Sleep and tiredness

[Capricorn9157]

Hi. Over the last few months I have found I am weary and tired all the time. My sleep patterns are haywire, some days sleeping for a couple of hours and other days up to 12 hours. I have tried to get into a routine but doesnt seem to work. Sleeping tablets are not an option as have tried before and after a couple of days they stop working. Could this be connected to my Ataxia? Anyone experienced similar? and how do you manage it?

[ladyntramp]

Hi Capricorn9157,

I don't know if this is the same kind of thing you are experiencing or not, but yes I do get tired and/or fatigued quite a lot during the course of a day. I can sit down and the next thing I'm sleeping (it may only be for a few minutes or it may be for an hour or so). My usual night time habits see me sitting up until late - I am what is known as a 'night owl', but the last few months have seen me going to bed sometimes at 8.30pm - 10.30pm. The only medication I take is for blood pressure and cholesterol, and as I have been taking this medication for years I am more than confident that these are not the problem. I read somewhere that ataxia makes you tired, and the more busy I am then the more tired I get. I have SCA, but as to what number it is I have no idea, perhaps Australians don't use numbers because I was only given a diagnosis of Spinal Cerebella Ataxia. Hope this is of some help to you. Keep happy. LadynTramp.

[Capricorn9157 in reply to ladyntramp]

Hi. Sounds similar to me. Sometimes in bed early and other times awake all night. But I can fall asleep on the sofa any time during the day for a few minutes or up to a couple of hours. One day I will find myself on a train the other end of the country after napping...lol.

[berejena in reply to ladyntramp]

Im writing this to you both, yes I get tired a lot, I try to have a siesta. for about 2hrs a day. I have been known to sleep all day. I have had Spinocerebellar ataxia for 30yrs number unknown. We are a mystery. I see a professor of neurology but he specialises in Ataxia. I am also in a genome prroject givig consent for my DNA which they have. It won't benefit me but will benefit someone in the future. It is based in Newcastle. Lately I have fallen a lot. In Feb I fell, and fractured my pelvis! I had to sit all day, until April very frustrating & boring. Now my shoulder/arm are really painful, sometimes I cried with pain, my fingers tingle. U forgot to mention I have Dysonia too, that's muscle deteriorating.

Keep smiling, Be careful

Berejena

[Litty]

I have not had the erratic nights but I always try to have 1-2 hrs nap during the day and if I have a busy day I need a recovery, rest day.

My physio says we need more cos use a lot of energy trying to appear normal. Hopefully sort soon - try staying-up late?

Good luck x

[Capricorn9157 in reply to Litty]

Hi Litty. I have tried going to bed early, late, staying awake all night but nothing seems to be working. Ho hum. Also I tend to nod off anytime for short periods...snore, snore...yawwnnnn...lol. Will see what the future brings.

Have a goodun

[Staggy1]

Hi Capricorn I find my sleep pattern has been affected by CA and take two Tesco herbal sleep pills at night, which I find really helps me.... Cx

[suzie44na]

Hi Capricorn 9157, I am tired all the time and never feel like I have any energy. I am always up late as I do not sleep well. I am now trying different teas like moringa dawn, Bora Bora, organic rooibos, which are suppose to be good for us. Thought I would try some natural things instead of tablets

Suzie

[Capricorn9157 in reply to suzie44na]

Hi Suzie. I have just bought some green tea which has helped, of a sorts, in the past. Hope his may help.

Steve

[suzie44na]

I hope it helps you too Steve, we can only try

Suzie