What’s dose ataxia feel like ?

[GlutenLadYorkshire]

I’m asking what dose ataxia feel like as I have suspected gluten ataxia I can do most things normally except I struggle with tandem walking, I have a normal gait, I can stand close my eyes without swaying all my other blood test lumber puncher were remarkable also were my mri and ct scans. I’m a bit worried of any diagnosis as it might effect the rest of my working life as I was a long distance lorry’ driver if I can’t get my hgv I can’t work and then I’ll have to sell my home, depression and anxiety has kick in, I also have celiac disease which isn’t a issue unless it’s caused gluten ataxia.

[BlanketTime1]

it varies. for me, ataxia is: an internal wobbliness (if that makes sense, not a tremor, but an instability), torso instability, the assumed ataxic gait (wide apart feet, more lurching the closer my feet are together), and yes, I fall over if I shut my eyes with my feet together. have you had any follow up testing to determine which type of ataxia you may have?

[GlutenLadYorkshire in reply to BlanketTime1]

Thanks for your feedback I don’t suffer as much as others my only problem is the heel to toe walk is unstable a bit, they suspect ataxia but still not diagnosed I had mri’s that are remarkable and blood test are all fine and a lumber puncher that was ok too, I don’t have any internal wobbliness or other gait issues I did have problems last year that improved I had an ataxia gait and slurred speech when I had an ear infection

[KiwiBob]

My Ataxia affects me when I am standing and using a computer.

Also I get very tied/fatigued.

Balance, walking, coordination when standing.

Other times visually processing, sound processing, brain fog and bad memory.

[GlutenLadYorkshire in reply to KiwiBob]

My only problem is heel to toe walking I don’t feel off balance think it more paranoia that I can’t do it right

[KiwiBob in reply to GlutenLadYorkshire]

It might just be the start of it. It can take years to get bad.

Best to get it checked out.

[GlutenLadYorkshire in reply to KiwiBob]

Cheers I’m off to an uk ataxia clinic to see some professor at Sheffield and we shall see what happens