I'm 29, was diagnosed with ataxia nearly a year ago and am fighting every day. I wanted to share what I am doing to fight this.
As soon as I got my diagnosis, I looked into Pilates. My doctor weren't very helpful in this regard and basically said I could do exercise if I wanted but it wouldn't make much of a difference! She was completely wrong and I think that exercise is the most important part of fighting ataxia.
The Pilates studio that I go to is brilliant. Before I started they researched my condition and they know my restrictions but that doesn't stop them pushing me to do my best and to get better at everything. I now go 4 times a week and I feel better and stronger than I have in so long.
Around the time I was diagnosed I noticed a trembling in my hands, particularly at night. This was probably also due in part to anxiety. I researched online and decided to try CBD oil as lots of people with MS use it. I found CDB oil helped immediately.
I'm not exaggerating when I say I could feel it working the first day. I now have zero tremor. I do think that if I wasn't taking CBD I would have had to ask for some anti-tremor medication and I much prefer the natural route.
I also bought CDB-infused muscle gel. I've only used it a few times but I'm hopeful it will be good when my legs feel tired and stiff.
My speech has been affected and has gotten noticeably slurry in the past few months. I really hate this part of ataxia as as an Irish person living in London, I'm already a bit paranoid about speaking clearly. I also talked very quickly (an Irish thing). I've tried to slow down when I speak. A speech therapist I saw recommended reading out loud everyday and I think it is definitely making a difference already (I only started a few weeks ago). I now read slowly, loudly and enunciate every day. I love reading so this is a bonus
I'm doing everything I can to fight this and reading the inspirational posts in this group is a big help.