Hi I'm Tina 49yrs old. I have the inherited form of SCA6 from my mothers side. She is Now 80yrs old and cannot walk anymore.
I started losing my balance at 37 yrs. I now stumble a lot. Have to hold on to something if I lift my feet up. Going downstairs I need to hold on both sides. I've been reading others posts and sent away for trehalose and niagen. I'm also taking COQ10. Thank you for info on these. My neurologist doesn't say anything about vitamins helping either.
Recently I've been waking up in the morning like my arms are still asleep. Tingling. I had this just in my index finger for about a year but now it's in my hands and forarms. Goes away after a few minutes. Does anyone else get these feelings of peripheral neuropathy ?
Thanks for listening Tina