Cannabis oil: Hi, just wondering has anyone tried... - Ataxia UK

Ataxia UK

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Cannabis oil

Lockmaster profile image
17 Replies

Hi, just wondering has anyone tried cannabis oil? And if so, has anyone found it to help at all with symptoms?

I have cerebellar ataxia.

Thanks

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Lockmaster
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17 Replies
Cubsfan profile image
Cubsfan

Hi. I haven't tried the oils due to the cost. But I do use edible products and find them effective for pain, stiffness, relaxation and sleep. I do use tiger balm for joints and there is an oil from Thailand which is very good but I can't recall the name at the moment, I haven't seen it sold in awhile.

Divz_363 profile image
Divz_363 in reply to Cubsfan

hi cubsfan, I have sca-3 too and heard cannabis oil has a lot of good results. have kept on reading very good reviews by ataxia patients aswell..havent tried though coz im from India and not pretty much available in our country. so there would be no sideeffects rite so incase you use also itl not cause any damage. anyways better you check with your doctor once.

Good morning,

yes I have and it does help for sure, but it makes you really dizzy (great, though...) so it is not something for every day. What there is for every day is CBD drops or capsules. CBD is the "medical" component in cannabis, it has less than 1% of that other, hallicunoid component. Makes you relax perfectly and takes away pain - not entirely and not instantly. I have FA and I am 54, have arthrosis in my shoulders, very very bad, but after 3 or 4 weeks of regular use of CBD, it became reasonable again, sometimes the pain was almost gone. I take it before I go to sleep. Sleep much much better.Sometimes a few drops during the day, if the world drives me nuts. - The oil is for the weekend or when you can just sleep forever... Or if you want to see colours and patterns... But you better lie down safe. Even healthy people have to...

HarryB profile image
HarryBAdministrator

Hi

Cannabis oil is illegal in the UK and therefore Ataxia UK cannot advocate its use. However cannabidiol oil (CBD oil) is legal in the UK as it contains very little THC (about 0.2%) - the psychoactive component of cannabis oil.

Harriet

mason profile image
mason in reply to HarryB

hello i have severe pain in every part of my body does CBD oil have side affects please i also have acute anxiety and 14 disabilaties ,

Wyndham profile image
Wyndham in reply to HarryB

I have been using a Vape pen to inhale CBD mixed with a fruit flavour.

The lads at my local Vape shop are very friendly and helpful. They took their time to show me all the options. I chose a pen type of vaping device and love it.

There is no nicotine involved, and I mix the CBD with a fruit flavour. I am still experimenting to get the right mix. It's actually fun.

My GP is lowering my medication slowly as I gain the benefit from vaping.

My depression is much better, my pain (damage to the spine) is significantly better although I still can't stand for more than a short time, and walking any distance, is impossible so I'm still using a wheelchair when I go out.

The spikes of pain I used to experience several times every day are gone, as is the lower level 'All day' pain.

I am sleeping much better, often waking up with the duvet where it was when I closed my eyes to sleep.

There is apparently a benefit to people with Ataxia too.

"However, the degree of impairment does not extend to overt ataxia. The antioxidant activity of cannabinoids such as Δ9-tetrahydrocannabinol (THC) and Cannabidiol (CBD) indicates that they may be effective in preventing and/or treating the development of neurodegenerative disorders such as FRDA."

R. Mouro Pinto, S. Al-Mahdawi, M.A. Pook CCCB/BICGP, Division of Biosciences, School of Health Sciences and Social Care, Brunel University, Uxbridge, UB8 3PH, UK

Nothing definite but further study may uncover benefits. Who knows.

Wyndham profile image
Wyndham in reply to Wyndham

Further to some enquiries below: you can get CBD Oil in three ways (as far as I am aware) - oil to drop on your tongue, capsules, and vaping oil.

I understand there are no side effects known (as always, be aware), and you can't overdose (take too much) - it'll just send you to sleep.

I have not seen any warnings about not driving.

Wyndham profile image
Wyndham in reply to Wyndham

Just found out there is a mouth spray as well

wobblybee profile image
wobblybee

🙂 I bought some CBD Oil at the weekend. It is expensive, for a tiny amount. I’m wondering whether any beneficial effect will be noticed before it runs out. And, I can’t say the taste is pleasant 😬 xB

pollybanana profile image
pollybanana in reply to wobblybee

Has it made any difference yet?

wobblybee profile image
wobblybee in reply to pollybanana

😏 I only started taking it a few days ago, so it really is hard to say. Everybody probably responds differently. I bought it from Holland & Barrett 🙂xB

Ackee profile image
Ackee in reply to wobblybee

I found the CBD oil was making me feel 'floaty', so I started taking hemp seed oil alternative days. I noticed a very slight difference with my fine co-ordination. I researched and found there is a compound in the oil that helps control signal between brain & muscle (Myein or something).

Ackee profile image
Ackee in reply to Ackee

Myelin sheath

ConfusedAtaxian profile image
ConfusedAtaxian in reply to pollybanana

I used CBD oil from Holland and Barrett and was worse if anything. I suppose we have to try anything. I have CA.

Mariweena profile image
Mariweena

It might! I have a medical marijuana card and thc as opposed to cbs (which I have tried) works pretty well in helping with pain and anxiety. What are the laws on med marijuana use?

Hauptbahnhof profile image
Hauptbahnhof

Cannabis oil is very effective against issues like insomnia, anxiety, depression. Also, it helps to relieve physical pain. I myself buy CBD oil on shoppingcbd from time to time because it really helps to rest.

BobR47 profile image
BobR47

test

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