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Sheffield and autoimmune treatment

This is a really big deal for me as having an MRI too, which again if told 'you have cerebellar ataxia' is it worth it? Which I have already been told. Thank you.
This is a really big deal for me as having an MRI too, which again if told 'you have cerebellar ataxia' is it worth it? Which I have already been told. Thank you.
penelope2 profile image
penelope2
in Ataxia UK
5 months ago

A shared story of SCA3

Impact stories like theirs can help researchers & drug developers understand the realities of living with Ataxia. You can read it here: https://c-path.org/impact_story/cpta-impact-through-optimization-of-clinical-trial-design/
Impact stories like theirs can help researchers & drug developers understand the realities of living with Ataxia. You can read it here: https://c-path.org/impact_story/cpta-impact-through-optimization-of-clinical-trial-design/
wobblybee profile image
wobblybee
in Ataxia UK
3 months ago

Help with a gluten free diet? Any gluten ataxia support groups?

After nearly 3 years of gluten free and dairy free diet, I would like to hear from others. Their personal stories and any support groups. There is so much information and knowledge to share with each other. Thank you.
After nearly 3 years of gluten free and dairy free diet, I would like to hear from others. Their personal stories and any support groups. There is so much information and knowledge to share with each other. Thank you.
penelope2 profile image
penelope2
in Ataxia UK
21 hours ago
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Don't doctor's ever examine people anymore ?

I'm guessing I'm not the only one here, it just seems since Covid,any doctor you ever get to see (even my neurologist who is an Ataxia expert and very thorough) only want to sit down and ask questions,while filling in some form. 
I'm guessing I'm not the only one here, it just seems since Covid,any doctor you ever get to see (even my neurologist who is an Ataxia expert and very thorough) only want to sit down and ask questions,while filling in some form. 
discodave66 profile image
discodave66
in Ataxia UK
9 months ago

SCA27b

The gene responsible for a newly classified type of Ataxia, SCA27b, was recently discovered. A family that is affected by this type of Ataxia will share their personal experience searching for a diagnosis and their research participation next week at our Annual Ataxia Conference.
The gene responsible for a newly classified type of Ataxia, SCA27b, was recently discovered. A family that is affected by this type of Ataxia will share their personal experience searching for a diagnosis and their research participation next week at our Annual Ataxia Conference.
wobblybee profile image
wobblybee
in Ataxia UK
2 months ago

TG6 gluten Ataxia

Hello friends does anyone know about the antibodies TG6 for gluten Ataxia I have been told I have these but I was diagnosed with idiopathic cerebella ataxia 2 years ago I have received results from Sheffield ataxia centre but I have a tumor in the cerebellum into brain stem not sure what this means any
Hello friends does anyone know about the antibodies TG6 for gluten Ataxia I have been told I have these but I was diagnosed with idiopathic cerebella ataxia 2 years ago I have received results from Sheffield ataxia centre but I have a tumor in the cerebellum into brain stem not sure what this means any
Guardsman68 profile image
Guardsman68
in Ataxia UK
1 month ago

Homéopathie

Top Natural Homeopathic Remedies for Ataxia Alumina: Homeopathic medicine for Ataxia with staggering gait and heaviness or numbness in legs Alumina is the top natural Homeopathic medicine for Ataxia. The main symptom that calls for its use is a staggering gait with heaviness or numbness of limbs.
Top Natural Homeopathic Remedies for Ataxia Alumina: Homeopathic medicine for Ataxia with staggering gait and heaviness or numbness in legs Alumina is the top natural Homeopathic medicine for Ataxia. The main symptom that calls for its use is a staggering gait with heaviness or numbness of limbs.
7151 profile image
7151
in Ataxia UK
1 month ago

Ataxia

I have ataxia. The symptoms are almost like osteoarthritis. Those of you who can not seem to have any relief from their pain, have you been tested for ataxia? An MRI discovered what was causing my pain. Coupons
I have ataxia. The symptoms are almost like osteoarthritis. Those of you who can not seem to have any relief from their pain, have you been tested for ataxia? An MRI discovered what was causing my pain. Coupons
coupons profile image
coupons
in Osteoarthritis Action
2 months ago

Quit support

I belong to Ataxia U.K. I do not need Quit Support,fortunately I have never smoked. Living with Ataxia is enough to cope with so I’m glad I do not have to cope with the problems of smoking.
I belong to Ataxia U.K. I do not need Quit Support,fortunately I have never smoked. Living with Ataxia is enough to cope with so I’m glad I do not have to cope with the problems of smoking.
Trinity1948 profile image
Trinity1948
in Ataxia UK
2 months ago

