Hello all. Hope you are well. I'm a 34 yr old female who fell ill with vomiting, loss of appetite and anxiety type symptoms in mid January. went to the doctors and they gave me antidepressants. They thoughf I had gastritis even though my LFT came high twice aged blood tests. She sent me for a scan but nothing was foumd.
In March I noticed I was going yellow so I went to the doctors eventually who found I was jaundiced. They sent me to local hospital where I stayed for 6 days. All the tests came negative for hepatitis. They discharged me but every other day I went to give bloods. A month later I had an appt with the same hepatologist who apologised to me as the blood tests showed LFT was very high.
I was hospitalized again and put on steroids. I'm not sure why he didn't call me in earlier as during thaf month I was still vomiting and losing weight and couldn't eat. This hepatologist messed up.
After a week they kept liaising with the liver department in Queen Elizabeth Birmingham. They had me transferred there immediately. The first night I collapsed and had a vagal nerve episode where I collapsed and nearly slipped into a coma as they keep saying. I was taken to ITU whee the specialists saw me and said I either need a transplant or they'll try some medicines again.
I had all the tests like biopsy etc. By the end of April my condition was so bad I was losing my memory, coming in and out of drowsiness, vomiting even more. They came to tell me that I will be put on the super urgent list and on May day I had my transplant. Just as well as my inr had reached over 8! I was bleeding from everywhere and just before the transplant I was so ill in ITU that I thought I was dying. A few hours later they told me liver had arrived and they were testing it.
Anyway may day bank holiday I had my transplant and I'm going through a very slow recovery.
I'm scared of infections and being around people. How easily do we catch infections and do we always get hospitalised or is that in the beginning months? Will I always have to be so careful or does our immune system improve? I'm scared prograf will give me kidney issues of something?
Also after 1.5 months is it still normal to have pain on the operation site? And how long does it take to heal internally?
Thank you all
P.s. I have two small children 7 and 23 months.