The call: Hi everyone, well my call... - British Liver Trust

British Liver Trust

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The call

60 Replies

Hi everyone, well my call happened today.

I am on my way to London right now. I am trying hard not to get my hopes up and I know I could be heading home by this afternoon. But if anyone feels like offering up a prayer. I would be be grateful XX Jaycee

60 Replies
chugalong profile image
chugalong

Hi, wish you all the best and hope all goes well. Every thing crossed for you and continuous positive prayers for you you are in really great hands from above and where you are heading .

in reply tochugalong

Thank you so appreciated xx

Marydel63 profile image
Marydel63

Wishing you the very best stay strong!

in reply toMarydel63

Thank Marydel63 your thoughts are appreciated xx. Jaycee

I've got my fingers crossed that all goes well for you. Your thoughts are going to be of the donor and your life is about to change for ever. Good luck, and just embrace everything that is about to happen.

Well done. Don't forget to buy a lottery ticket. A second chance of life is always a good bet.

in reply to

Hi Richard what a joy to hear from you. My heart is pounding with anticipation. I am noting that my overall feeling is sadness for the donor and family. Just as you say, also feeling I don’t deserve to be here. Cannot believe I may get this awesome gift of a new life.

in reply to

Don't go beating yourself up Jaycee. I had the same emotional feelings of not being worthy, and that l didn't deserve a second chance. I was politely told to shut up, and that this was the surgeon's choice along with his team, and that they decide what happens. (It was their way of relieving me of that overwhelming feeling of guilt). Just sit back and let them get to work.

What a lovely new year your about to have. Good luck. Xx

in reply to

Just had the news that the liver is MINE if it goes ahead. However it is by no means a done deal yet. There is a lot of things they said that could still stop it going ahead. All to do with timing, retrieval, and condition. Won’t know until early pm around 1 or 2 pm today.

Thank you all my heart is bursting with joy if I may say that as well as scared, and typically unworthy, oh an did I say terrified lol.

Jaycee

in reply to

Hey Richard I was just sat here thinking of a guy I met at clinic in Bournemouth. He said he had been blue lighted 3 times. It was my first visit to the clinic, so I had no clue what he meant.

Then as we sat he looked into my eyes and said “do you feel like this is happening to someone else” I said yes exactly how I feel. I have to say that even whilst sitting herein the hospital it still feels surreal just like it is all happening to someone else.

Jaycee

in reply to

It is all very surreal. It's going to change your life in so many ways. Have you got someone there with you? When you come round in ICU, you'll feel as though you've been hit by a train. Don't be alarmed with all the things plugged into you. Just rest and enjoy people rushing around after you. I was in ICU for two days, and up on the ward for 7-days. 9-days in total. Mine was done at the QE. The nursing staff were fantastic. There was this one bright, young bubbly little thing with blonde hair. She had a sort of glow about her that just radiated warmth. She would just walk in and smile, not say a word but just a smiled, and just that smile made you feel so good.

Mind you some of those nurses were so unhelpful at times. When ever I asked them if they could peel me a grape, they all refused. Bloody NHS.

in reply to

Ha ha still giggling from your reply. Waiting with baited breath for the next train.

I have my husband here with me bless he needs more attention than me.

My son is on route from Dubai would you believe xx

Jenny

in reply to

OMG. does poor hubby realise that he'll be having to eat off paper plates for a while, or get a set of pink marigolds gloves. The poor fella's going to have his work cut out when you get home. I hope you live in a bungalow otherwise he's going to lose so much weight running up and down those stairs after you.

in reply to

I am sure they think I am mad in here I just keep giggling. He does the cooking normally anyway. Yes and the washing up and washing and ironing he is a male version of a household goddess.

Huggy7614 profile image
Huggy7614 in reply to

Umm we’re not married are we??

Good luck!! I’m not at your stage yet, so can only imagine the emotions. But my fingers are crossed for you.

Andy

freddie76 profile image
freddie76

Fingers crossed.

Good luck

in reply tofreddie76

Thank you Freddie xxx

Forumgd profile image
Forumgd

Praying for you and I hope you get your second chance,God bless.

in reply toForumgd

Thank you so much xxx

Identity75 profile image
Identity75

Good luck. Try to relax and welcome in your new life. X

in reply toIdentity75

Ahh now there is the hard part relaxing. Thank you so much. XX

Supportinghubby profile image
Supportinghubby

I'm new here but wanted to say good luck & I have just said a little prayer for you on my train to work (in my head!) that all goes well!

in reply toSupportinghubby

Ahh thank you, really do appreciate that. It means so much xxx Jaycee

1football profile image
1football

Good luck jaycee hopefully this will be the first day of the rest of your life wishing you super good luck

Huw x

in reply to1football

Thank you xx

h0b0 profile image
h0b0

All the very best to you & yours. You DO deserve this chance & you will make the very best of it. xx

in reply toh0b0

Thank you it is so weird all of this. Won’t know until early afternoon if it is to go ahead. Lots of specifics needed from doctors reports donor.

