I just wanted to say that, despite the "hiccup" we have witnessed over the last few days, I still believe, that we can offer support and advice, not only to each other, but to new members who are in real need of our forum. I was saddened to read of a new member that they were leaving because of this. We are still a wonderful forum, and can rise above this with unity. We can't let bad apples spoil the barrel. I beg those members who have, or who are thinking of leaving us, to please think again.......we are stronger together.
God Bless you all,
David
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davianne
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Hi David
What a positive, uplifting post, thank you. I've had lots of loving support and advice since I joined this forum and made lots of friends too. Love and hugs to you all. Take care and stay safe everyone. Love and hugs to you all Lynne xxxx 😘
Thanks Lynne, it's about the same, but is now being superseded by osteoarthritis hip pain, which is not constant, but very sore when it's playing up. I've been telling people for years "don't get old", now I know why🤣🤣🤣
Hi David. I hope people take notice of what you just said. You're right, this is a wonderful Forum. I don't know what i would have done without some of the lovely people on here. We can't let a few bad Apples spoil the barrel ,like you said.
I've had a lot of help and good advice. I can't thank Trish, Lynne,Miles and a few others on here enough for how they have helped me through some difficult times.
David i must admit, i don't know much about the Liver. When I was in hospital for a suspected stroke. The Doctor heard me groan as i turned over in bed. That's how things started to happen with me. After several different types of scans.
They told me that I had an Enlarged Liver with Cysts both inside and out. Cysts on the Kidney, Cyst on the Pancreas, Blocked Bile Duct .
Gallstone and sludgy Gallbladder.
And a 16cm Haitus Hernia and an Umbilical Hernia.
Because of my Heart Problem the Surgery have been delayed. Because the Anaesthetist wanted another Heart Scan before she could agree to go ahead with the Anaesthetic.
She agreed with the results of the scan. But now with the Coronavirus it's been delayed again. But i do have some good news. Because they told me that they thought I had Pancreatic Cancer. but things are looking good for me now.
Also, my Liver have gone down a bit.
But i don't know much else because of the appointments etc being cancelled.
So with one thing and another, sometimes i have been so low.I just didn't want to be here. Sometimes I feel the same way now. But the people on here have really helped me.
They've picked me up when I was down . Thanks to everyone .❤
Crikey Glo, what a way to find out about so much, I bet you were petrified, poor thing. The good news about cancer, and your liver going down will give you a wee boost as well.
I found out about my decompensated cirrhosis nearly 4 years ago, after having regular blackouts and confusion, oedema, iching etc. I was told I had a short prognosis, but, I have now turned it around to compensated, but still have to live with the daily symptoms it gives.
David. At the moment I don't Care about the Cancer bit. I've got Chronic Fibromyalgia,Rheumatoid Arthritis, Osteoarthritis and Osteoporosis .I've got 2 Heart Valve's that aren't doing there job ,also got C.O.P.D Angina and Asthma. Having a problem breathing at the moment and in a lot of pain.
Have had this now for 9 years and I'm sick of it all.
My friend had Cancer and she told me that she wouldn't change places with me. She passed away 🙏2 years ago. At least with Cancer you either survive or you die. Both of my Parents passed away with Cancer.
My Mum had Pancreatic Cancer and my Dad had both Lung and Bladder Cancer.
It's a horrible, vicious disease for anyone to have.
I hope im not offending anyone .
But this just goes on and on , there's no let up with it .
I'm not afraid of dying, im more afraid of living. Because I know what tomorrow is going to bring. The same bloody thing as today. If Euthanasia & Assisted Suicide was made legal in this Country, id be one of the 1st in the queue.
I didn't mean to put you on a Downer David. This is one of my really bad days. But this is a really good Forum. With a lot of good people on here.
Oh you poor girl Glo, you have a lot to put up with.......makes my issues pale into insignificance. The only thing on your list I can say snap to is osteoarthritis, so I know what that's like. My biggest issue is the constant capsule pain,
I have lost many friends and family to cancer, some who did the chemo, but most who didn't, and just tried to enjoy what life they had left.
No need to worry about bringing me down, I have come to terms with my mortality.....for me it's all about quality of life, not life at any cost.
We all have bad days Glo, just try to keep hope for tomorrow, and think of your loved ones.
David that's what I keep telling the Doctors. It's not a case of quantity of life anymore. It's Quality of life. And I haven't got any quality of life anymore. The Doctors understand what i mean. I've got my Advance Notification letter put in place. Signed by my Cardiologist,GPS etc.
