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British Liver Trust
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The call

Hi everyone, well my call happened today.

I am on my way to London right now. I am trying hard not to get my hopes up and I know I could be heading home by this afternoon. But if anyone feels like offering up a prayer. I would be be grateful XX Jaycee

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Hi, wish you all the best and hope all goes well. Every thing crossed for you and continuous positive prayers for you you are in really great hands from above and where you are heading .

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Thank you so appreciated xx

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Wishing you the very best stay strong!

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Thank Marydel63 your thoughts are appreciated xx. Jaycee

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I've got my fingers crossed that all goes well for you. Your thoughts are going to be of the donor and your life is about to change for ever. Good luck, and just embrace everything that is about to happen.

Well done. Don't forget to buy a lottery ticket. A second chance of life is always a good bet.

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Hi Richard what a joy to hear from you. My heart is pounding with anticipation. I am noting that my overall feeling is sadness for the donor and family. Just as you say, also feeling I don’t deserve to be here. Cannot believe I may get this awesome gift of a new life.

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Don't go beating yourself up Jaycee. I had the same emotional feelings of not being worthy, and that l didn't deserve a second chance. I was politely told to shut up, and that this was the surgeon's choice along with his team, and that they decide what happens. (It was their way of relieving me of that overwhelming feeling of guilt). Just sit back and let them get to work.

What a lovely new year your about to have. Good luck. Xx

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Just had the news that the liver is MINE if it goes ahead. However it is by no means a done deal yet. There is a lot of things they said that could still stop it going ahead. All to do with timing, retrieval, and condition. Won’t know until early pm around 1 or 2 pm today.

Thank you all my heart is bursting with joy if I may say that as well as scared, and typically unworthy, oh an did I say terrified lol.

Jaycee

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Hey Richard I was just sat here thinking of a guy I met at clinic in Bournemouth. He said he had been blue lighted 3 times. It was my first visit to the clinic, so I had no clue what he meant.

Then as we sat he looked into my eyes and said “do you feel like this is happening to someone else” I said yes exactly how I feel. I have to say that even whilst sitting herein the hospital it still feels surreal just like it is all happening to someone else.

Jaycee

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It is all very surreal. It's going to change your life in so many ways. Have you got someone there with you? When you come round in ICU, you'll feel as though you've been hit by a train. Don't be alarmed with all the things plugged into you. Just rest and enjoy people rushing around after you. I was in ICU for two days, and up on the ward for 7-days. 9-days in total. Mine was done at the QE. The nursing staff were fantastic. There was this one bright, young bubbly little thing with blonde hair. She had a sort of glow about her that just radiated warmth. She would just walk in and smile, not say a word but just a smiled, and just that smile made you feel so good.

Mind you some of those nurses were so unhelpful at times. When ever I asked them if they could peel me a grape, they all refused. Bloody NHS.

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Ha ha still giggling from your reply. Waiting with baited breath for the next train.

I have my husband here with me bless he needs more attention than me.

My son is on route from Dubai would you believe xx

Jenny

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OMG. does poor hubby realise that he'll be having to eat off paper plates for a while, or get a set of pink marigolds gloves. The poor fella's going to have his work cut out when you get home. I hope you live in a bungalow otherwise he's going to lose so much weight running up and down those stairs after you.

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I am sure they think I am mad in here I just keep giggling. He does the cooking normally anyway. Yes and the washing up and washing and ironing he is a male version of a household goddess.

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Umm we’re not married are we??

Good luck!! I’m not at your stage yet, so can only imagine the emotions. But my fingers are crossed for you.

Andy

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Fingers crossed.

Good luck

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Thank you Freddie xxx

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Praying for you and I hope you get your second chance,God bless.

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Thank you so much xxx

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Good luck. Try to relax and welcome in your new life. X

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Ahh now there is the hard part relaxing. Thank you so much. XX

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I'm new here but wanted to say good luck & I have just said a little prayer for you on my train to work (in my head!) that all goes well!

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Ahh thank you, really do appreciate that. It means so much xxx Jaycee

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Good luck jaycee hopefully this will be the first day of the rest of your life wishing you super good luck

Huw x

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Thank you xx

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All the very best to you & yours. You DO deserve this chance & you will make the very best of it. xx

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Thank you it is so weird all of this. Won’t know until early afternoon if it is to go ahead. Lots of specifics needed from doctors reports donor.

