Good people: I wake almost every morning... - British Liver Trust

British Liver Trust

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Good people

Catfishjumpin profile image
55 Replies

I wake almost every morning here to a lovely supportive note from one or more in this group. There sure is a lot of love, understanding and helpful information from experiences here. Its nice to have an entire team of love behind me, beside me, even leading off and on. I am lucky to have found you. I admire you all for the good care you take of each other. What would I do without you and my little dog Roxy? For sure I would be lovely, alone, isolated, lacking in knowledge and with support from experience. It looks like I have a long hard road in front of me. Thank you for not tiring of me but hanging in with me. Aloha Catfishjumpin

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Catfishjumpin
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55 Replies

Awe there she is one of the most amazing ladies in this group,sure there are many but catfish you inspire so many of us..I am glad we can all be there for eachother . Loving the picture of you and roxie....cute dog by the way....Grow tired of you catfish? no one wil ever grow tired of you....Lyn.x

Catfishjumpin profile image
Catfishjumpin in reply to

Thank you Lynn, thats so kind and generous of you. I feel asleep last night thinking, I sure now have a lot of sisters pulling for me, yes brothers too. Off to CT scan this morning...

in reply toCatfishjumpin

Yvw.....awe ....all the best for the scan,, let us know how you get on...Love reading your posts, xxx

Because you are loved, admired, respected and will never walk that long road ahead alone, your friends will always be by your side 💞 As you say.....Aloha (been dying to say that!)

Catfishjumpin profile image
Catfishjumpin in reply to

Thats realy beautiful, thank you. I am thankful to take everyone with me as I go thru this. I think off and on during my days how perfectly lo vely you all are and how I am no longer alone. What a team we all make together. Lets all roar on together...

in reply toCatfishjumpin

Yes, what an amazing team we make together....Let the Force Be With Us 🙏🏻 We are never alone xx

Good luck today with your scan...Thinking of you x

Catfishjumpin profile image
Catfishjumpin in reply to

Interesting, I also say let the force be with us. Aloha dear

in reply toCatfishjumpin

👍🏻💞🙏🏻 xx

sheri44 profile image
sheri44

CatFish we are with you every step of the way. We could never tire of you your beautiful pics and posts. Roxy is beautiful ❤. We all have so much love and support to give and understanding. Hang in there as you always do. However long and tiring your road is, we got you 100%. Give Roxy a hug from me pls. Your looking good. Much love hugs and prayers said and sent to you everyday. ❤ 🙏🏻🐾🐾 xx

Catfishjumpin profile image
Catfishjumpin in reply tosheri44

😿😿😿👍👍👍

sheri44 profile image
sheri44 in reply toCatfishjumpin

grace111 profile image
grace111

aww what a cute picture. dont forget all the love and care you have given many people yourself. you have been an inspiration to me when you talk about your cycling and your spinning hoops. im sure that you have also bee an inspiration to many more than myself. is that a little corgi that you have? he/she is gorgeouse. they give us much love and cuddles when we are ill and have been through everything with us. i had two yorkies which died one at 13 and one at 17. i now have a cat i love my cat, im more a dog person to be honest, as they will come and give you a hug anytime you ask them. that place you live in looks such a beautiful place. thanks for posting this picture for us to see. i love when i see you smiling and happy. as i do worry about you like many others. we are just as lucky to have found you catfishjumpin, all my love and respect. grace 💞xoxoxo

Catfishjumpin profile image
Catfishjumpin in reply tograce111

I ❤️️🙏 You Grace. My dog is a Basenji/fox jack russell named Roxy. She came with the name, age 4 months, now she is 2 and you are so right, she loves to cuddle and when I tell her I am too sick to walk her or drive her to the park to run, she is patient and just goes outside near the house then sweetly comes in. I am a dog person but I do love cats too. I so hope I am helpful here, I try. I get nice feed back that I am helpful. Love and Aloha

grace111 profile image
grace111 in reply toCatfishjumpin

you are definately helpful, where do you think you get all the friends from? you certainly got me of my bum and doing exercises and i cant thank you enough for that. thats lovely what you said about your little dog that she is patient and sweet. all my love to you dear. god bless you. love grace xoxo 💞

