The call: Hi everyone hope you all... - British Liver Trust

British Liver Trust

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The call

ā€¢26 Replies

Hi everyone hope you all keeping well as can be ! Well hubby got call yesterday so off we went to hospital omg was so scared šŸ˜¦. They done bloods and we waited the surgeon come and told us that the liver was on route . A few hours later the surgeon come to say liver wasnā€™t good enough after biopsy. So back home we come . Hubby was fine about it . They was a guy there whoā€™d had a six organ transplant omg heā€™d been in 7 weeks but looked fantastic . If you goggle Msn who had 6 organ transplant from Belfast you can read his story . Absolutely fantastic . So just wondering after the first call how long did it take for the next ??? Xxx

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26 Replies
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AyrshireK profile image
AyrshireK

Some people get the call almost immediately, one poster on here got the call as they were driving home after the first 'no go'. Fingers crossed a good and suitable liver comes around again soon. What blood type is hubby?

All the best, Katie

Thanks love heā€™s got the common one canā€™t remeber oppps xx

Kristian profile image
Kristian

Sorry to hear it didn't come off this time. Hope the next call comes soon.

Hi

Sorry to hear liver wasn't suitable, hope your hubby gets call asap. Take care xxxx

I got 4 calls in 5 weeks so if his blood type is widely compatible, it should be soon. Fingers crossed for you šŸ¤ž

ā€¢ in reply to

Omg šŸ˜® x

jojokarak profile image
jojokarak

My second call was ten days after so hopefully won't be long and he will be on the other side šŸ˜Š

ā€¢ in reply tojojokarak

Omg finding it really scary as know it could happen any day not . Think I got used to the call not coming and then it did . Puts everything back to been so real xxx

jojokarak profile image
jojokarakā€¢ in reply to

It certainly does but I was in hospital anyway so I was constantly distracted. If you can keep yourselves busy it's definitely the best way x

Identity75 profile image
Identity75

Exactly one week after the first no go call. Wonā€™t be long now. Wishing you both all the best.

ā€¢ in reply toIdentity75

Thank you for replying how are u keeping after op x

Identity75 profile image
Identity75ā€¢ in reply to

Am doing really well thanks. Scar has healed really well, such a neat job. Still a few aches and tenderness but itā€™s early days still.

Before you know it youā€™ll have your old hubby back and fighting fit.

ā€¢ in reply toIdentity75

Thatā€™s fantastic news x

dizzime profile image
dizzime

Hi there. It won't be long now so keep prepared and it will come soon. Fingers crossed for you, good luck and keep positive x šŸ˜

ā€¢ in reply todizzime

Thank you xx

Barnetaccounts profile image
Barnetaccounts

Hi Debski, got my first call which was a no go, and the the one I had been waiting for about 5 days later. ā€œRay, if this liver is half as good as they are telling us, itā€™s got your name written all over itā€ well if it has itā€™s in somebody elseā€™s bodyā€as I haemmoraged almost immediately and they fought like crazy to keep me alive. The haemorrhage was caused by an original resection scar which they had to open to get to my liver. 15 months later I am still here to tell the tale with my old liver still doing itā€™s thing. I write about the whole experience as part of my blog and the relevant one is called ā€œThe transplant or notā€ 1liver1life.wordpress.com I now update it when something else happens and as I am going in for embolisation number 10 tomorrow an update will undoubtably follow. What happened to me is extremely rare and I am sure your husband will be fine. I hope it happens soon and you can go on and get back to some sort of normality.

Ray

ā€¢ in reply toBarnetaccounts

Oh dear what a story canā€™t belive you on to number ten embolization. Does that mean u canā€™t have transplant then xx

Barnetaccounts profile image
Barnetaccountsā€¢ in reply to

No unfortunately not. But the experience of the whole journey has been incredible to this point. I obviously donā€™t want to die, and I am ever the optimist. I am off on a cruise from Singapore to Abu Dhabi in about 6 weeks and have done so much since things didnā€™t quite work out. I live every day to the maximum and just listen to my body, when I am tired I sleep. I truly hope things go well for you I think Iā€™ve had the stress for everybody else. xxx

ā€¢ in reply toBarnetaccounts

Bless ya yep live everyday as it comes enjoy ya cruise šŸš¢ thatā€™s gonna be fantastic xxx

Was so funny though as we put his bag in his car with everything in then drove to hospital in mine ??? Crazy brains šŸ§  or what . The nurses did laugh xxx

Danisleigh profile image
Danisleigh

My son had his first call on 4th Feb but they sent us home on the 5th as the liver wasnā€™t suitable. We then got another call on the 6th Feb and he was transplanted in the early hours of the 7th! It was a rollercoaster but he is now 22 days PT and is home and doing well.

ā€¢ in reply toDanisleigh

Or bless him . Glad heā€™s doing fine xxxx

Chelle_ profile image
Chelle_

Any news Hidden regarding your hubby's call?

ā€¢ in reply toChelle_

Nothing at all xxxxx

1football profile image
1football

Hi debski, how are you and hubby doing? Am going to presume your waiting for that phone to go again?did you get to meet your possible surgeon mine is Paul Gibbs really nice chap. Take care and wishing you all the luck in the world

Huw

ā€¢ in reply to1football

Hi love still waiting for that phone call . A surgeon did come and see my hubby canā€™t remember her name though ? Hope u doing ok šŸ‘Œ xx

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