Hi, my 41yo brother has currently been in hospital for nearly 6 weeks since he developed jaundice over Christmas. He had an emergency liver transplant in May 2016 after getting a blood clot in his liver, which I understand is extremely rare. His liver completely stopped working just like that, and he received a transplant 24 hours after being approved due to the severity of his condition. He has never suffered from liver problems previously.
He is suffering from severe jaundice and ascites, and they have tried to drain the bile duct without any success. He is very weak at the moment and is being fed through a tube. He can no longer get out of bed.
The doctors have been unable to find anything wrong with the transplanted liver after 6 weeks of tests. Structurally it appears fine, and there is no sign of damage. The results only show that bilirubin levels are extremely high in the liver.
They have said that they are going to assess him for re-transplantation, though we are naturally worried about this being denied due to the unknown cause of his condition.
Also, we don't know how long he can remain in his current condition without a transplant. From reading some posts on here it seems people can live with end stage liver disease for some time, though the doctors have shyed away from answering me when I've questioned them about how long he can realistically carry on without a transplant.
It's very hard to see him suffering and not knowing whether he will be able to survive this. My mum is taking it especially hard.
It would be good to hear from anyone who has had or faces the prospect of retransplantation, or anyone who is suffering from end stage liver disease so that I can understand what to expect with my brother.