Catfishjumpin profile image
Catfishjumpin in reply tograce111

💪💪💪❤️️

Hey Catfish, you are an inspiration to me. I never knew what a blog was until you told me about yours. I read it like a book, so sad this disease has came apon you and your still fighting. Take care loving the T Shirt........Maria x

Catfishjumpin profile image
Catfishjumpin in reply to

✌️️❤️️

Hey catfish...I've only been around a couple of months, but commend you for your bravery with everything you face. My experience of both end stage liver and now lung cancer is not my own but secondhand with my dad and now my mum. I don't know how you hold it together, I've been with my mum most of Wednesday putting on a brave face when the truth is I'm out of my mind. It's now 4.30am Thursday and I've just opened my birthday card from my mum and am in tears, wondering if it will be the last one I read from her. I know that probably doesn't sound positive of me but her treatment starts Friday and I'm so afraid. I did her hair today, again wondering how many more times will I do that having been told by oncology she will lose it. Sorry...can't sleep my mind feels in such turmoil 😢

Jacqui

jennajay profile image
jennajay in reply to

Hey jacui, my heart goes out to you at this difficult time.Please may i offer you a little strength and cyber hugs xx

in reply tojennajay

Thank you so much, so very kind of you xx

in reply to

Hi jacqui,

Sorry to hear about your mum, It cant be easy having that worry over you, Is it lung cancer your mum has? and she is having treatment for it? If this is the case never give up hope, a lady who i know had lung cancer had treatment and she is now in remission, she has to have check up every so often but she is clear of cancer, i see her in the pub when ever i go in there and she is enjoying life, always laughing, so there is always hope when treatment is offered, not everyone whos diagnosed with cancer of any kind is a death sentence, this lady is in her 70s and was diagnosed with it in her 50s, Just wanted to share some hope with you....sending hugs.

Lyn.

in reply to

Hi Lyn

Thank you for your lovely message and words of encouragement, I know you're going through your own difficult times. Yes, she was diagnosed out of the blue 3 weeks ago with Small Cell Lung Cancer which has spread to her lymph nodes. We were told that it is much more aggressive than Non Small Cell, is inoperable due to its nature and can spread very quickly to the brain and bones. Oncology were very blunt, which I suppose they have to be, with the prognosis...without treatment she has weeks, with treatment it can only extend time. So she very bravely opted for chemo which starts tomorrow. She's obviously anxious and afraid because it's the Unknown...my anxiety and pain comes from seeing her worked up, I want to hug her and make it go away, but I'm also so emotional and scared because I don't want to see her suffer as a result of the dreadful effects of such aggressive chemo. Tomorrow makes it all so real as treatment begins and I'm trying so hard to stay positive but on the inside I feel in turmoil. I hope that she is one of the lucky ones and that she responds well to the chemo and gets to spend many more happy times with us.

Love & hugs, Jacqui

in reply to

Yes im going through difficult times but helping and being there for others helps me cope with what im going through.

Your mum sounds a brave and amazing lady...I hope that she responds well to treatment and doesnt have any side affects from it,Life can be so unfair , I can understand the staying strong on the outside but in turmoil on the inside have been through that on many occatins with hubby, but you know whats helped me to deal with that is , i think well all the worry in the world isnt going to change the fact its happening ,all the upset in the world isnt going to change the fact he is so ill and i could loose him, why should i let it steal my happiness and sanity as well, so i think of the good times we have had together,we talk about them...

Keep us updated on your mum.plaese and know that we are all here to support you.:)

Lyn..

in reply to

Thank you so much for that Lyn...such very wise words. Sometimes you get so lost in your feelings, and also the shock, that it takes someone else to point out the obvious to you. You're so right, all the worrying in the world isn't going to change what is happening, just as my tears won't either. Thank you, looking at it that way I realise I am powerless over the outcome and no amount of worry is going to change that. So, I must try to focus on getting through each day as it comes.

Yes, she is an amazing lady and has always been very strong, this is the first time I've seen something really knock her sideways which I think is why it has upset me more. As you say, life can be so cruel, we just have to do our best even during the most trying times.

I will keep you updated on her progress and it is always a comfort knowing that there are lovely people here with so much support.

Jacqui x

in reply to

awe jacqui.

Sending you loads of hugs..

You know why we have tear ducts? Because we shed thousands of tears through our life, and if we didnt cry then we wouldnt be human..So crying is ok and helps us..:).

