Professor Hadjivassiliou

[GlutenLadYorkshire]

Well tomorrow is going to be make or break, I’m off to Sheffield to see Professor Hadjivassiliou to hopefully come to some answers, I am coeliac but last year for a couple of months I couldn’t walk properly and my speech was disturbed, I’m ok now but gluten has been the main culprit I have also had psychosis so we shall see what will be will be.

[wobblybee]

🙂 He’s the best if you’re Celiac, best wishes for tomorrow.

[GlutenLadYorkshire in reply to wobblybee]

Thanks

[pinjem]

We are lucky to have him available. Such a 'blessing' to have someone know and understand what is happening. Many Neurologists have no knowledge of some forms of ataxia, lovely as these Neurologists can be, it seems better to know, at least you can give a diagnosis or a test result to those who albeit sympathetically (and incredibly annoyingly) suggest it might be 'in the mind'. Knowledge gives you something to work around, if you can. I hope it goes well, he is a very pleasant and knowledgeable person.

[GlutenLadYorkshire in reply to pinjem]

Been to see him we think that my symptoms may have been an infection in my ear and mental health, he seemed very knowledgable and understanding has some blood test done and going to have a mri spectroscopy

[madbpm]

I also see Marios Hadjivassiliou in Sheffield. I Hope you have Sat Nav as a lot is one way

[GlutenLadYorkshire in reply to madbpm]

Yes we went the other way down all the one way streets pain in backside, next time we’ll come off glossop Road

[suzie44na]

Hope you get on fine seeing him. I see him next week because I have no definite diagnosis, so here’s hoping, wishing you all the best.

Suzie

[GlutenLadYorkshire]

Thanks I’m the same no definite diagnosis he seems sure it isn’t ataxia

[Razzy]

I hope all went well today as Professor Marios is a wonderful guy

[GlutenLadYorkshire in reply to Razzy]

Thanks it went better than expected he was very understanding and professional