Trimbow

[Alsatianfan]

After a lobectomy for lung cancer my doctor has changed my inhalers to Trimbow. I am not doing very well on it so far but I have only been taking it for one week. Any helpful advice re Trimbow

[Osha]

I’ve been using trimbow for 8 months and don’t see any difference after using serotide

In fact I aim to ask my doctor for anything that is better than trimbow I hope it works for you though we are all different

[Alsatianfan in reply to Osha]

Thank you. I was on Symbicort and Spiriva for a long time - I have other lung problems like fibrosis and bronchiectasis so I don't know why they changed it. I felt OK with them but am feeling a little shaky plus headaches since starting the Trimbow.

[Nula2]

I was changed to Trimbow just over a week ago. Feel I'm even more breathless at the moment but nurse did say that it will take a few weeks to kick in so I'm trying to persevere.

[Donald_1931]

Trimbow is a oreventor and takes weeks to start working. Give it a chance it's one of the best.

[Alsatianfan in reply to Donald_1931]

Thanks. That gives me more confidence.

[Jack70 in reply to Donald_1931]

How many other medications do you know where they need time to “ kick in “ . This is just doctor psychological talk . For instance do you need to take weeks of paracetamol to stop a head ache. If it’s going to work it should work within minutes not weeks.

[Donald_1931 in reply to Jack70]

I could not agree with you less!

[leo60 in reply to Jack70]

Antibiotics?

[Jack70 in reply to leo60]

Antibiotics have seriously injured me by uneducated doctors by not knowing the side effects and failing to recognise them do occur. Also antibiotics attack living organisms and the war can take a while to win or lose. Inhalers are to relieve symptoms and should work straight away if they don’t they won’t.

[janedivney in reply to Jack70]

Some inhalers are to prevent symptoms though, eg those containing a steroid might take a week or so before the inflammation reduces enough to be noticeable

[Jack70 in reply to janedivney]

Alsatianfan’s previous inhaler contains steroids so that can’t be the issue

[leo60 in reply to Jack70]

Kind of the same way the corticosteroids take time to reduce the inflammation in airways ? Different inhalers have differing drugs and quantities thereof, thus making it impossible to compare directly. Also different inhalers work better for some than others. I guess that is why there are (apart from the money side which is a completely different topic) so many varieties?

A direct quote from the NHS website:

"A beclomethasone inhaler does not work straight away. You need to keep using your beclomethasone inhaler every day as prescribed, so it can build up protection in your airway over time. It may take several weeks to see the benefits of a beclomethasone inhaler"

[purdeyspringer in reply to Jack70]

I always take Pro Biotics while taking any Anti Biotics they will put back all the good thing Anti Biotics destroy.

[Alsatianfan in reply to Jack70]

Sorry Jack70, I can't agree with that and I speak from experience.

[Alice70 in reply to Alsatianfan]

I can't agree with Jack either it took a couple of weeks for it to work properly on me obviously it did help some the first week ,but it did get better as time went on ,the other thing iv just been put on a biologic for rheaumatiod athritis and been told it will take 6 to 12 weeks to work before the inflamation will go down some meds are like this especially the new ones

[Jack70 in reply to Alice70]

I’m happy it worked for ya. I hope your doctor has warned you of side effects from biologics if you have copd. Research and question everything yourself don’t blindly trust your doctor. I just don’t want anyone getting injured like I did and that was from a so called top infectious disease consultant at Manchester

Good luck with the treatment.

[Nula2 in reply to Donald_1931]

That's reassuring Don👍😊❤️xxx

[peege]

As Nula and Donald say it can take time to 'kick in'. Have a good read of the leaflet to see if it tells you how long before you should feel the benefit. In situations like yours its so difficult when changing inhalers that effect isn't instant. On Monday (09.15 to 5pm) you could call the helpline to speak to a professional for guidance on how to cope.

In the meantime lok at the older posts and their replies in 'Related Posts' to the right (all on Trimbow today). And try to avoid catching any bugs (use all the precautions we used during the pandemic - that many of us still use), no hugging, don't allow anyone in your home with coughs & colds. Catching anything will set back your recovery. In my opinion until trimbow kicks in you're vulnerable. Take care and good luck

[armstrong2]

hi lalso have had a lobectomy but have been on trimbow before the op please perservere with it trimbow is one of the best inhalers the side affects will subside eventually

[claracola]

Im also on Trimbow. I find it very good but each dose doesnt last long enough.

[knitter]

I was given Trimbow ….my peak flow started to go down after a few days .

