B12: Does anyone have info on b12.I have ataxia... - Ataxia UK

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B12

golfingsue profile image
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Does anyone have info on b12.I have ataxia but been looking into b12 deficency & have so many of the symptoms.& after reading so much about it says that some people with b12 is within range but cannot absorb b12 from food & need more indepth tests MMA & HOMOCYSTEINE.My b12 is 380 as the range for b12 is 190 to 900.

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golfingsue
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wobblybee profile image
wobblybee

🙂 If you look across to the right on this page, you can click on related posts. If this is preying on your mind, ask your Neurologist if you’ve been tested for it.

cocoa profile image
cocoa

The last time I saw my neurologist I told him I was having B12 injections privately. He is in agreement but cannot offer them to me on the NHS.

He took bloods for MMA and homocysteine but the lab. refused to process them because my B12 reading was high from having the injections.

ConfusedAtaxian profile image
ConfusedAtaxian

The GP told me I had to have injections for life (after a blood test apparently showed a deficiency). The GP said my gut was not absorbing red meat. I started with Ataxia 3 mths later. After 2 yrs of injections, a doctor rang and told me the reading was so high that the system couldn’t monitor it and not to have any more. I’ve had none since and have an annual blood test for B12. B12 leaves a sour taste in my mouth.......

auntiesally profile image
auntiesally

I am not an expert on B12, I had a blood test, my reading was 223, however I have been prescribed B12 injections 1 every 12 weeks, for life! I do truly beleive it is who prescibes it, for me it was Dr Paniker a neurlog .

stedman profile image
stedman

B12 deficiency will show up in a blood test, ask your Doctor.

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