Newby to this forum: Hello everyone my name is... - Ataxia UK

Ataxia UK

4,068 members4,638 posts

Newby to this forum

Staggy1 profile image
10 Replies

Hello everyone my name is Carole and I'm 52. My twin sister and I were diagnosed with hereditary cerebella ataxia two years ago. It's quite frustrating to keep discovering that you find doing a quick chore takes you longer to do and the reduction of your dexterity is quite frustrating.

Written by
Staggy1 profile image
Staggy1
To view profiles and participate in discussions please or .
10 Replies
wildstyler profile image
wildstyler

Remain as fit as you can , for as long as you can. I'm 68 not out.

Staggy1 profile image
Staggy1 in reply to wildstyler

I followed a yoga dvd this morning to help with mobility and balance. It's left me feeling quite stiff but I'm going to persevere. Thanks for getting in touch😊

wobblybee profile image
wobblybee

Hi Carole, welcome😊 Patience and determination are good allies😉xBeryl

Staggy1 profile image
Staggy1

Thank you for your support. I'm taking Fluoxetine each day for the patience and that helps!! 😉

february profile image
february

Dear Carole, Welcome to this site! I'm 63 and was diagnosed with Sporadic Cerebellar Ataxia (unknown cause, progressive, symptoms 24/7) when I 49, although I had very minor symptoms starting at 43. Ataxia is very frustrating and challenging, but I try to concentrate on what a can still do, not what I can't! Also exercise for strength and balance is helpful! My best to you..., ;o)

Staggy1 profile image
Staggy1

I think knowing and communicating with people going through the same things as me is helping to make me feel stronger already! So thank you very much for your reply 😉

My goodness your very pretty I wish i looked as good!!

Staggy1 profile image
Staggy1

Thank you Bella - it was a good day! 😘

Veteran250 profile image
Veteran250 in reply to Staggy1

WOW! Carole you look very beautiful for 52..... I’m 74, my brain and fingers are still ok, but the rest of my body is crap. I found out recently that I have Cerrabella Farction(stroke problem) have a lovely Sunday.

Don😀😘🌹

Staggy1 profile image
Staggy1

Thank you sweetie - you have a good Sunday too. Take care in the snow. X

Not what you're looking for?

You may also like...

2008 they were able to reverse SCA 3........

Look at this article, dated back in 2008,...

Improving diagnosis, and management of Gluten Ataxia.

🙂People in the UK Improving diagnosis and management of Gluten ataxia Ataxia UK, Coeliac UK,...

shooting pains and burning sensations in hands and feet

Over the last few months I’ve started getting shooting/sharp pin prick like pains in my toes,...

Mollii Suit…..giving muscle stimulation

What is a Molli Suit A comfortable jacket and trousers with built-in electro-stimulation for...

What is it like to have SCA3?

I have finally found the correct description for what it is like for me with SCA3. Can you imagine...