Jaycee

1football profile image
1football in reply to

I waited around 8 hours both times

in reply to1football

Ok ready for that thank you xx

h0b0 profile image
h0b0 in reply to

It's the most surreal experience. I was in your position 2 years ago with my partner. He was very fortunate to get the go ahead first time. He was extremely calm but afraid to say I lost it at the theatre doors. On a lighter note he is extremely well & says it all feels like a dream. xx

in reply toh0b0

Well my choices are cancer or transplant, just being here I feel even more blessed, I am 67 years old.

I have the most awesome family.

I am truly blessed. Sorry to bleat on about being excited and such. I know there are lots still waiting and in pain.

Jaycee

Pop007 profile image
Pop007

Fingers crossed... keep us posted!

in reply toPop007

Will do xx thank you.

Brett11 profile image
Brett11

Any updates Jaycee?

Sending healing vibes.

Brett

Oh, I almost forgot. What I manage to do is to take some selfies of my self, before and after the transplant.

This Christmas I have added these pictures to a Christmas card and shall be sending them to the ward next week. Just a little after thought.

in reply to

Great idea but I take the most God awful photo xx

gizmo67 profile image
gizmo67

All the very best of luck.....fingers crossed for you.

Danisleigh profile image
Danisleigh

Fingers crossed, I hope all goes ahead. We had one false alarm for my son then the real deal and it is the waiting to find out that is the hardest part x

Isabelle2 profile image
Isabelle2

hi

I'm hoping and praying you get good news soon xx

alfredthegreat profile image
alfredthegreat

WOW!!! Fantastic. Just seen this. Hope it all goes ahead first time. Sending good vibes and very best wishes. Will be thinking of you. Alf

in reply toalfredthegreat

Sadly on my way home liver was too big Alf xx

alfredthegreat profile image
alfredthegreat in reply to

Hi Jaycee. I don't think it will be long until your second call, it would seem that you have some priority. So don't unpack anything from that case!! Keep your chin up, you'll get there!! Big hugs for you. Alf

Yuiop profile image
Yuiop in reply to

So sorry to hear this, hang on in there x

Kristian profile image
Kristian

Good Luck for next time Pearl

Yuiop profile image
Yuiop

Oh Jaysee, I wish you all the dreams in the world! I will be following you, so keep us updated when your well enough xxx

Pizamkazdw profile image
Pizamkazdw

Good luck and keep fingers crossed for you :)

Oh dear ! Your time will come love . Better to have the perfect one x.

Julie8 profile image
Julie8

We’re all going to be thinking of you Jaycee you are the reality right now.

in reply toJulie8

Ha ha please don’t think I am reality I have a head like rice pudding.

Lol

Have a great day Julie8 thank you for your support it means so much xx

Jaycee

Radnor profile image
Radnor

God willing today will be a real life changer for you. When the opt out for organ donation becomes law, hopefully long waits will be over. Good luck x

Radnor profile image
Radnor

Sorry its not today but your time will come. Hopefully another sufferer is suitable. x

thank you xx I am ready for the anything. Hope you are ok

Jaycee

Dallo100 profile image
Dallo100

Good luck and hope everything goes smoothly for you. I remember every minute from getting the 'call' and going into theatre, it was really exciting and a relief. Blue Light Ambulance from Liverpool to Birmingham.

meme7 profile image
meme7

Congrats!! It was a year ago I got my call. I was told I was the secondary receipient; however, the liver was given to me that day. I am here to say that i feel 100X better today. Wishing all the Best.!!

Poobear69 profile image
Poobear69

How are you doing? Let us know 😊

in reply toPoobear69

Hi Poobear, I am still here “waiting”. My call was in November and I have not heard since. I have had a third TACE since then and on Tuesday next I have a MRI and CT scan to check for spreading of the tumours.

I am ok and honestly and truly thank you so much for asking how I am. It means so much. Some days I feel like I am floundering and I am scared. Others I feel I can do anything. I think everyone on this site is awesome. Hand on heart I felt like I was drowning before I found this site. Since then I have spoken to the most amazing people. Each and everyone of them wanted to help others. Giving hope and inspiration to those they spoke to. I applaud everyone on here for having such courage.

Thank you once again Poobear xx Jaycee

Poobear69 profile image
Poobear69

I’m so sorry to hear that you’re having to go through this 🤐, I really am. If the physical is not enough to deal with the mental part of it all, as we all know, can have the nasty habit of creeping up on you like a silent assaib 😡. The only words of support and comfort I can offer you is that all of us here, on this forum, will support you in whatever way we possibly can. You see we all “get it” if that makes sense? We get the anger, sorrow, frustration, fear and all of the others things that are associated with this 🤐 awful disease. Even some of us, as you know, who are lucky enough to have received our gift still struggle daily with both physical and mental issues. This evening while I’m in bed listening to my relaxation tape of whales sining at night I will think that for tonight it will be your song, filled with good energy and hope.

in reply toPoobear69

Thank you truly xxxx

Podiatristkaty profile image
Podiatristkaty

Amazing news for you! Take it and enjoy a healthy life in honour of your donor!! Hope all goes well!

in reply toPodiatristkaty

Hi thank you so much Podiatristkaty, 😊 but sadly that was in November and I was sent home without a new liver but I am waiting now with a cup half full. Jaycee

Poobear69 profile image
Poobear69 in reply to

And soon that proverbial cup will overflow............

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