I know this isn't a forum for specialist advice but I'm at my wits end and wondered if anyone has had a similar experience or if someone could put my mind at rest.
I dont have a diagnosis of liver disease but have been very unwell for six months. My symptoms are: upper right abdominal dull pain and discomfort, almost like pressure. This is referred up into my right chest, shoulder and inner elbow of right arm. Feels like my stomach & liver is coming up into my chest and it hurts to take a deep breath. I also have awful flu symptoms that come and go with aching all over, weakness, dizzy, nausea, fatigue & cloudy brain. Tight headaches & neck pain and since Dec I've lost a lot of weight despite eating lots. I also get excessive thirst that drives me nuts. I've also had spells of muscle spasms, hearing loss and feeling like I'm going unconscious.
GPs have been slow to help but all my blood tests are normal except slightly raised white cells. I've had the liver function test repeated about five times and always normal. GGT was done a couple of weeks ago and that is also normal. I finally got an endoscopy and ultrasound recently and they were normal apart from a hiatus hernia. My GPs keep assuring me that my liver is definitely fine because the LFTs and scans are normsl but because im getting more pain around my liver I googled the accuracy of LFTs and was stunned to read they can be normal even in advanced liver disease?! Is this true? I don't know what the standard LFTs look for but are there any other tests I should have to completely rule it out? And if so any tips on persuading my GP to do further testing? They just seem to leave me to get on with it when tests are normal even tho I'm getting worse. So I'm having to research myself.
Many thanks for listening xx