How long? After Tace

[eekk]

How long do people usually have left to live once they have started tace treatment?

When the doctors say the round of tace clears what cancer they could see on the scan how long until it returns again and more tace is required?

[AyrshireK]

Some very good and clear information on TACE on this Canadian site:- cancer.ca/en/cancer-informa...

It says the following about follow up:- Follow-up after TACE

You may have a CT scan 2 or 3 months after TACE. Doctors use this imaging test to see how much the tumours have shrunk and to look for any new tumours in the liver.

Many people will need another TACE procedure because liver tumours often grow back in 10–16 months. TACE can be repeated as many times as needed, as long as you are still healthy enough to have it done.

Katie

[DeniB in reply to AyrshireK]

I had Tace twice back in 2015. I then had a year of Sorafenib. I know someone who has had it 15 times. It depends on if they can actually embolise and block each tumour and how well you cope with the side effects. Sorry not a definite answer. I am now on an immunotherapy trial and tumours are stable with good quality of life. Diagnosed 2014.

[eekk in reply to DeniB]

Thank you for your replies and excellent news to hear you have good quality of life 3 years after diagnosis Denib.

I have heard of sorafenib but do not know much about it , at what stage do they offer that and why did you change from tace to that?

[AyrshireK in reply to eekk]

The article I linked to above covers the Targeted Therapy i.e. Sorafenib and how and when it is used.

[DeniB in reply to eekk]

I started off with a resection. 6mths later scan showed new tumours in liver and mets in lungs. Tace was offered with Sorafenib. The Sorafenib acts as an inhibitor. Was struggling with side effects on it and after 12mths had progression. I am now on Pembrolizumab trial in Liverpool. After 12mths I am stable with tumours at half the original size.

[Kellydean in reply to DeniB]

Hi do you have Liver Chirrosis? My husband has hep c from 30 yrs ago, has liver chirrosis, 3 cancer tumours, 3 weeks ago had Tace, which he was so poorly in q e for 2 weeks still very lathargic no energy, waiting on scan this week. He will not be able to have anymore Tace. Is there anymore treatment for liver cancer? that anyone has been on.x

[DeniB in reply to Kellydean]

No I haven't had cirrhosis. I had no obvious signs and was lucky to be diagnosed at all. The Tace wiped me out for weeks incredibly tired, hair loss,food issues. think it was over five weeks before I could function properly but was still tired. Other than Tace for Liver the only other treatments I'm aware of are ablation or clinical trials.

[Kellydean in reply to DeniB]

Thank you for your reply. Hope all goes well and good luck.x

[Kellydean]

My husband had Tace made him really bad, didn't work on the 2 tumours they attacked! No more Tace and no more treatment will help him. Consultants have given him 12 months! He's 51 I am absolutely heartbroken!! X

[Hidden in reply to Kellydean]

Hi

I'm so sorry to hear of your dad news. You are both in my thoughts and prayers. Please take care. Lots of love Lynne xxxx

[eekk in reply to Kellydean]

Sorry Kelly it is awful.

Is there no alternative treatment they can offer? How is he now

[Kellydean in reply to eekk]

Hi, My husband sadly passed away on 23rd Feb. Liver Disease is a horrendous death. He is at peace now. Absolutely Heart broken.x

[Hidden in reply to Kellydean]

Kelly,

Please accept our sincere condolences from everyone here at the British Liver Trust.

Warm wishes.

[eekk in reply to Kellydean]

So very sorry it is so awful and so recent for you.We are all in the same position here and thankyou for replying.So looking through this post when they say 12 months it can mean half that it is just like you say horrendous but thankyou to those who are willing to share how horrendous and what to look for ,for those of us just sat here in the awful not knowing anxious stage where we do not know anything. Xxxxxxx

[Poppys1 in reply to Kellydean]

My heart go s out to you my husband is just had his first tace 3weeks ago but still seems to be getting worse it's braking my heart he s 62 he don't know I'd been told it may be only months he has left he doesn't want to know it's so hard knowing your going to lose someone you love sending my love to you

[Kellydean in reply to Poppys1]

Hi, My husband had Tace in July. He went down hill after that! Thinking of you.x

[eekk in reply to Poppys1]

After 3 weeks they do seem very tired and bad but then perk up a bit.It can keep it at bay for around 9 mnths until they need another round sometimes

[Poppys1 in reply to eekk]

I'm praying it helps thank you eekk

[Kellydean]

Thank you Lynne.Xxx