It was the weekend so I went to the pharmacy , was advised to contact my health professional on the Monday .

Turned out it has a similar ingredient to Fostair which didn’t suit when I tried that before .

Gone back to Qvar as a preventer .

We are all different what suits one may not suit another .

The ALUK helpline open again on Monday for UK residents .

Contact your pharmacy or 111 for advice if you need as it’s a Saturday

[leo60]

I have been on Trimbow for a few years now, no problems and seems to be good for me. As others have said, it does take a while before you gain the full effect. Good luck xx

[Alsatianfan in reply to leo60]

Thanks. Sounds reassuring.

[watergazer]

hello alsatianfan. I can’t help but wish you well x

[Alsatianfan]

Thank you. My lobectomy was followed by a cardiac arrest, then a stroke and then a seizure so it has been a long uphill struggle. The surgery was in February. I can walk a little now but I am still very breathless and still have a cough so I think that's why we have moved on to Trimbow. So the replies are helpful.

[leo60 in reply to Alsatianfan]

Oh my goodness, you really have been through the mill. It’s bound to take some time to get over all that, but persevere you will get there 😊

Wishing you all the best xx

[Patk1 in reply to Alsatianfan]

You've really been thro a lot.sounds like you are doing well,after so much.id ring helpline on Monday 915-515 mon-fri0300 222 5800 x

[ZedKH]

hello ! I also switched to Trimbow from spiriva and symbicort a couple of years ago following a bout of pneumonia. I use it with a spacer and have been fine with it so, as others have also said, it’s probably worth persevering. Plus you’ve been through such a lot that I imagine it will take a little while to feel some improvement. I wish you well …

[Alsatianfan in reply to ZedKH]

Thanks. I used a spacer too. At first Trimbow made me cough but I'm doing OK with it now. I will persevere.

[Chinadoll81]

Have to admit it didn't help me. Now on Trelegy. Hope you.are better real soon Blessings and love xxx

[JJ_7]

I was on Fostair, Braltus, and Salbutamol and they wished me to trial Trimbow as a replacement for the 3 medications. I took Trimbow for 1 month and begged them to put me back on my previous medications as it was not as effective. Trimbow is a much cheaper alternative to prescribing 3. I argued on clinical grounds they should reinstate the 3 medicines and they did so. That's my story and we all have different needs. Hope it helps soon!👍xxx

[Tiggertheterrier]

I was tried on Trimbow, but sadly it didn't work for me at all, had to revert to my previous inhalers. But we are all different and some inhalers suit us better than others. Luckily for us, there are several alternatives around these days and more in development!

[Buboo]

HiI've been on high dose trimbow twice a day for about 18 months. Overall it has been very good..I rarely use my ventolin at all.

I do make sure I clean my teeth after using the trimbow otherwise I can end up with a sore mouth.

It does take a little while to start working but we are all different so I would give it a couple of weeks to see how u get on..if not good then change over to a different inhaler.

[Alsatianfan in reply to Buboo]

Thanks Buboo. I am only about one week in taking it and haven't noticed any difference yet, however, I can now take it without coughing so that's a step forward.

[purdeyspringer]

Hi I was put on Trimbow by my specialist at the hospital, he said it's the best he can give me, along with Salamol. I have been using it for about 3 years now, I only have 40% lung function, so am constantly breathless. Try it for a bit longer, it does not suit everyone, tell your doctor there are plenty more that would suit you. Good luck are wish you well.

[Alsatianfan in reply to purdeyspringer]

Thank you. I will persevere with it. Early days yet I suppose.

[purdeyspringer in reply to Alsatianfan]

As I said not every inhaler suits everyone, all trial and error. Although they told me it's the best they can give me, it still not helping my breathing, nothing does, not even oxygen, on very temporary relief. No cure for stage 4 Emphysema. Hope you find an inhaler that helps, it's your body so tell them if your not happy, good luck.

[fallon12]

Hi,

I’ve was on Trimbow for a month and got worse and I insisted on going back to my usual inhalers and I improved with in about 4/5 days. My doctor told me that the steroid I’m used to getting was not in Trimbow ( not the same amount) and that’s why I dropped so fast. I hope your doctor is as helpful for you and gives you something that helps you. Good luck.

[Alsatianfan in reply to fallon12]

Thank you. That's interesting to know.

[PaperQueen]

I was changed to Trimbow from Fostair and found it way better. I've been told a number of times that it's one of the best. I've been on it now for a couple of years. Like others have said, we are all different, but I would give it a fair chance before you give up on it. xx