Hi all, is there anyone with gluten ataxia?Please can you say if you are seeing Professor Hadjivassiliou at Sheffield.
And receiving treatment and medication for autoimmunity.
I am interested to know just how many receive treatment other than going "gluten free".
I have already seen the Professor who told me that only those that don't respond to a GF diet receive treatment. Need to weigh up travelling to Sheffield and only to be told 'carry on with the GFdiet'. The blood tests were negative for gluten antibodies as I had been off gluten for nearly 2 years. So self diagnosed. Travelling to Sheffield means at least one overnight stay.
This is a really big deal for me as having an MRI too, which again if told 'you have cerebellar ataxia' is it worth it? Which I have already been told.