It is a shock not to just you but your mum as well like you said but your mum knows you are there for her through all this, you should like you both have a strong bond and no sickness is going to break that bond...

take care

Lyn..

in reply to

Thank you from the bottom of my heart Lyn ❤️

You've really helped me today xx

Catfishjumpin profile image
Catfishjumpin in reply to

I am so happy to be able to. Aloha

in reply to

Well round one of chemo over with today. My mum has really surprised me today, she showed such strength and courage and for the first time since being diagnosed she actually listened to everything..,up until today she has struggled to accept her diagnosis and has been in total denial.

There's a lot to do at home between now and her second round next Friday...I have to give her an injection every day in her tummy, there's so many tablets and her temperature has to be checked regularly.

The good news is she she seems to have found some acceptance of it all today and so is now speaking about it, the last couple of weeks have been difficult, a real strain, avoiding the subject when with her as she really was reluctant to even think about it and so not wanting to upset her you keep quiet.

I can now only pray that she responds well and hope with all of my heart that she doesn't encounter too many of the horrible side effects.

She has all you lovely people willing her on and praying for her..even though she doesn't know it. But I do, and for that I am truly grateful to you.

Big hugs, Jacqui x

Catfishjumpin profile image
Catfishjumpin in reply to

Hopeful. She sounds determined. Sending love.

in reply to

Ty Jacqui,

Thankyou for letting us know how it all went, please keep us updated.

Accepting it is a step to helping your mum and yourself, At least you know that anything thats bothering her about any of it,or her fears she can talk to you about. She sounds strong lady and that will help i imagine with her fighting it.

With your mums strength, you and each and everyone of us using our strength willing your mum well in all this makes a strong bond.

We are always here for you in the times when it gets too much...

Take care.Make sure you take care of yourself also.

Lyn..

in reply to

Thank you Lyn

It's been a long day, feeling drained now but also relieved with how well she coped.

I know this is only the beginning and so she isn't showing any signs of the effects of the treatment...thatsgoing to be the next hurdle to get over which I'm not looking forward to. But as you say, I can come on here and know there will be support which I am so grateful for.

I hope things are as well as can be expected with you and hubby.

Thinking of you always.

Jacqui x

Catfishjumpin profile image
Catfishjumpin in reply to

I will be thinking of her. I sure hope she has lots more time in life. I cannot imagine how emotional of a time this is for both of you. Best wishes. Aloha

in reply toCatfishjumpin

Hey Catfish always looking on the bright side of life and takes time to listen to others especially what your going through God Bless

Maria x

in reply toCatfishjumpin

Thank you for your kind words when you have so much going on yourself...you are a truly amazing lady. As I'm sure you will understand, the last few weeks have been emotionally draining, fear and worry of the Unknown saps your energy, last night I just felt done in, I've done nothing but think till I could think no more. Couldn't find the words to reply to you because my head was just banging. You're constantly in my thoughts and prayers lovely lady xxx

Catfishjumpin profile image
Catfishjumpin in reply to

Thank you

Catfishjumpin profile image
Catfishjumpin in reply to

Thank you, my children must feel like you, 38&40 years old. I am so sorry about your mom. I hope she surprises herself and all. I have so little energy now I feel like I must do whatever it takes to at least try to have another reprieve in life and enjoy myself again. Keep us posted, we are pulling for her. I hope she responds to treatment very well. Aloha

in reply toCatfishjumpin

Thank you for your thoughtful message...I can only imagine it must be very difficult to read the effect a beloved mums condition has on her children. I say that because as children we don't express our deepest fears and concerns to the person we are worried about, our mum, for many reasons...we feel they have enough to cope with already without us adding to their dilemma, instinct tells us we must stay strong in order to support the person we treasure so much for if we were to fall apart we would not be any use at all. As children we also want to protect our mum in the same way as she has always protected us and so we try our best to show strength and courage to let her know we are there to support her whatever.

I am 54 with 3 children aged 23, 21 and 13, they are my world, they are beautiful, kind, caring and compassionate human beings. I recall reading a post you once wrote about how proud you were of your children and that they were beautiful human beings. How blessed are we to have known such love, I know your children will love and support you whatever you decide, just as I have with my mum and as I know mine would were it me.