GABA Supplementation

Kind regards, Progressive Supranuclear Palsy with Predominant Cerebellar Ataxia https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6987520/
Kind regards, Progressive Supranuclear Palsy with Predominant Cerebellar Ataxia https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6987520/
BluesHealer profile image
BluesHealer
in PSP Association
1 month ago

TRANSATLANTIC FLIGHTS AND ATAXIA

I have ataxia sc6.. Does anyone know if transatlantic flights make Ataxia and it's symptoms permanently worse?
I have ataxia sc6.. Does anyone know if transatlantic flights make Ataxia and it's symptoms permanently worse?
Hickox profile image
Hickox
in Ataxia UK
5 months ago

30 years of slow degeneration

I have suffered the effects of Ataxia for over 30 years now and thankfully the progression has been relatively slow, but now I will reach the age of 75 this year, I get up in the morning and play the game "Old Age or Ataxia". I never know which one to blame for the way I'm feeling!
I have suffered the effects of Ataxia for over 30 years now and thankfully the progression has been relatively slow, but now I will reach the age of 75 this year, I get up in the morning and play the game "Old Age or Ataxia". I never know which one to blame for the way I'm feeling!
Astonmad profile image
Astonmad
in Ataxia UK
2 months ago

SLS 005 Trehalose ..potential treatment for ataxia

NAF is www.ataxia.org..the National Ataxia Foundation Although recruitment is restricted to the US..this will give interesting information.
NAF is www.ataxia.org..the National Ataxia Foundation Although recruitment is restricted to the US..this will give interesting information.
wobblybee profile image
wobblybee
in Ataxia UK
10 months ago

London marathon

I would like to say a massive thank you to group of runners running in the London marathon for Ataxia uk my son in law Ben Smyth is in that group Ben has raised so much awareness and money in the last year and is a huge supporter of Ataxia uk.
I would like to say a massive thank you to group of runners running in the London marathon for Ataxia uk my son in law Ben Smyth is in that group Ben has raised so much awareness and money in the last year and is a huge supporter of Ataxia uk.
Guardsman68 profile image
Guardsman68
in Ataxia UK
1 month ago

ataxia

Before I knew I had ataxia my Dr. said a knee replacement was necessary. How do I know what is causing my pain and balance problems?
Before I knew I had ataxia my Dr. said a knee replacement was necessary. How do I know what is causing my pain and balance problems?
coupons profile image
coupons
in Ataxia UK
4 months ago

Ataxia Diet

Has anybody tried the diet recommended by Ataxia uk that may help with certain symptoms in some people. If you have has it helped any? My good lady wife has got me on it and I’m starving all day long, only been on it two weeks and already look like a skeleton 💀 Thanks for any advice 😊
Has anybody tried the diet recommended by Ataxia uk that may help with certain symptoms in some people. If you have has it helped any? My good lady wife has got me on it and I’m starving all day long, only been on it two weeks and already look like a skeleton 💀 Thanks for any advice 😊
paul456 profile image
paul456
in Ataxia UK
1 day ago

Just wondered if anyone has experienced a bad reaction after having Gadolinium contrast for a MRI (NB. This post is not about CT contrast)

Posting this as my response to an earlier post on Ataxia forum may have warranted new post. https://healthunlocked.com/ataxia-uk/posts/149124609/pathological-enhancements?utm_campaign=ataxia-uk&utm_medium=email&utm_source=notification&utm_term=new-daily+digest
Posting this as my response to an earlier post on Ataxia forum may have warranted new post. https://healthunlocked.com/ataxia-uk/posts/149124609/pathological-enhancements?utm_campaign=ataxia-uk&utm_medium=email&utm_source=notification&utm_term=new-daily+digest
StriatedCaracara profile image
StriatedCaracara
in Ataxia UK
4 months ago

Ataxia SCA1

I'm guessing that it's something to do with hormones maybe Ataxia is starting to develop?
I'm guessing that it's something to do with hormones maybe Ataxia is starting to develop?
Mirabella113 profile image
Mirabella113
in Ataxia UK
1 month ago

Some positive news for those with SCA3

https://www.biopharmadive.com/news/biohaven-troriluzole-fda-application-spinocerebellar-ataxia/651629/ Biohaven sends latest drug to FDA, despite past trial setback
https://www.biopharmadive.com/news/biohaven-troriluzole-fda-application-spinocerebellar-ataxia/651629/ Biohaven sends latest drug to FDA, despite past trial setback
C2a2o2 profile image
C2a2o2
in Ataxia UK
1 day ago

ataxia programs, how do I join?

How do I join a ataxia program?
How do I join a ataxia program?
coupons profile image
coupons
in Ataxia UK
4 months ago
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