Hello! Lily here, (f16) and I'm new to this community.
I haven't been officially diagnosed yet, however I did came back positive for the skin prick test and have had 3 throat ulcer flare-ups, 1 vulval and 2 mouth flareups in 5 months, so I'm guessing it's not me just being 'run-down'.
As most of you know, urinating is very difficult in a flare-up, and numbing it helps.
Most pharmacy creams are 5%, Lidocaine, however this one is 10%.
If you're looking for something strong, here's the stuff!
Sorry to hear the pain you are experiencing Lily. I used to rely on little tubes of EMLA cream (5%) in my late teens and for years before my Behçet’s was diagnosed. Only trouble is the risk of thinning the skin and risks of the Anaesthetic entering the blood stream. Once diagnosed the local steroid creams and later systemic treatment like Azathioprine massively reduced my ulcers and I suddenly realised I was not packing the Emla to go out / on holiday anymore!! If you are in the UK, do ask GP for a referral to a Behçet’s Centre of Excellence for some expert help with diagnosis and treatment. If not, use the factsheets in Behçet’s Uk website to guide your medical team. Good luck!
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