Hi everyone, this is my first post. Yesterday I was diagnosed with stage IV breast cancer after a biopsy confirmed mets to the Omentum. They tell me it is also in my bones but I now have to go for a bone scan.
My journey began in 2009 when I was diagnosed with ILC in the left breast. It had also infiltrated 13/27 lymph nodes. I had a mastectomy , 6 rounds of chemo and 25 rads and went on Tamoxifen. I've remained on Tamoxifen since. A year after my diagnosis I had a prophylactic removal of the other breast and a double reconstruction.
The OC has now put me on three forms of hormonal therapy . Two are tablets taken daily and one is a monthly injection. I can't remember the names and had to leave the scripts at the pharmacy yesterday for the drugs to be ordered. The OC said that surgery would not help as it would be impossible to get it all as much is microscopic. She wants to keep chemo in reserve for later. I can't get my head around that the cancer is in my body and we are not getting rid of what is there before starting treatment for (what seems to me) to be with drugs designed to stop further progression. What about what's there now?
They said that if 100 women had my diagnosis 50 of them would be alive in 5 years. I hope I'm in the right 50%.
I am just a crying mess at the moment and would really like to hear from anyone who has had a similar diagnosis ? What treatment did you get? How has the journey been? Thanks, cheers Judy