Hello all, as some of you have read regarding my acute liver transplant, I'm still recovering.
I have a daughter who is 7 but she is disabled and a newly turned two year old. Before the transplant I was very stressed out with my daughter's needs as I had another little one to look after. Physically it was challenging and now after the transplant, I do not think I'm in a physical state to go back to that.
Another thing is lack of support. Where we live, we have a small Set of family and they gave up working to look after my children whilst I was in and out of hospital. I was hospitalised thrice and the longest stay was in QE.
If I had to be hospitalised again, I'd have no support for the children. So my family have told me to move near them and rent until we can buy a place as we own a house where we live. However my partner is not willing to do this and he thinks I'll be physically fit and well and if I was to be hospitalised due to infection or rejection, he'd take the kids to my family who live 200 miles away. But that would mean my daughter's school would be affected a lot. It isn't fair that my partner is actually being quite selfish about it. Everyone around us is saying the same thing.
Currently I have moved in with my parents temporarily as I need help with the children but it is hard work. It's not nice not having any space and burdening my family. However, if I had a small place of my own I'd at least give them breathing space.
So how do mothers cope with lack of support around them after a transplant?