Likely secondary cancer but no information

[LillyFlower7]

hi

I thought I had a cold and lost my voice back in early December, saw the gp first appointment after Christmas as coughing not stopping.

Saw head and neck consultant in February and was told 10 days ago likely secondaries (5 years since initial breast cancers).

I have a 3cm lump in chest plus enlarged lymph nodes but he didn’t want to tell me any more as referring back to my oncologist for her to explain and would send referral letter to us both. I was totally not expecting this as an option.

10 days and still don’t know if definitely cancer, or where exactly it is. I don’t need a fait accompli just to know where it is would help.

Said would ring me on Thursday but didn’t. Timing of bank holiday means now likely to be 8th April before they get round to seeing me.

[smithtennyson]

I went through something similar earlier this year, fortunately the lump was not cancerous, and they have decided not to do anything. I was so relieved to get out of the hospital quickly, I never did ask what exactly what it was. So many people around here (Bucks) have had the horrible cough for months, including my 76 year old sister, I'll keep my fingers crossed for you it is also benign. Trouble is the bank holidays don't help x

[LillyFlower7 in reply to smithtennyson]

Thank you - yes the bank holidays have fallen badly for me meaning no Monday clinic so an extra week on hold. It is the waiting and not knowing that is the worst. I have my fingers crossed.

[smithtennyson in reply to LillyFlower7]

Yes, the waiting is the worst part, I think we will all agree with that. Let us know x

[Nicu18]

Sending prayers and hugs to you. Hoping you get your answers soon

[LillyFlower7 in reply to Nicu18]

Because I was transferred between hospitals back to oncology means have no support allocated until am seen officially at local hospital- and no appointment set. Just told person off sick and go to A&E if not well. Can’t do that for simple questions. So your kind thoughts are much appreciated.

[LillyFlower7]

So my wait goes on.

The consultant has booked me if for next Monday. I am glad I have an appointment but will be more than a month since told likely secondaries.

Hoping it means low risk rather than anything else.

[LillyFlower7]

I spoke with PALS on Friday to say felt had fallen through the cracks of communication.

Have been booked in for lung nodule biopsies via EBUS. So things are moving forward.😊🌸

[MaryEB in reply to LillyFlower7]

LillyFlower,I hope that you've now been properly found by the system, being supported and all goes well for you from now on.

Best wishes

Mary

[LillyFlower7 in reply to MaryEB]

Thanks Mary

Yes They saw me on Monday to say have chest, femur, cervical spine, pelvis and lymph node secondaries.

They did a broncoscopy to biopsy the chest but unfortunately I coughed too much so they couldn’t take the samples. However they have booked me in for radiotherapy to leg so hopefully will be less painful soon.

There still is not a support nurse but the gp is being very supportive which is good as am now struggling to get around.

[MaryEB]

Lilly Flower, That's a tough outcome to deal with. Sending you very best wishes for treatmemt helping to control the pain & you regaining some mobility.Kindest regards

Mary X

[krazylady1337]

Ring them??

[krazylady1337 in reply to krazylady1337]

If there's one thing, you have to be your own advocate - don't let them lose you in the system! 🩷