Jaycee

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I waited around 8 hours both times

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Ok ready for that thank you xx

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It's the most surreal experience. I was in your position 2 years ago with my partner. He was very fortunate to get the go ahead first time. He was extremely calm but afraid to say I lost it at the theatre doors. On a lighter note he is extremely well & says it all feels like a dream. xx

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Well my choices are cancer or transplant, just being here I feel even more blessed, I am 67 years old.

I have the most awesome family.

I am truly blessed. Sorry to bleat on about being excited and such. I know there are lots still waiting and in pain.

Jaycee

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Fingers crossed... keep us posted!

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Will do xx thank you.

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Any updates Jaycee?

Sending healing vibes.

Brett

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Oh, I almost forgot. What I manage to do is to take some selfies of my self, before and after the transplant.

This Christmas I have added these pictures to a Christmas card and shall be sending them to the ward next week. Just a little after thought.

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Great idea but I take the most God awful photo xx

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All the very best of luck.....fingers crossed for you.

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Fingers crossed, I hope all goes ahead. We had one false alarm for my son then the real deal and it is the waiting to find out that is the hardest part x

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hi

I'm hoping and praying you get good news soon xx

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WOW!!! Fantastic. Just seen this. Hope it all goes ahead first time. Sending good vibes and very best wishes. Will be thinking of you. Alf

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Sadly on my way home liver was too big Alf xx

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Hi Jaycee. I don't think it will be long until your second call, it would seem that you have some priority. So don't unpack anything from that case!! Keep your chin up, you'll get there!! Big hugs for you. Alf

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So sorry to hear this, hang on in there x

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Good Luck for next time Pearl

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Oh Jaysee, I wish you all the dreams in the world! I will be following you, so keep us updated when your well enough xxx

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Good luck and keep fingers crossed for you :)

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Oh dear ! Your time will come love . Better to have the perfect one x.

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We’re all going to be thinking of you Jaycee you are the reality right now.

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Ha ha please don’t think I am reality I have a head like rice pudding.

Lol

Have a great day Julie8 thank you for your support it means so much xx

Jaycee

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God willing today will be a real life changer for you. When the opt out for organ donation becomes law, hopefully long waits will be over. Good luck x

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Sorry its not today but your time will come. Hopefully another sufferer is suitable. x

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thank you xx I am ready for the anything. Hope you are ok

Jaycee

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Good luck and hope everything goes smoothly for you. I remember every minute from getting the 'call' and going into theatre, it was really exciting and a relief. Blue Light Ambulance from Liverpool to Birmingham.

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Congrats!! It was a year ago I got my call. I was told I was the secondary receipient; however, the liver was given to me that day. I am here to say that i feel 100X better today. Wishing all the Best.!!

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How are you doing? Let us know 😊

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Hi Poobear, I am still here “waiting”. My call was in November and I have not heard since. I have had a third TACE since then and on Tuesday next I have a MRI and CT scan to check for spreading of the tumours.

I am ok and honestly and truly thank you so much for asking how I am. It means so much. Some days I feel like I am floundering and I am scared. Others I feel I can do anything. I think everyone on this site is awesome. Hand on heart I felt like I was drowning before I found this site. Since then I have spoken to the most amazing people. Each and everyone of them wanted to help others. Giving hope and inspiration to those they spoke to. I applaud everyone on here for having such courage.

Thank you once again Poobear xx Jaycee

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I’m so sorry to hear that you’re having to go through this 🤐, I really am. If the physical is not enough to deal with the mental part of it all, as we all know, can have the nasty habit of creeping up on you like a silent assaib 😡. The only words of support and comfort I can offer you is that all of us here, on this forum, will support you in whatever way we possibly can. You see we all “get it” if that makes sense? We get the anger, sorrow, frustration, fear and all of the others things that are associated with this 🤐 awful disease. Even some of us, as you know, who are lucky enough to have received our gift still struggle daily with both physical and mental issues. This evening while I’m in bed listening to my relaxation tape of whales sining at night I will think that for tonight it will be your song, filled with good energy and hope.

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Thank you truly xxxx

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Amazing news for you! Take it and enjoy a healthy life in honour of your donor!! Hope all goes well!

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Hi thank you so much Podiatristkaty, 😊 but sadly that was in November and I was sent home without a new liver but I am waiting now with a cup half full. Jaycee

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And soon that proverbial cup will overflow............

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