No CPR or anything like that,should i have a Cardiac Arrest or anything else like that. Just Pain Relief.
They've all agreed. I have to have my letter near me at all times. Just in case something happens when none of my Doctors are about.
I do think of my Loved ones. But I can see in their eyes and on their lovely faces,how much it hurts them to see me like this. I hate it.
5 years ago next month my Hubby brought me up a cup of tea in bed ,like he always do. But he couldn't wake me up, so he rang 999.
I ended up on Life Support in Critical Care for a while. Then in HDU and from there on to the ordinary ward. I was in hospital for 6 weeks. My Hubby used to come in every day to feed me because I couldn't even feed myself. I didn't recognise people. Oh it was terrible. From that hospital I went into another one for 10 days until I was well enough to go home.
I should have gone then really, because it was like my body had shut down. But for some reason I'm still here. I had a really good life until 10 years ago..Oh i had better stop this now. You look after yourself.
Oh, God bless you Glo, you have been through so much.
I'm not frightened of dying, just the manner in which I die.
My wife Annie, after she retired from the NHS as a Matron, volunteered to work for a Hospice at home Charity as a palliative care nurse, and has been there at the end with many patients and their families. She used to come home sometimes in tears.
Aww David, your Wife Annie must be a very caring Lady to work as a Palliative nurse for a Hospice at Home Charity .It's not a kind of job that you can leave behind you when you finish work.Its so emotional that you bring it home with you..
I used to work on the Recovery Ward in the Royal Gwent Hospital until they gave me early Retirement. I didn't want to finish there. I loved it. But they said that I was a Liability to myself, my Patient's and my colleagues. I had been in a horrific car accident 15 years before.
I was sat in the front of the car next to the driver. My Mum ,Dad and Sister were sat in the back of the car.
It was my Dads Birthday March 23rd , he was getting over a stroke.So we asked him if he'd like to go out for a couple of hours. He said yes. My Sister's Boyfriend was a Steward of the club we went to..My Hubby stayed at home to look after our 3
Little Boys. At 11pm I was going to ring for a Taxi, but my Sister's Boyfriend said that he'd drop me off home. 1st, then take my Mum Dad and Sister home. I lived the opposite side of Newport to my Parents. I sat next to my Sisters boyfriend to show him where I lived. But he was going a bit too fast for my liking,so i asked him to slow down. He said.
( GLO, I've been driving for a few years now and never had a bump ).
They were the last words he spoke.
He died on impact apparently.
I don't remember much about it.
I know the Firemen cut me out.
My Mum had to have her eyelids sewn back on. My Dad was sat behind me in the car. But he came over the back of my back rest and cushioned me. He had head and neck injuries from the broken windscreen. He actually saved my life. I was in the well of the car.
There was a car behind us and the driver of that car rang the Emergency services. Apparently there was a slightly raised manhole. We were going too fast and clipped the manhole causing the car to flip over and roll. Like i said, the driver was killed instantly. But I didn't know this until when I was in hospital. My Sister was pregnant,but she lost the Baby. We didn't know at the time, but as well as getting over a stroke.
My Dad also had Lung Cancer and Bladder Cancer and sadly passed away 9 months later DECEMBER 10th. 🙏.I had injuries to my spine.
It was initially because of this accident that I had to finish working
in the hospital 15 years later.
I didn't even know that they had an inquest. But they said that the driver was over the limit and speeding. It was the 1st and last time that we met him..
I Blamed myself for the accident,because I thought that if he hadn't of been giving me a lift ,we wouldn't of been going that way.
Even now , every now and again i think of that. But everyone have been trying to tell me that it wasn't my fault. He shouldn't have been drinking. We didn't know that he'd been drinking,we didn't see much of him because he was the Steward.
He was speeding as well. At the inquest apparently they said that it was an accident waiting to happen.
But anyway it was because of my Spine that I had to finish work in the Royal Gwent Hospital.
Gosh. That was a long one.
I think I've told Lynne about all this, im not sure.
Thank you David for being there for me .Regards to Annie as well .
Oh my Glo. I have read all of your posts above and it’s hard to know what to say except that we can all see that you have had the most torrid of times in the last few years. I really do hope something can be done for you to make you feel a little bit better even if you cannot be made to be actually completely better. Hope you know what I mean.....
Hi Miles, well ive started this message at 10.45 am,but i don't know what time ill be finishing it.
I've just been telling David about my Brother. So im a little bit down.
Gotta try and pick myself up. I don't think that the Doctors can do much for me.
