoughts are going to be of the donor and your life is about to change for ever. Good luck, and just embrace everything that is about to happen.
Well done. Don't forget to buy a lottery ticket. A second chance of life is always a good bet.
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Hi Richard what a joy to hear from you. My heart is pounding with anticipation. I am noting that my overall feeling is sadness for the donor and family. Just as you say, also feeling I don’t deserve to be here. Cannot believe I may get this awesome gift of a new life.
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Don't go beating yourself up Jaycee. I had the same emotional feelings of not being worthy, and that l didn't deserve a second chance. I was politely told to shut up, and that this was the surgeon's choice along with his team, and that they decide what happens. (It was their way of relieving me of that overwhelming feeling of guilt). Just sit back and let them get to work.
What a lovely new year your about to have. Good luck. Xx
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Just had the news that the liver is MINE if it goes ahead. However it is by no means a done deal yet. There is a lot of things they said that could still stop it going ahead. All to do with timing, retrieval, and condition. Won’t know until early pm around 1 or 2 pm today.
Thank you all my heart is bursting with joy if I may say that as well as scared, and typically unworthy, oh an did I say terrified lol.
Jaycee
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Hey Richard I was just sat here thinking of a guy I met at clinic in Bournemouth. He said he had been blue lighted 3 times. It was my first visit to the clinic, so I had no clue what he meant.
Then as we sat he looked into my eyes and said “do you feel like this is happening to someone else” I said yes exactly how I feel. I have to say that even whilst sitting herein the hospital it still feels surreal just like it is all happening to someone else.
Jaycee
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It is all very surreal. It's going to change your life in so many ways. Have you got someone there with you? When you come round in ICU, you'll feel as though you've been hit by a train. Don't be alarmed with all the things plugged into you. Just rest and enjoy people rushing around after you. I was in ICU for two days, and up on the ward for 7-days. 9-days in total. Mine was done at the QE. The nursing staff were fantastic. There was this one bright, young bubbly little thing with blonde hair. She had a sort of glow about her that just radiated warmth. She would just walk in and smile, not say a word but just a smiled, and just that smile made you feel so good.
Mind you some of those nurses were so unhelpful at times. When ever I asked them if they could peel me a grape, they all refused. Bloody NHS.
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Ha ha still giggling from your reply. Waiting with baited breath for the next train.
I have my husband here with me bless he needs more attention than me.
My son is on route from Dubai would you believe xx
Jenny
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OMG. does poor hubby realise that he'll be having to eat off paper plates for a while, or get a set of pink marigolds gloves. The poor fella's going to have his work cut out when you get home. I hope you live in a bungalow otherwise he's going to lose so much weight running up and down those stairs after you.
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I am sure they think I am mad in here I just keep giggling. He does the cooking normally anyway. Yes and the washing up and washing and ironing he is a male version of a household goddess.
It's the most surreal experience. I was in your position 2 years ago with my partner. He was very fortunate to get the go ahead first time. He was extremely calm but afraid to say I lost it at the theatre doors. On a lighter note he is extremely well & says it all feels like a dream. xx
Fingers crossed, I hope all goes ahead. We had one false alarm for my son then the real deal and it is the waiting to find out that is the hardest part x
Hi Jaycee. I don't think it will be long until your second call, it would seem that you have some priority. So don't unpack anything from that case!! Keep your chin up, you'll get there!! Big hugs for you. Alf
Good luck and hope everything goes smoothly for you. I remember every minute from getting the 'call' and going into theatre, it was really exciting and a relief. Blue Light Ambulance from Liverpool to Birmingham.
Congrats!! It was a year ago I got my call. I was told I was the secondary receipient; however, the liver was given to me that day. I am here to say that i feel 100X better today. Wishing all the Best.!!
Hi Poobear, I am still here “waiting”. My call was in November and I have not heard since. I have had a third TACE since then and on Tuesday next I have a MRI and CT scan to check for spreading of the tumours.
I am ok and honestly and truly thank you so much for asking how I am. It means so much. Some days I feel like I am floundering and I am scared. Others I feel I can do anything. I think everyone on this site is awesome. Hand on heart I felt like I was drowning before I found this site. Since then I have spoken to the most amazing people. Each and everyone of them wanted to help others. Giving hope and inspiration to those they spoke to. I applaud everyone on here for having such courage.
I’m so sorry to hear that you’re having to go through this 🤐, I really am. If the physical is not enough to deal with the mental part of it all, as we all know, can have the nasty habit of creeping up on you like a silent assaib 😡. The only words of support and comfort I can offer you is that all of us here, on this forum, will support you in whatever way we possibly can. You see we all “get it” if that makes sense? We get the anger, sorrow, frustration, fear and all of the others things that are associated with this 🤐 awful disease. Even some of us, as you know, who are lucky enough to have received our gift still struggle daily with both physical and mental issues. This evening while I’m in bed listening to my relaxation tape of whales sining at night I will think that for tonight it will be your song, filled with good energy and hope.
Hi thank you so much Podiatristkaty, 😊 but sadly that was in November and I was sent home without a new liver but I am waiting now with a cup half full. Jaycee
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