If everything had gone to plan, I would be in an ITU bed in London following an all day surgical resection and removal of 65% of my malignant liver. The fact that I am able to post from my own bed at home is not what I wanted. I had dared to raise my hopes & allow my family to start to believe in miracles ( surgeons have a way of sweeping you up in a wave of their confidence of success )
However, no miracles! Two hours into the operation it was decided that the metastasis were too extensive & had spread outside of the liver and the full resection was not started. So not only do I still have all of my tumours - they are now floating around everywhere and I am in great discomfort from the several holes that I now have in my abdomen, back for epidural, arm & neck for arterial & central lines. I am feeling completely defeated. I have no idea what to say to my family. We are just stunned. They kept me in overnight for observation & let me home at lunch time today. No plan, no idea what to do next!
So having a family BBQ tomorrow. Going to pop some steroids & pain relief & smile on through it. The boys know things are bad. My youngest just keeps crying & my eldest is steering well clear of me. Hubby really does not know what to do with himself. I am assuming someone will make a decision about what next on Monday.
If all your prayers & support could be bottled, we would have a cure. They helped me as I was facing the operation, thank you
X Cibble
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Cibble
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As you are such a strong person, you must focus on your family, I have been praying for you, I can't even comprehend what you must be going through... Your BBQ plan tells me the fight is not and never will be over...
Cibble you need as much support as you can get. You mention London, is it King's College Denmark Hill? If there is a way PM me and I will be there for you. I am sure everyone who reads your post will feel the same. Cyber hugs. xx
Hi Kibble cannot imagine what you are going through, and your family my heart and prayers go out to you all, but again you are very strong person, I hope they come up with something on Monday, if its 29 the I am there, if its kings college, I have my six monthly scans there, heptologist is proffesser John O'Grady, I am there from 9am just want you to know that I am there if time is any good to you. Annette
Thank you hut I am not in London now. Take care. I hope you can get your problems sorted with your team on Monday.
X Cibble
😓😓😓 all my love and hugs are being sent your way xxxxx you have been so strong and positive - you will be again xxxxx enjoy your bbq with the family xxxx much loves 😘😘😘😘😘😘😘
I couldn't believe I had read what I had read! You must have been devastated to wake up thinking it had been done and then find it wasn't. As every one else has said you are just so strong and so that is your strength.
I read somewhere on the internet about a new drug NIVULAB being tested in America and hopeful for HCCs
I dont know whether it's on trial here yet or not but worth asking . (I'm going to ask about it for my husband who has four hccs which cant be operated on)
God bless you Cibble..stay strong for yourself and your family...just keep on fighting with the hope of something that can help you get through this..my thoughts and prayers are with you at this time. Xx
Dear Cibble
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