I've even spoken to a Professor at Cardiff University Hospital of Wales. I thought that perhaps it could help through Genetics.
But he told me that I'm such a complex case, they couldn't help me.
He was very nice and told me that if I ever wanted to see him and talk to him personally, just ring his Secretary up and she will arrange it for me .He even sent me a letter.
Such a nice man.
I hope Giz-Goz stays with this Forum because like Chrissie said, it does help to give you the strength to carry on .But it's been a really long haul for me and I'm getting so tired.
Sometimes I wonder about that David. Right now I wish that my Guardian Angel would come down and pick me up and take me up to my Mum ,Dad and my Brother.
My Brother used to be in the Army. He was in the Royal Welsh Fusiliers.
He loved it..But Sadly he got killed when he was 24 years old. I've got his Green Beret, Army belt and the stripes that he had on his sleeve.
I've also got a silver cigarette case that he had in his pocket when he got killed. Its got a dent in it, but it means the World to me. He didn't smoke, but he bought it when he was in Jamaica. It has a map of Jamaica engraved on the front of it. So I expect he bought it just because he liked the look of it. He used to keep some small change in it i think.
Oh we all have our memories, some good, some not so good.
Thanks Glo, what a coincidence. I always wish my Mum and Da happy birthday on their day, and my Mum's was yesterday, and my Da's in November. I will be happy when I meet them again, as well as the rest of my family members, and pet's I have lost, which are many.
My Da's ashes were scattered on Crummock Water in the Lake District, which is where we come from, although living in South Bucks now. I have a picture of it on my profile page, and that's where I will end up when my time comes.
Lovely story about your brother, it's good to have memories like that.
I love good memories, but try to forget the bad ones that life has thrown at me.
And you never will. But I've got a job to do, too. Where I'm going, you can't follow. What I've got to do, you can't be any part of, I'm no good at being noble, but it doesn't take much to see that the problems of these little people don't amount to a hill of beans in this crazy world. Someday you'll understand that. Now, now... "Here's looking at you kid." 🤔
That was a lovely post still don’t know what’s been going on !That’s all I know without you lovely people on here I be lost. I know I get more support here than I have off anyone. And I mean this with every heartbeat! Thank you David. Love Anna xx
Good positive reaction to ‘hiccup’. I’m not aware of what the ‘hiccup’ is/ was? Haven’t been on here daily anymore generally weekly.
So so glad of BLT support group now I’m almost 2years post TP thank God and doing well.
During my illness , pre TP , I had great support from the group and made many good friends, in particular, Chelle RIP . No matter how she fought, felt or what she endured she always had a kind and supportive word for everyone here.
I’m from Belfast and we both ended up together in ICU at Kings - where Chelle continued to ask about me!!!!
Such a selfless, beautiful , young lady and mother...
Thankfully, there will always be more Chelle’s in the world than ‘hiccups’ 👏👏👏👏👏👏👏
And to Chelle - you are now up in those clouds with all the livers you saw one evening whilst driving home...
Thankyou ‘three smiles’ ? Significance? You always cheerful??
We have to be take care & its good to chat
I’m good but feeling ‘tethered’ due to lockdown . Now memories and feelings of my restricted life whilst ‘sick’ flooding back. However, remaining positive and working hard at ’temporalising’ these feelings.
Since TP I’ve been so socially and physically active, loving life and grateful that God and my Donor gave me the gift of renewed life and I am loving being into ‘extra time’
As you have realised by now, I talk a lot, love to talk...
Anyway how’s this lockdown affecting everyone in here.
I’m feeling quite melancholy this morning - and memories of being sick, Isolated, dependant on everyone to do everything for me ... just hitting a wee bump in the road and got first time in 2 years I recall why I have called myself VULNERABLE
Enough if that neg talk. Gota get you tube on and do my dance routine and force myself out for my walk
I missed whatever went on, but members of this forum have been such such an amazing source of knowledge and support for me and my other half who was diagnosed with cirrhosis 2.5 years ago. I would be sad to lose all of you.
Thanks kyia, we are still here the same as before, it was just a hiccup that is now in the past, thank God.
David
Thanks David. You're right. We're all part of the same team. Like others, I've learned the most from this forum. What to ask. What to expect. What worked for others, etc. Wishing you and all only the best. These are such tough times. This board should be a safe place and is much needed.
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Not sure I want to carry on
D Day has arrived (or should I say No D Day!)
I just lost my soulmate
This is what I just did thanks to you lot!
Consultant: “no offence but I don’t want to see you for at least a year”!
