Hey guys
I’m in the UK .. I have BD and it’s been suggested I have a flu jab - I’m on methotrexate, blood thinners, blood pressure, prednisolone. .
Had BD diagnosis 12 months ago - had flu jab too - but I think it gave me flu like symptoms for a few weeks .. anyone else had same ??
Hi there. Flu jabs can make you feel a bit rough but it is the lesser of two evils as the proper flu can really take its toll on someone who is immunosuppressed. Saying that, flu jabs only provide between 40 and 60 percent cover anyway due to the ability of the flu to mutate.
My advice is get it!!!!
I am on methotrexate, infliximab and other things and have found the flu jab to be really helpful over the last ten years in helping me stay well through the winter.
Best of luck, Tim XXX
I agree with Tim,
I caught the flu earlier this year and had to spend a week in hospital due to BD complications. It was pretty nasty. As soon as I was out I had the flu jab for protecting from other strains.
Hope all goes well for you.
Natalie
Thanks Natalie 👍
Thanks Tim 👍
I am on immune suppressents and Colchicine Iv had the flu jab this year as I catch alsorts anyway got diagnosed with BD In April this year x
Thanks for your replies 👍
Hi
Prof Fortune at London centre of excellence said to have the flu jab if behcets is quiet but if in a flare wait until it has passed. Just thought i would pas this on.
best wishes
Sarah
Thanks Sarah 👍
Hi,
Not likely "Flu" symptoms. More likely an egg allergy or a reaction to the "carrier" the use to thin it down with.
Flu shots are a killed flu virus and can not cause flu.
It is grown in eggs. Many people are allergic to eggs and don't know it
It is called a hidden allergy, because eggs are in everything! Try going egg free. No baked goods, mayo, etc. For a week. Then add eggs back in.
Also, there is the "carrier" used to thin the egg the flu virus is grown in and to make many doses from one egg. It depends which pharmaceutical company made the flu vaccine.
Sometimes, I have a reaction, and sometimes I don't. My pharmacist explained all of this to me. Plus, there is the psychological part - you expect to get sick (because it used to be a live virus and we got a light case of flu) so we expect to get sick - and we do.
Check out the egg allergy. That might be the problem. Eggs are a common, undiagnosed allergy.
Cheers,
Cindy
Yes, do take a flu injection as I missed my Swine Flu jab in 2009 and suffered a bad case of Swine Flu which lead to my medical retirement because of the side effects on my BD.
Yes, I had Moderna Spikevax and Flu vaccines together almost 4 weeks ago. WHO reckon research shows taking the two together actually boosts immunity more than separately (check that, as I didn't actually read the research papers).
Here are my side effects and length of time:
Feeling extremely dizzy on standing
Lasted 7 days
Heart palpitations and flashes
Came on 20 mins after vaccine. Lasted 7 days.
Auditory hallucinations (crashing, banging, buzzing and popping)
Lasted10 days
A juddering, side to side vibration in my vision. Looked like the room was rapidly shaking. And I couldn't keep my eyes pointed at the thing I wanted to focus on. My eyes kept flicking away without my control. I'd get an intense stabbing pain if I moved my eyes to look sideways.
Lasted 10 to 14 days.
Flu-like symptoms with headache, sore mouth and throat, shivers, aching, raised temp.
Lasted 10 days
Diarrhoea and blood
Lasted 10 days every motion.
But now has tailed off to 2 or 3 times a week. I discovered after an endoscopy a few days ago I have an internal haemhoerroid/fissure and I was taking temperature lowering meds for flu, some of them can thin the blood and cause longer time to clot symptoms, so chances are they caused more bleeding in rectum where haemhorroid is
Passing out/falling asleep while sitting upright
Lasted 10 days
Feeling extremely fatigued
Lasted 21 days
Feeling depressed, anxious, paranoid
Lasted 14 days
Tinnitus and deafness
Lasted 28 days to date
I was shocked at how the last vaccine affected me because I'd had Pfizer vaccines regularly about 7 or 8 times with very mild flu-like symptoms but not as bad as this. I had covid in 2023 and this vaccine of Moderna Spikevax felt the same as full covid.
The side effects are wearing off and the only lingering thing is the tinnitus deafness.
My surgeon friend said in her patients, anecdotally, they complained of worsening of whatever they normally suffer from before the vaccine (rheumatoid arthritis, menieres disease, tinnitus etc, toothache etc) the symptoms are temporarily exacerbated by a vaccine. Makes sense because when you get a common cold and temperature is raised everything is very sensitive and hurts more than usual.
Anyway, I read that taking Megnesium and B12 can help with tinnitus so I started those. I also took D3 as my blood tests show I have very low vitamin D. I got a massive improvement after 2 weeks of vitamins and felt better than before and less tiredness and a massive lift in my mood to the point of euohoria. My husband says "I've noticed you're different, you're being nice to me all the time instead of nagging me for things I haven't done. Why are you being so nice to me? I was curious, so I looked into the combo of magnesium, Vits D3 and B12. And it did say if you were deficient previously when you take them the feeling of wellness gives contrast and feels like euphoria and well-being initially. But interestingly, I read somewhere that patients deficient in these 3 were more likely to repory side effects after Covid & Flu vaccines. Also, deficiency in any of these seem to cause more symptoms in people who had Covid infections.
Anyway, I did say while unwell after my vaccine, this it's so horrible, I'm never taking a vaccine again. However, I will try it again next year and have one more vaccine but I'm making sure I take these vitamins a few weeks before the vaccine. Probably, for someone who isn't deficient in those vitamins it makes no difference. But my blood tests over past 5 yrs did confirm I was low on Vit D and sometimes a little anaemic. So not having those I'm maybe a little more prone to glare ups of my normal daily symptoms.
I still have lingering hissing in my ears and using subtitles on TV. Hubbie is getting irritable when I have to ask him to repeat everything. I'm not getting loud bangs and pops in my ear though.
Behcets & Fibromyalgia
Flu Vacinations
Advice please!
