Cholestatic jaundice with rocketing bilirubin!

[ronsoo]

Have just been discharged from the hospital with cholestatic jaundice. Feeling easily fatigued with yellowed eye and skin, otherwise I'm OK.

Bilirubin is still on the rise, tripled within weeks at 499!

Anyone with similar condition to share?

[freddie76]

Why have u been discharged

What is the reason for this

What treatment r u on

[ronsoo in reply to freddie76]

Hi Freddie, I have been discharged as the doc couldn't keep me beyond a month... moreover I reed to get back to work (or I may lose my job).

Well the doc cleared all my organs, kidneys, pancreas and the liver being undamaged but with signs of "scratches". PHEW!

The doc concluded that the rising bilirubin is due to the toxins (from steroids) that I had used in my work out regime. I had stopped all intake of supplements since.

It is now waiting for the bilirubin to hit the roof and subside.

I guess this will take some time.

There is no treatment except for the prescribed Ursodeoxycholic acid.

[Dulux]

I have a restriction of the bile ducts and have seen bilirubin go up rapidly, but I've only ever made 280 then it just started dropping with no intervention. I would image they have some sort of plan, have you any idea on the rest of your blood counts, I know my INR went fairly high at the same time. Have they said what is causing the blockage in the bile duct?

[ronsoo in reply to Dulux]

Hi Dulux, the scope procedure concluded that there is no gallstone in the gallbladder.

As for the bile ducts, it is concluded in the report as "minimal peridical neutropilic infiltration...".

There is no plan except for the prescribed medication "Ursodeoxycholic acid".

[Dulux in reply to ronsoo]

The Urso acts to thin the bile, should make a difference for you. I've been on that when mine bilirubin level started to climb. I hope it gets you back on track.

[Millie09]

sorry to hear that .I am.not familiar with that .I have cirrhosis now 9yrs but having tests done due to other problems with nerve endings .that's a very high reading .I don't think I have ever gone as high as 273 not unless I was naive to it all years ago which I probably was .have they given you a further appointment to go back ? and any dos3 and don'ts ? .they must have something sorted for you I can't see them discharging you without a medical plan in place . did they do any other tests at all

[ronsoo in reply to Millie09]

Hi Millie,

I have been discharged as the doc couldn't keep me beyond a month... moreover I reed to get back to work (or I may lose my job).

Well the doc cleared all my organs, kidneys, pancreas and the liver being undamaged but with signs of "scratches". PHEW!

The doc concluded that the rising bilirubin is due to the toxins (from steroids) that I had used in my work out regime. I had stopped all intake of supplements since.

It is now waiting for the bilirubin to hit the roof and subside.

I guess this will take some time.

There is no treatment except for the prescribed Ursodeoxycholic acid.

Ron

[Millie09 in reply to ronsoo]

hi Ron .sell I am glad to hear that all the organs are working fine ! Even though you are feeling rough I understand now as to the reason why . I'm sure that things will be sorted , you will just have to be patient but I am pleased overall for you. keep a good diet , low salt and sugars , plenty of fresh cooked foods if you can stomach it and don't over do things back at work! your health comes first . best wishes . Linda

[ronsoo in reply to Millie09]

Hi Linda,

Thank you for the support!

I could feel the warmth of a wonderful mom and a superb granny!

Stay strong! Stay positive!

Cheers, Ron

[Millie09 in reply to ronsoo]

your very welcome to Ron .lol .that's made me smile .thank you .keep your chin up .! linda 😊

[AJ120710]

Mine rocketed to 640 I was bright yellow for a long time but it is now 17 and fine so there is hope! But mine is due to cirrhosis and unfortunately I will still need a transplant.

[Cedderz in reply to AJ120710]

Hey AJ, I got recently discharged from hospital and my bilirubin level is still high at 547. It had rocketed to this level from initial diagnosis of 30 in just over a month. Mind sharing how quickly yours took to come back down?

Thanks

Cedderz

*Suffered DILI via suspected steroid-like substance*

[micaphoo]

Hi RonsooI also was diagnosed in the first instance with cholastasis due to being given too many antibiotics. My billiruben levels were the same as yours and lasted 9 weeks and jaundice with terrible itching which caused places all over my body. It gradually came down and the only treatment I have had are some granules I drank with water.

Nine months on my billiruben and ALT's are almost normal range but I have high ALP and waiting for a liver biopsy . I am in a high Covid area and hospital inundated so still waiting. The specialist is now thinking I have autoimmune hepatitis and that is why the biopsy is planned.

It has taken much longer to feel better than I expected or was told so just hang in there, look after your diet, I cut out all fat, and the levels will come down. I assume you have had Ct scans and MRI which I had ?

Kindest regards.