Bladder still not working post op

[Joclynwithnoe]

Hi,

Am hoping for any advice, I am 7 weeks post operation, some extensive work was done including removing an endo nodule from the bladder and it has not recovered at all. I am now ISC’ing for 5 weeks and don’t appear to be progressing at all (I did at least pass some urine at last TWOC 5 weeks ago but nothing at all now). Docs say it’s nerve endings that need time to recover and can’t give me a timescale as everyone is different.

Would love to hear any similar problems, good and bad. Next stop is physio for me but I feel like I might need a bigger solution.

Thanks,

[aliciamq]

So sorry, Joclyn😑

[Karenpr]

I was catheterised at a hospital appointment as I wasn’t voiding my bladder completely. This has evidently caused my bladder to overstretch, totally different from your problem, but has damaged the nerves in the bladder that help me pee. I am now six weeks into self catheterising, spoke to my gynae urology surgeon yesterday and she says it is doubtful if my bladder will recover, but there is always hope!

[Joclynwithnoe in reply to Karenpr]

Hi Karenpr,

Thank you for your reply, Can I ask if you are able to pass anything at all? I am now 9 weeks ISCing and am starting to feel the need to wee, I have passed some very tiny amounts which is great, very slow but heading the right way at least. Please keep me updated with your progress.

[Karenpr in reply to Joclynwithnoe]

Occasionally first thing in morning when bladder full I pee but it is rare. Like u I occasionally get the feeling of wanting to pee but nothing happens and I don’t push it/strain.

[Joclynwithnoe in reply to Karenpr]

Hopefully it is a matter of time for both of us, I have been told it may take up to a year for me. Take the positive of being able to pass something, even if it’s rare. The nerves re grow at such a tiny amount each day so I have to take a long term view, after nothing for 8 weeks it’s definitely improved this week (although a very tiny step forward it’s still a step).

[Catness]

Hey 😊 just wondering how your bladder is doing now. I had an extensive lap 9 weeks ago that seems to have irritated my bladder, urethra and the nerves going through my groin as I’m getting a lot of pain and discomfort. I’m hoping in time they will heal :/ xxx

[Joclynwithnoe]

Hi, there has been some progress, although it’s very, very slow and some days go backwards ☹️ but compared to 3 weeks ago I do pass some urine naturally and I do have the sensation of needing to go or subconsciously heading to the toilet. However it’s not consistent from one day to the next. I don’t really have an action plan from the docs so have devised my own around drinking lots in the morning and less at night. I only self catheter once a day now (before bed) or if I feel sick. Physio doesn’t start for a few weeks but I have given myself a year to get back to how it was before. I am the only person the doc knows that this has happened to so they don’t really know what to do which is a bit rubbish for me. I also have bad lower back pain now too. I am positive and hopeful for your healing too, there isn’t much advice out there which is poor. Jx