Round one of chemo over with today. She had two drugs administered separately via IV. I can only say that I am immensely proud of the courage and strength my mum has shown today, now I'm in tears, but she has shown such willingness to fight and I love her more than ever.

For the next week I have to give her an injection into her tummy for her bone marrow, white blood cells and immune system. There are so many tablets to take, in fact so much to take in, but it's all recorded in a book. She returns next Friday for round 2.

She is resting now but she has done really well, she actually listened to everything today for the first time. Up until today she has really been in denial, so extra proud of her.

All the prayers and positive thoughts being sent from all you lovely people make this journey more bearable.

My heartfelt thanks xx

Catfishjumpin profile image
Catfishjumpin in reply to

Thank you

jennajay profile image
jennajay

Catfish, keep the faith as you always do.Your inner stength amazes me.Thinking of you.TC Jenny xx

Another lovely message and photograph much love and respect ✨✨✨✨✨✨✨✨

dckimberly profile image
dckimberly

Hello sweet girl..the road may be long and hard, but I'm in it for the long haul with you!

Well keep on going, together, along with others out there.

You are loved by me! And many others!

Not to mention how inspiring you are also, to so many of us!

Hugs, love & kisses!

Cheering you and Roxy on!

xoxo

Kimberly

Catfishjumpin profile image
Catfishjumpin in reply todckimberly

I think of you often. I so want life to place you in a soft place filled with light and happiness so you can have a reprieve and just bask in life going easier on you. Lots of Aloha

Millie09 profile image
Millie09

Hi catfishjumpin , I have only been on this site a few weeks now and I can totally agree with you ! I feel so not alone anymore in the knowledge that we have an amazing support group on here , having read all your previous posts on here you are truly one inspiring lady , you look great in this photo With little roxy ! The same name as my late fathers dog , she was an Alsatian . I live alone with two cats , was three but she had to be put down two months ago. I miss her like crazy and so do get sibiings , so I decided on impulse yesterday to get another kitten , I paid a deposit to secure her , she will be ready next week as she has just been spayed . You are a strong woman and I wish you all the very best . Keep smiling that beautiful smile .. My best wishes .linda 😊🌹xx

Catfishjumpin profile image
Catfishjumpin in reply toMillie09

How exciting. I have been wanting a cat lately. I feel really loved and petted here like a beloved pet must. Its great to be here with my own people. Aloha

Millie09 profile image
Millie09 in reply toCatfishjumpin

It sure is , helps me to cope each day as I have something that is dependant on me and they give me so much love and laughter , like a medicine to me . You are well and truly loved by us all on here too . Sending you healing (( hugs )) 💕.. Linda X

RodeoJoe profile image
RodeoJoe

Great Post! There is a lot of support and experience here, it really is a great resource.

I've got a black Labrador called Roxy!

Catfishjumpin profile image
Catfishjumpin in reply toRodeoJoe

Ah love Labs❤️ Yes sir good support here, thank you for yours...

Brummi profile image
Brummi

Always a pleasure to hear from you 😀

jennyjolly profile image
jennyjolly

That's a great photo

I was in Hawaii 1976

Wish I could have stayed

Catfishjumpin profile image
Catfishjumpin in reply tojennyjolly

Me too but you would not believe how much homes cost or food. I have a wee studio with 4 bikes in it. There is a path to walk thru. I lived one year here in 1988 then moved back when I became ill. Its a sweet place to live. Aloha

Katherine1962 profile image
Katherine1962

My niece who is only 18 is backpacking and currently in Hawaii having a lovely time. She said its the most beautiful place in the world and just sent me this lovely pic of her at the 'crouching lion' Catfishjumpin hike - you must love living there all the time 😀👍

Catfishjumpin profile image
Catfishjumpin in reply toKatherine1962

I cycle right along the ocean highway there. If she needs anything let me know. I am in Haleiwa near there on the north shore. Crouching lion is the east shore but it's very close. Aloha

Katherine1962 profile image
Katherine1962 in reply toCatfishjumpin

Ah thank you catfish-she is actually staying in a hostel in Haleiwa! Small world. It looks beautiful X I have given her your blog details so she can see your journey x

Catfishjumpin profile image
Catfishjumpin in reply toKatherine1962

How long is she staying? Is she looking for work? Aloha

Katherine1962 profile image
Katherine1962 in reply toCatfishjumpin

Aloha 😀I will

Send you a direct message x

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