Ataxia UK
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B12 Tablets

I recently had some Vitamin B12. I read on it and got valuable evidence to show it could help Ataxia. But when I took them, when the week came to an end: I felt more unsteady (off-balance); weaker muscles and weaker bones. Is this suppose to happen? I think it might be another mental issue. I've stopped taken them but because of the research on B12, I think it could help me. Someone please tell me whether I should continue to take them or disband them completely.

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Hi...illerpath, it is good you are researching for yourself but my advice would be to chat with your GP or Consultant about meds. Personally, I tried some meds (without gp advice) and the side-effects were not good. If you think B12 will help, look at this site - healthyeating.sfgate.com/co... - for natural sources of B12 in foods.

Hope this helps.

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Hey Capricorn... Thanks for your amazing response! You definitely did help me, the reason why I wrote this post is because I want an answer from the community-not a GP. I have anxiety issues so I am struggling to see my GP. I can not explain how I feel in a message but if you have any information you would like for me to hear, you can either message me or feel free to reply here.

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Anxiety is a big part of Ataxia. Do tell you GP.

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I told my doctor... I don't speak to my GP much. My doctor is always so late not complaining but I had to buy my own equipment. I asked for a wheelchair unless I needed one about 5 months ago... I still haven't got it, I couldn't go out because I hurt my knee. I asked for a stick and I got it a week later, it was a bit smaller I asked for another one that can go higher and lower;which you can adjust and I waited for a whole month no one contacted me so I had to go and get one online. I didn't know the size I am so I had to buy one online that was really expensive. I told her(my doctor)- I'm anxious-she avoided the situation I don't have good memory so I can't keep reminding her; she should know that. I have had been depressed and anxious for more than a year-why would i lie? That my doctor is not helpful and only does what she thinks is good for me. Why am I still depressed and anxious... I told my doctors that before I had ataxia... They are useless; I even needed sleeping pills, I told them everything a long time ago. If they actually did something to help me, I wouldn't still be so depressed; so anxious; so scared of asking them more.

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I am not happy with them... I have to work for myself I don't rely on them like some of you do. I ask questions on here because you guys are much more useful with answers.

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I never used to take B12 until somebody on this site wrote about it. I take one every day after mid-day dinner. I used to sleep in the afternoon after eating. But now, I stay awake and can do more. I wouldn't be without it. No side effects and doctor didn't try to dissuade me

Jean

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That is amazing! It does have a lot of health benefits and with all the stuff it helps with I need that. Thanks for your advice!

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B12 is water soluble and rarely causes harm. Excess is excreted. It would have been good if you had been tested before supplementing - along with testing for Folate - Ferritin and VitD. When one is low - it is common for all of them to be low. Home Tesing is available if you wish to avoid the GP.

If your B12 is below 500 it can become a neurological issue and may be the cause of your anxiety. Please read the link below and scroll down for the neurological signs and symptoms ....

b12deficiency.info/signs-an...

Which B12 tablets are you taking - which type - methylcobalamin or Cobalamin ? - and how much. There is more than one type of B12. You will also need to take Folic Acid or Folate with the B12 as they work together in the body and can produce similar symptoms when low.

If you have various symptoms of Low B12 - then it is possible that things can get worse before they improve. B12 is involved in the production of bone marrow and red cell production. Also B12 is involved in the maintenance of the Myelin sheath - the protective layer on all nerves in the body - so the repair is slow.

I have B12 issues and inject every week - I also take Thorne Research B complex. Happy to answer questions :-)

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Thanks for the answer! I really need answers I am only 16 so don't have much knowledge on cardiovascular diseases, thanks for the advice and help. I take it once a day, it does not tell the type of tablet but it says on the top "Mega Potency 1000u,g". The symptoms are very similar to how I am feeling now. How do I get a home test? Who do I need to contact?

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Neurological issues are NOT cardiovascular :-) Did you click onto the link to read all about B12 ? It will say on the B12 jar somewhere which type it is. 1000mcg is quite a small dose if you are very low.

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Sorry I don't know much about this only a year ago I was diagnosed with SCA1. I do not know if I am low but the symptoms that have been stated on the website is similar to how I'm feeling. How do I find out if I'm low or not? It is not a jar it is a packet.

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A blood test is the usual route - but now that you are supplementing it means the results will be skewed and will give a higher level.

I gave you a link above - you can click onto it and see how many of the symptoms of B12 Deficiency you have.

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Alright, Thank you very much. I appreciate your help.

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B12 works for me. I have an injection each quarter recommended by the Neuro Surgeon, administered by a Nurse at the surgery. I also enjoy Marmite on toast! Please see your Doctor and explain things. Good luck!

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Thank you for responding! Unfortunately right now my doctor has gone away for a year. I wrote this question mainly because I feel like you guys will know more about this pill then any other person apart from my doctor.

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Register with another Doctor or visit A&E and tell your story. Your absent Dr, should have arranged alternative medical care, or at least given you advice on where to get it. If you don't know, contact local [Citizens Advice Centre.] You can Google it. You should not be without proper medical care and advice. I believe you can phone an NHS helpline, again Google it. Good luck and smile ;-))

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