Hello everyone, just wanted to say hello to you all and thank you all again for your support and helping me calm down. I have this overwhelming feeling of inadequacy. Everyone is so helpful and knowledgeable on this site. I know nothing much about anything, I want to be able to encourage people as they did me but feel unqualified and mostly too inadequate to say anything.
Things move in the life of liver disease/cancer like a roller coaster.
It is so hard sometimes from endless waiting and worry I was transformed by this site. The best thing in the world right now for me is this site, I no longer feel alone, I am not in the same dark place I was in. So again, thank you, everyone. I hope one day to be of help to someone else here.
So by way of an update:- Fresh from my last TACE (second) and the subsequent MRI. I had my meeting with the consultant. He says the TACE has worked this time and the tumours have shrunk. They are now at .9 cm and the other is around .5 cm very small.
This is a huge change for me from 2.6 and 1.5 cm so clearly, I am floating on my cloud of happiness right now.
I have to have a third TACE but as yet not booked.
Still gaining weight whilst exercising, no fluid at all so that is good.
I guess I am just overeating. They gave me a diet sheet when I was at the Royal Free Hospital and I have to eat 7 times a day... small meals or snacks included in that seven times. I think maybe I am overeating.
I kept asking is ice cream included as it is my favourite food if you can call it that. So, I need to be more diligent with what I eat and the amount.
I am eating healthy food, but sadly when I feel scared or worried I tend to head for the chocolate, cake, ice cream - well everything that I should not.
So motto still as school report " Must try harder".
Thank you all once again, stay healthy, happy and strong.
Jaycee (blackpearl - taken from my favourite film Pirates of the Caribbean.)
You will be floating for days on your brilliant news, lol. Just thought I'd mention that I was told you need 30 grams of protein at suppertime to see your liver through the night. It stops the body drawing the protein it needs from your muscles. I used to have a greek yogurt with fruit in it that was very high in protein (i always have a box of mixed frozen fruit in the freezer so that I can just have a spoon or two out of there and defrost it in micro) fruit is useful for on porridge too amongst other things. A poached egg (good for keeping albumin up too) on a crumpet or maybe peanut butter on toast. I was told don't worry overmuch if something is not absolutely strictly healthy because it's more important that you eat high protein. So long as your diet is basically healthy that is the main thing. I was told that to have something like a chinese once a week was fine too, although I tried this and it upset my liver. Chinese is lovely but just too many bad things in it for the liver to handle(in my case anyway!). I was also told that lean sliced beef is good as it's very high in protein. Red meat is supposed to be a no no but in this case you are only eating a small amount of beef for a big amount of protein. check out the protein in the packs of sliced beef for sandwiches that they sell in the supermarkets. Also adding some powdered whey to milk and a dob of ice cream and making a milkshake is an excellent form of high protein. I will go now before I put you to sleep with all my foody tips (think I've become obsessed! lol). Keep on smiling. Alf
Alf fruity, I had 40 sips for nite time to stave off body eating muscle nite time effects. You are sooo much more diet aware than me. My real effort was to buy diabetic ice cream (yep the old one - not ice cream that has diabetes but... you know. A bit like seeing the dabetic nurse ... she needed insulin 4 times a day...sad old Miles) oh yes back to the ice cream. The dietician at the hospital said NOT to buy diabetic ice cream, there were too many things bad in it, and that I should eat normally but sensibly. Well the latter is difficult for me, the normally bit I can cope with!
Marathon here I come!
Your old mucker, Miles
🇧🇧
I found some lighter ice cream Madagascan vanilla at M&S. I had this last night with 10 cal jelly and frozen fruit great tip from ATG,. I get the munchies around 11.00 pm so it was out of bed for a and a handful of brazil nuts, and a large kit kat. LOL just undoing all the good I did that day... I should be stronger I know because I am not really hungry. Just want chocolate or something sweet. So I guess I am like you Miles I eat normally its the sensibly bit that is a bit hard - Have a great day
I love it Jaycee 😁. I have urge for choccie as well....
Don't you mean snickers 😄😄
Yes Debs, Marathon or anything chocolatey😁. My wife puts them in a drawer thinking they’re safe, but when she’s gone to bed, I mean, who wouldn’t raid the pantry. Only a little you understand 😁
Milo
🇧🇧