South Wales Behcet's Support Group

[lilaraquel]

The Support Group for patients/carers in the S.Wales area is taking place on Wed 25th September from 6.30pm. This is being held at my house in Caerphilly. Please email me on [e-mail] further information/address details. Many Thanks, Rachael. Xx

[jkdee]

Hi Rachael

Have we had many replies. Sorry I have not rung you yet... bad flare.. Was due to go into hospital for my knee op on the 20th but this has yet again been cancelled to the 27th, so I will be there. Will ring to make arrangements soon. How you all doing now especially baby...?

[lilaraquel]

Haven't heard from many people on this site. There were a few interested originally - Col was one of them but haven't heard from her yet. A few on Facebook are coming, might be 7 or 8 people hopefully. Good start! A few people are away so want to attend the next one. Going to be a busy day - got baby class, my infusion and the support group! Starting to feel a bit rubbish again myself, to be expected I think until everything settles down and I've had a few more infusions. Having a chill day today! Hope you feel better soon. Glad you can make it! xx

[jkdee in reply to lilaraquel]

Just like me having a chilling day today. Don't want to catch anything before my operation!!! I have just sent a message to Col to let her know of the meeting. Good that there are a few coming that s a good number to start and also not too many to fit in your house.

[lilaraquel in reply to jkdee]

I managed to find the other two interested, Col and Butterfly, so have messaged them as well!

[lilaraquel]

Exactly! Rep from the society will be there, too, to help us organise the meeting. Have a lovely chilled day! xx

[saffy_123]

Hello, I live about 20 mins away and would be interested in attending. Will forward you my e-mail address x

[lilaraquel in reply to saffy_123]

Lovely! Have you already emailed me?! If not, look forward to hearing from you soon. xx

[saffy_123 in reply to lilaraquel]

Hello, yes I have thanks for the reply. Amanda x

[Hidden]

Hi

Sorry I will not be able to attend. I hope you all have an informative and fun evening. Please keep us all updated how the event goes.

Hopefully there might be another event that I could attend in the future.

ALL THE BEST

butterfly xx

[lilaraquel in reply to Hidden]

Not a problem, will update you on what happens and when the next meeting is. Hope you're managing to keep fairly well. x