Hi all, yesterday I paid a visit to my local hospital in Ayr and met a senior rheumatologist who spent some 50 minutes talking everything through...something I've grown tired of doing but this time I think it was worth it.
I'm to start a course of sulfasalazine and I'll be changing my Celebrex to a more recent COX-2 inhibitor.
I was offered hydrotherapy but said that I felt that it would not be much use... much like taking a car with a broken engine to a car wash... It may come out nice and clean but it still has a broken engine.....
Before I was I'll I was a long distance cyclist in addition to being in a physically active job and I've never been afraid of exercise even when pain or fatigue is a factor.
If anything I tend to do too much when I shouldn't.
As I've already tried physiotherapy - hitting my glass ceiling fairly rapidly - faced with a Physio who knew little about Behçet's - I'm not going through that again either.
The rheumatologist did mention the regional centres for a later date should the treatments I'm about to try - fail.
It's taken 16 years to get this far....
Whilst there, I also spoke in defence of the "invisible" Behçet's patients - those in the majority who do not necessarily display easily examinable visible signs.
A paper I read some time ago stated that again in men, recurrent epididymitis was an indicator over severity regardless of other absent signs.
The doctor knew what I was getting at.
Have to say that I now have an excellent doctor for the first time in several years.
Just wanted to share this with you all here.