Does anyone else find their ataxia symptoms worse in this cold weather? Stiffness and gait for me is really affected and then like a chill which can be uncomfortable runs through me.
Also like hot flushes, but not so much as the chills. Am way past the menopause so it's not that. Does the cerebellum regulate body temperature does anyone know?
How good it would be to have an ataxia specialist or health professional that you could answer these questions because however small these problems they do affect quality of life and not knowing can cause anxiety and stress.
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penelope2
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My ataxia is definitely worse in the cold weather! I get extremely stiff. I get very hot sometimes. My neurologist says it's because of ataxia, so I assume the cerebellum does regulate temperature! My best to you..., ;o)
I agree that cold equals more stiffness. I break out the long underwear, but it is a bit of a trade off as that makes me feel bulkier! Some of these symptoms are to do with getting older. My wife, non ataxian, and I both wrap up in a rug to watch tv in the evening. Definitely makes a difference to moving at bedtime.
I have some waterproof trousers that are lightweight and go outside everything, wind proof too, important when in a wheelchair. Every night the rug is put to use. Means I am warm at bedtime!
Even indoors I can start to feel cold, it usually starts with my nose🙄 followed by hands and feet. Once a chill sets in it can be hard to warm up again, especially in bed. But, on the other hand, sometimes I overheat 🙄
Temperature hot or cold defiantly effects ataxia suffers although I don’t think it’s the role of the Cerebellum to regulate body temperature it’s another part of the brain called the hypothalamus.
It’s all too complicated for me though I think if you have problems with the central or autonomic nervous systems we can expect all sorts of horrible things Lol.
I hope this makes a bit of sense but if you have any questions please don’t ask me as I have no idea what I’m taking about Lol.
whichever b it it is called the thermoregulation AINT WORKING.quite simple itis gone. i get overheated often and even more often cold, getti ng used to completely cold feet.mybladder started to be affected at night. and had no kids of my own, never will have.so no sagging of the lower bits after any births. but the nerves in bladder affected badly after scratching eczema, no drinking of water late, no PURE NERVE DAMAGE IN BLADDER and go back to sleep after a complete emptying it.if i werent home disabled as I AM, cldn't work 3x a night up...can sleep daytime...snakes and ladders.
I have a problem with keeping warm - my feet are even cold when I have thick socks on and sat with the heating on! Another problem I have is my nose just seems to run constantly if I go out into the cold or change of room temperature. Only out of one nostril and no matter how much I blow my nose it just continues - anyone else?
feet the same, hands warmer, but if you ev er heard of RAYNAUD'S syndrome, scarily white hands,eventually blood gets through, but scarred stiff whaqt next a gangrenous hand or feet? as if i haven't hadALREADY A BALancE ISSUE, try to walk with missingtoenail, the big one.IS THAT USUAL WITH ATAXIA.?
went to Portugal in Jan,prior to my husband's passing.the minute NO SUN, STIFF, ONLY HOT SOUP enabled me to walk to get dinner.so past March no Portugal, no Portugal no husband, cannot see the point going on hols alone full stop.
Gosh we have so much to put up with!If only there was more professional medical support instead thank goodness there are forums like this for our questions and thank you all for answering.
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