Hello everyone, just wanted to say hello to you all and thank you all again for your support and helping me calm down. I have this overwhelming feeling of inadequacy. Everyone is so helpful and knowledgeable on this site. I know nothing much about anything, I want to be able to encourage people as they did me but feel unqualified and mostly too inadequate to say anything.
Things move in the life of liver disease/cancer like a roller coaster.
It is so hard sometimes from endless waiting and worry I was transformed by this site. The best thing in the world right now for me is this site, I no longer feel alone, I am not in the same dark place I was in. So again, thank you, everyone. I hope one day to be of help to someone else here.
So by way of an update:- Fresh from my last TACE (second) and the subsequent MRI. I had my meeting with the consultant. He says the TACE has worked this time and the tumours have shrunk. They are now at .9 cm and the other is around .5 cm very small.
This is a huge change for me from 2.6 and 1.5 cm so clearly, I am floating on my cloud of happiness right now.
I have to have a third TACE but as yet not booked.
Still gaining weight whilst exercising, no fluid at all so that is good.
I guess I am just overeating. They gave me a diet sheet when I was at the Royal Free Hospital and I have to eat 7 times a day... small meals or snacks included in that seven times. I think maybe I am overeating.
I kept asking is ice cream included as it is my favourite food if you can call it that. So, I need to be more diligent with what I eat and the amount.
I am eating healthy food, but sadly when I feel scared or worried I tend to head for the chocolate, cake, ice cream - well everything that I should not.
So motto still as school report " Must try harder".
Thank you all once again, stay healthy, happy and strong.
Jaycee (blackpearl - taken from my favourite film Pirates of the Caribbean.)
You will be floating for days on your brilliant news, lol. Just thought I'd mention that I was told you need 30 grams of protein at suppertime to see your liver through the night. It stops the body drawing the protein it needs from your muscles. I used to have a greek yogurt with fruit in it that was very high in protein (i always have a box of mixed frozen fruit in the freezer so that I can just have a spoon or two out of there and defrost it in micro) fruit is useful for on porridge too amongst other things. A poached egg (good for keeping albumin up too) on a crumpet or maybe peanut butter on toast. I was told don't worry overmuch if something is not absolutely strictly healthy because it's more important that you eat high protein. So long as your diet is basically healthy that is the main thing. I was told that to have something like a chinese once a week was fine too, although I tried this and it upset my liver. Chinese is lovely but just too many bad things in it for the liver to handle(in my case anyway!). I was also told that lean sliced beef is good as it's very high in protein. Red meat is supposed to be a no no but in this case you are only eating a small amount of beef for a big amount of protein. check out the protein in the packs of sliced beef for sandwiches that they sell in the supermarkets. Also adding some powdered whey to milk and a dob of ice cream and making a milkshake is an excellent form of high protein. I will go now before I put you to sleep with all my foody tips (think I've become obsessed! lol). Keep on smiling. Alf
Alf fruity, I had 40 sips for nite time to stave off body eating muscle nite time effects. You are sooo much more diet aware than me. My real effort was to buy diabetic ice cream (yep the old one - not ice cream that has diabetes but... you know. A bit like seeing the dabetic nurse ... she needed insulin 4 times a day...sad old Miles) oh yes back to the ice cream. The dietician at the hospital said NOT to buy diabetic ice cream, there were too many things bad in it, and that I should eat normally but sensibly. Well the latter is difficult for me, the normally bit I can cope with!
Marathon here I come!
Your old mucker, Miles
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in reply to
I found some lighter ice cream Madagascan vanilla at M&S. I had this last night with 10 cal jelly and frozen fruit great tip from ATG,. I get the munchies around 11.00 pm so it was out of bed for a and a handful of brazil nuts, and a large kit kat. LOL just undoing all the good I did that day... I should be stronger I know because I am not really hungry. Just want chocolate or something sweet. So I guess I am like you Miles I eat normally its the sensibly bit that is a bit hard - Have a great day
in reply to
I love it Jaycee 😁. I have urge for choccie as well....
Yes Debs, Marathon or anything chocolatey😁. My wife puts them in a drawer thinking they’re safe, but when she’s gone to bed, I mean, who wouldn’t raid the pantry. Only a little you understand 😁
I'm so glad to hear your wonderful news. You must be ecstatic 😄 I was completely new to all things liver related until my cirrhosis diagnosis in june. Like you I feel like this forum is a lifeline, there's always someone around to give advice, cheer you up and even have a laugh with 😂. Don't worry if you don't feel like you can advise someone you can always just send them a virtual hug. Take care. Deb
Thank you, Deb, for your post I just love hearing from you all. I love this site. When I first posted, I was truly in the pits and as God is my judge I am not like that I found a lifeline that made me feel I was not alone. I went from thinking I am going to die with the big C - To I can do this...
I hope one day to help someone else, as so many helped me. So, I said to someone yesterday that all I am qualified to do is send a virtual hug. My diagnosis was in 9 years ago for cirrhosis, I have never really shown any symptoms until around and 7 months ago when diagnosed with Liver Cancer.
Hi there Huw yes totally relieved, I hope, that this will give me the time and that I am lucky enough to get a transplant as well. Just waiting now for a date for the next TACE.
But still on my little cloud of happiness.
Thank you so much for your reply.
Nice post Jaycee. I feel a lot like you do (from what you say!) and love this forum. Keeps me going all through most nights 😁. I should defintely “try harder” and would get sent for detention from what I eat some nights! But hey ho, got to balance some treats versus no vimto haven’t you (eh laura? 🤙 or 👎🏻 - not you Jaycee I’m sure you would give me a 👍.........😁)
Keep up good work Jaycee Pearl
Miles
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in reply to
Hi Miles, thank you, yes, I know what you mean by balance, but I guess like most people on this site, I never ever did quite master balance in my life.
It was always all or nothing... total destruction or total recovery.
So, the teachers were right, all those years ago.
I should have mastered the could try harder bit sooner.
My consultant said he was not too worried about my weight gain, because of what it would mean if I was losing weight. But you know us ladies, I have gone up a whole dress size from a 12 to a 14 which is not nice for a lady... But my vanity for how I look comes low down my pecking order of worry. LOL.
Have a great day each and everyone, stay healthy and happy. Thank you Miles for your reply.
Yes, I am fine thank you. My husband has his scan tomorrow, so hoping his results won't show too much deterioration and they can sort his ascites out. Have a lovely weekend and take care.
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