ALPHABET FOR Behçet's Patients

[lesleyg]

This isn't a question but I find it easier to look back on threads through questions.

Lesley

When I was at the doctors on Monday he gave me his mobile number and it reminded me of this poem (below). I told him there was joke that you knew you had BD when the doctor hands out his private number (he thought a second and grinned and said I was right).

This is from the American BD Association website. Hope I'm not breaking any rules by putting it up here but I am acknowleging the author and copyright. (Mary Burke Copyright 2004)

A for arthritis,

B for bad back,

C is for chest pains. Perhaps cardiac?

D is for dental decay and decline,

E is for eyesight ? can't read that top line.

F is for fissures and fluid retention

G is for gas (which I'd rather not mention)

H high blood pressure (I'd rather have low)

I for incisions with scars you can show.

J is for joints, that now fail to flex

L for libido--what happened to sex?

Wait! I forgot about K!

K is for my knees that crack when bent (Please forgive me, my

M emory ain't worth a cent)

N for neurosis, pinched nerves & stiff neck

O is for osteo- and all bones that crack

P for prescriptions, I have quite a few

Give me another pill; I'll be good as new!

Q is for queasiness. Fatal or flu?

R is for reflux--one meal turns into two

S is for sleepless nights, counting my fears

T for tinnitus ? I hear bells in my ears

U is for urinary: difficulties with flow

V is for vertigo, that's "dizzy", you know.

W is worry, now what's going 'round?

X is for X ray--and what might be found.

Y for another year I've left behind

Z is for zest that I still have my mind,

Have survived all the symptoms my body's deployed,

And kept twenty-six doctors gainfully employed!!!

[devonshiredumpling]

oh very good -printed

[lesleyg]

It is funny (and true) isn't it

Les

[devonshiredumpling]

yeah - a bit embarrassing when you recognise yourself in it!

[lesleyg]

I can recognise myself in this and the other one I put up ...'You know you have Behcets when ...'

Am having a humdinger of a flare at the moment and have a garage sale organised for Saturday.

One of the big reasons I'm having the sale is to 'Simplify my Life" because I'm finding it hard to get around.

Also because of cognitive impairment am making a lot of mistakes (can't find the keys etc) so think that if I get rid of a lot of the clutter I might be better off.

Cheers

Lesley

[devonshiredumpling]

Ah, cognitive impairment! Yesterday I made myself three cups of tea, having forgotten that I'd made the previous one. So I took number two cuppa into the lounge to put by 'my' sofa - oh look, already made one. Went to loo. Must make myself that cuppa I think, which I do and take it into the lounge to put by my sofa. Oh, look, already made two...

[lesleyg in reply to devonshiredumpling]

Had to laugh at the three cups of tea. I went down to the shops with nine things on the list and had repeated three items three times!

Les

[SuenMike]

Oh how appropriate! This is very good. I am having trouble with cognitive impairment too. I am not sure what I would do without my diary. Sadly have to note everything down now because I can never remember what we are supposed to be doing or where we are supposed to be at any one time. Mike has this irritating habit of saying things like 'Do you remember what we were doing this time last week?', and of course, I do not!

[lesleyg]

Hi Sue

Yes I'm starting to write everything down - trouble is I still forget to look at the list. What made me mad is I look in my bag (searching for keys) and take out essential items - like the prescriptions I was going down to get. Not a happy camper when I got down to teh chemist and opened my very empty bag. Got home and there they were in plain sight on the table!

Lesley

[frisky]

Omg! I thought it was just me who was having these episodes!!! When I teach I forget vital words such as leg! (not good when teaching pilates!!) thankfully I have a great class who all know me!! And get used to me saying the wrong bodyparts..... Best one was when I couldn't remember what a leg was called and ended up saying "things that dangle out from your bottom!!!!".

Thank god for humour!!!

Take care lesley.... X

[devonshiredumpling]

Things that dangle out from your bottom - hmm, best to draw a discreet veil

[lesleyg]

Hi Anna (and all)

I'm the same - trying to teach medical terminology and can't remember vital parts - haven't got to the dangling thing though.

Cheers

Lesley

[Cornish]

This is very good. It has brought a smile to my face during a not good week for me.

[lesleyg]

No worries - laughter is the best medicine. I have always had a very 'happy' personality. My mum said people would stop her on the street because of this 'smiling, laughing baby' - must say the personality has taken a bit of bruising lately.

Lesley

[devonshiredumpling]

Actually Les, I was wondering if there is a personality type or something that gets this disease. I'm a happy laughy type and I know a few of us on here are...

[Michja]

Oh Lesley this is a ripper. I know it's four years old but I've only read it for the first time today. I felt so sorry for us all but found myself roaring laughing at the response from frisky... Things that dangle out from your bottom. I love it. I just fully give up now and say "sorry I just can't remember what I was saying". Only to cover up that I couldn't remember a good friends name. I hate it but Thank You. x

[Michja]

Lesley, Jaida and I have both decided it should be:

U for Ulcers that are huge and painful from top to toe. Wink Wink

[lesleyg]

Hi Micha

I've just read your replies. At least you and Jaida know what the ulcers are like! We should write our own alphabet!

Lesley

[Zuzu798]

The ABC's are cute Lesley LOL and oh so true 👀

[lesleyg in reply to Zuzu798]

Yes they always make me smile! And as you said, oh so true!