Although I am seeing an endocrinologist later this week, I find the appointments very quick and have difficulty understanding everything discussed in the short time allocated. I very much respect the wisdom and experience of the members on this forum, and wonder if I can ask you to shed some insight on my latest results and where I might be on my journey.
My results have been:
25.5.22 GP Blood test Early afternoon with no fasting - No diagnosis of any thyroid condition at this point.
TSH <0.01 (0.27-4.2)
FT4 25.7 (11.2-20.2)
31.5.22 Private blood test - Led to diagnosis of Graves and treatment of Propranolol 10mg x2 and carbimazole 20mg x 1
TSH <0.01 (0.27-4.2)
FT4 24.2 (12-22)
FT3 10.5 (3.1-6.8)
Anti TGO 201 (<25) IU/ml
Anti TG 345 (<40) IU/ml
Anti TSH Receptor 5 (<2.9)
7.7.22 Medichecks Blood test at 11am after breakfast. Following this test propranolol stopped and carbimazole reduced to 10mg x1
TSH 0.01 (0.27-4.2)
FT4 15.7 (12-22)
FT3 10.5 4.15(3.1-6.8)
18.8.22 Medichecks test at 8.15am after fasting
TSH 2.22 (0.27-4.2)
FT4 7.5 (12-22)
FT3 2.74 (3.1-6.8)
I am really puzzled by my latest results as my TSH is within range so shouldn't FT4 and FT3 be higher? I am wondering if the following are due to my thyroid levels:
Frequent migraines - I suffer from severe migraines but in recent weeks these have become more frequent and are now weekly. I take sumartriptan for these which, if taken early enough, 50% of the time will stop the migraine from developing.
Poor sleep - I wake in early hours and find it difficult to return to sleep.
Itchy legs
Twitching - muscles all over my body randomly twitch/spasm. This was definitely a problem when I was hyperthyroid but is still a problem
Difficulty focusing when trying to work.
With my current levelsof FT3 and FT4 I am rather surprised that I am not more sluggish and lacking in energy. I am not saying that I am bouncing around. Far from it but I am doing things just at a slower pace.... though I have also just returned from a holiday.
If you can help me to understand what is going on I would be very grateful.
Many thanks.
Written by
Meringue4
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If I were you I would post your results on the ThyroidUK page of Healthunlocked and someone there will explain all about thyroid results.
You might want to do one of the more advanced Medichecks thyroid tests that offers vitamin and mineral testing plus inflammation etc but someone on there will tell you more about your results.
Your first results are very similar to what mine were when I was diagnosed with Grave back in 2012 - I never had T3 tested on the NHS!
I have similar symptoms and also use the same medication for migraines - I was diagnosed with Fibromyalgia you might have that as well. Look up the symptoms. Also if you have had Covid some of your symptoms could mean you have long-covid?
I have hypothyroidism but unfortunately, I can't really answer your questions regarding your blood work results. The one thing I can say is that when I was diagnosed a few things had happened. First for a few years my weight was pretty low, I was barely staying above the weight to maintain a healthy BMI (body mass). Then, I started gaining weight. I had a very physically demanding job but my weight went up to 108 lbs (my height is 4'11"). My face seemed very puffy. I joined a gym to try to lose weight but nothing helped. When I had my blood work done, number of my thyroid related numbers (TSH, T3, T4) were outside the normal range but a few were near the higher end. My doctor explained that many doctors believe that the range is wide so ppl near the higher end actually have thyroid issues, and I was prescribed levothyroxine, which I have been taking for 5ish years now.
Regarding some of the other symptoms you are describing the twitching and insomnia and headaches, have you been tested for Celiac disease? There is a link between thyroid and Celiac issues. I have NCGS (non-Celiac gluten sensitivity) and I having given up gluten. When I stopped eating gluten, I stopped having head aches.
My thyroid meds didn't complete fix my muscle twitches and tingling, but I think that since I have started spacing my calcium intake over the course of the day--so making sure that I get a little calcium every couple of hours--and since I added a multivitamin, that I don't have nearly as much tingling as I used to.
Thank you. I am learning so much for this forum. I am on a short break from carbimazole and then will be back on a tiny dose of 5mg every other day. This hopefully, will bring ft4 and ft3 back in range.So many of you have suggested testing for celiac disease and a gluten free diet. I have been reluctant to go down this route as I love my carbs! However , if I am to reduce my migraine frequency it is something I must try. At present I am trialling the impact of magnesium supplement so one thing at a time.
Many thanks to all for your suggestions. It gives me hope that I can do something about these symptoms that seriously impact my quality of life.
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