Just to say. : Thanks again to you all... - British Liver Trust

British Liver Trust

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Just to say.

jojokarak profile image
16 Replies

Thanks again to you all. And I just wanted to reassure others if it does happen to anyone else (rejection), the doctors are totally on the ball. I am not going to lie for a few days I was shit scared I think it was more the fact I have felt so good last few months it shook me to the core, I now realise I completely dismissed some of the warning signs such as itching, dark urine, light stools, tiredness and loss of appetite and that all happened in the space of two weeks, I feel like I missed the dots so thank God for the blood tests and how closely the consultants keep an eye on us. I am all good again mentally and happy with the progress my tablets have all been increased dramatically but over time they will taper them to find the correct level for me as of course we are all different. So to anyone worried it may happen to them, have faith I found out 99% of the time they can resolve with iv steroids and increase in medication, just be aware of signs and don't feel daft or mithersome asking or speaking to doctors about anything. Hope your all as well as can be and again thank you again for all your support it really helped me get through this bump in the road xxx

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jojokarak
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16 Replies
Identity75 profile image
Identity75

Well said. We all need to pay attention to what our bodies are telling us. I'm the worst for it. I listen but then justify it to myself and don't do anything. Except right now my body is telling me to cook bacon 🥓 and put it inbetween some bread 🍞

Well if that's what my bodies telling me.

jojokarak profile image
jojokarak in reply toIdentity75

Lol that plan sounds like a corker I just wish my throat didn't feel like I have swallowed broken glass as I would of been having myself.

How are you doing x

Identity75 profile image
Identity75 in reply tojojokarak

I could make your one and then put it through a blender if you wanted?

I'm all good. Had a dream last night I got my call. Woke up thinking I needed to pack. Lol

jojokarak profile image
jojokarak in reply toIdentity75

I think I will wait lol

Oh I remember having a few of them dreams, got the blood pumping. I hope you are packed x

Identity75 profile image
Identity75 in reply tojojokarak

No still not packed. Lol

It'll be a made rush around pack. They are more fun. 😬

jojokarak profile image
jojokarak in reply toIdentity75

Hahaha you loon you will probably just make sure you got bloody haribo x

Identity75 profile image
Identity75 in reply tojojokarak

Oh don't worry about that. I'll be getting the ambulance to pull up at the shops on blues if need be. Lol

sheri44 profile image
sheri44 in reply toIdentity75

i packed and I packed a million times n when i got the call of course i wasn't packed 😄

sheri44 profile image
sheri44

great post Jo. Glad everything is going great for you. I can breathe again now lol xxx

raqs67 profile image
raqs67

Out of interest guys, what did you pack? I'd need a skip to take luggage for 10 days 😂

jojokarak profile image
jojokarak in reply toraqs67

Pj's, wash bag, towels, cream for dry skin, vaseline for lips as air so dry. A book for when you come round from anaesthetic after a few days and I didn't take much else as if I needed friends or family brought it in x

chugalong profile image
chugalong in reply tojojokarak

I had packed packed, got the call about 3am and was actually waiting ready when was picked up, but it didn't happen and was back by 8pm next evening, unpacked thinking to wash every thing next day, a couple of hrs later got call again, panic! Chucked all in a bag and next am after all tests why have you brought too many personal papers and things, mind you I do live by myself , I do laugh now at some of the things I chucked in.

Millie09 profile image
Millie09

Fantastic jo ! So pleased for you hun, even my sister was asking about you as I was telling her at my appointment last week 😊. Yes I totally agree .listen to your body . I am not on any transplant list but with all my growing symptoms I have a feeling that it won't be far off

Very informative post !! My problem I still have is eating way way too much 🍫🍬🍩. Don't seem to break that habit 😁.take care hun xxx

We are really pleased to hear that you are feeling better and have had great care in hospital.

Warm wishes,

Team BLT

I am really please you are feeling better, you experience is really helpful as well for others about to head on the road

Hi

I'm so so pleased you are feeling much better. I'm glad you had good treatment in hospital. Take care. Lots of love Lynne xxxx

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