BC Update with GP.

[Ern007]

First I rang Macmillan and they thought it very odd my cancer had gone from high to low.

So rang my consultants secretary and she was not there, the people in charge said they were not qualified to help.

I saw my GP today and like myself had a letter with no details at the top, this matters because I would have known what was what.

She was able to look at my notes and confirmed the Cystoscopy in June showed most of the quadrants with no tumour - Hence the change from high grade to low grade.

Doctor told me I would not be left with nothing once BCG had finished, I would have regular Cystoscopy's and anything found zapped - I have had that happen before.

I still have BC but at the moment it is low grade -and other treatments could be tried.

With regards to the Cystectomy (Bladder removal) she said that now would only be an option if it spread into my bladder muscle.

She is even sending me for a back X ray even though I have had a bad back for a long while, to eliminate that being a BC Symptom. She think's it worsening spondylitis.

So a very worthwhile visit to GP - I really am sorry i posted such a downer last time, while other people on here are ill also... Thank you all for the support I recieved.

I am posting a painting probably on 23rd December - A new project for me,

[sassy59]

I’m so pleased you had a good visit with your GP. It’s good to speak with someone and get to the bottom of things at least partly. I’m keeping everything crossed for you and wishing you better days ahead.

You’re entitled to be down as you have a lot to deal with. We’re here to support you Ern.

Can’t wait to see your painting on the 23rd as it’s a very good day for me. I’ll be another year older.

Take care. Xxx❤️🥰

[Ern007 in reply to sassy59]

Thank you Carole. It was a good visit - She listens. She looked into my hospital notes and explained what probably will happen post BCG. The nurse at hospital though nice enough seems to give half a story, anyway Thursday my last treatment for this year, no eye injection either until new year, so a clear run to Christmas.

I know people on here are fantastic. ill themselves but always ready with support. I appreciate being a member.

I have picked the 23rd as the 24th people will be busy with Christmas, i thought I would try something I have never done before, I love a challenge.

I hope you have a lovely time on your birthday, what a nice month to have a birthday in. I am a Leo .😀 xxx

[sassy59 in reply to Ern007]

Glad your GP listens and explains. Good luck with your last BCG treatment for this year. A clear run to Christmas sounds good.

I’m sure I’ll enjoy my birthday, thank you. My sister, daughter in law, son in law and best friend are all Leo’s. Xxxx

[HungryHufflepuff in reply to sassy59]

Happy birthday for the 23rd Carole. I hope you have a lovely day. (Mine was last week, I’m a Sagittarius) I hope Pete’s doing a bit better too.

[sassy59 in reply to HungryHufflepuff]

Thank you HH, belated birthday greetings to you. My grandson is Sagittarius too. He was 6 on the 16th.

Pete is ok thank you but still in pain. He’s having a private consultation next month. Stay well and have a good Christmas. Carole xxxx🥰❤️

[HungryHufflepuff in reply to sassy59]

Thank you 🎈

I’m sorry to know Pete is still in pain. Hopefully the consultation will prove to be helpful. 🐑🐑🐑🐑🐑

[Dottie11]

So glad you have someone medical trying to sort all this for you. A lot to cope with. Take care. x

[Ern007 in reply to Dottie11]

Thank you Dottie11 - My GP really is a star. x

[Dottie11 in reply to Ern007]

That is really good to here. x

[Ern007 in reply to Dottie11]

Not just this, ever since we moved to village, she has been on the ball. We really are lucky. x

[Dottie11 in reply to Ern007]

Does make such a difference. Very pleased to hear you have such a good Gp. x

[Ern007 in reply to Dottie11]

Thank you Dottie11 - GP Makes a lot of difference, when i first had COPD and Angina, my town doctor was really good, but then he retired, never was the same again until the village move x

[Troilus]

Good news Ern.

[Ern007 in reply to Troilus]

Thank you Troilus. It's really good to here there is a plan

[Handel]

Hello Ern. Sighs of relief from us. That sounds like a very good result and your doctor sounds amazing. Lots of love. Jan xxxx

[Ern007 in reply to Handel]

Thank you jan and for your posts - yes a good result, I still have cancer but unlike what i thought, no worse and even better. xxx

[Handel in reply to Ern007]

Hi Ern. You and me sound so alike. I've got/had cancer too but we just plod on don't we!! I'm waiting for a CT scan appointment!

Good luck with everything. It sounds like you'll have a less worrisome Christmas. xxxxx

[Ern007 in reply to Handel]

We have to plod on with Cancer - We have it. I don't mind a CT Scan, I hate the contrast when I have had to have that. Good luck with you scan Jan and hope you are able to have a good Christmas, you take care jan xxx

[Handel in reply to Ern007]

Thanks Ern. I'm not a big fan of contrast dyes 😂! I think we both have to do what we have to do though. I'm just thankful for modern day treatments. Thinking of you Ern. Your paintings make a great difference to me and lots of others on this forum.

Love and hugs. Jan xxxx

[Ern007 in reply to Handel]

Yes we need the scans as bad as they are with contrast. As you say - We have these to do and are glad of modern treatments. Painting is addictive and really glad it can make a difference. I am at my easel now glad I am not outdoors in the wind and rain.

Take Care Jan xxx

[Handel in reply to Ern007]

❤️❤️ xxx

[Alberta56 in reply to Handel]

Fingers crossed for you, Jan. Hope all goes well. xxx

[Handel in reply to Alberta56]

Thanks Alberta. I just wanted Ern to know that he's not alone with all this cancer treatment stuff!! I'll report back when I have my scan date. Weirdly, I've had a letter with a date in February 2024 to discuss the results of the scan !!!😂 xxxx

[Oshgosh]

I’m pleased you had a positive visit just in time for Christmas xx

[Ern007 in reply to Oshgosh]

Thank you, So true, like an extra Christmas present xx

[CDPO16]

No apology needed Ern. We all have downers at times. Glad you had a worthwhile visit with your GP.

[Ern007 in reply to CDPO16]

Thank you Carole. Yes I got the info from her other should have given, no matter everything is at least clear now.

[djbctla]

hi Ern,

Its natural u were upset in your last update. Who wouldn’t b.

This is the forum to feel down, we all understand being “fellow feeling downers” from time to time, worry brings stress and upset.

We all understand this, if the truth b known, it’s reassuring to know others have the same feelings.

You have reminded us this PASSES, and will when it happens again.

I’m very pleased u are feeling in better form and the news us good.

BERNARDINE 🌹🌹🌹

[Ern007 in reply to djbctla]

Hi Bernardine.

Thank you. I was on a downer - Not often but this was one situation I did not cope well with. I tried all week to find answers, I at last did today. I guess as you say we all have downers from time to time and again, as you say it passes. I am feeling better but tired after this week, will not stop me having a bit of the amber liquid tonight though. take Care,

[djbctla in reply to Ern007]

😂🤣Enjoy u deserve it Ern🌺🌺

[Alberta56 in reply to djbctla]

Well said, Bernardine xxxx

[HungryHufflepuff]

that sounds like a good GP. It is such a blessing when you get a good doctor. I hope the X-ray goes ok. I’m looking forward to seeing your new painting on the 23rd. Thank you!

[Ern007 in reply to HungryHufflepuff]

Yes she makes time when you go and see her, she sorts things out what hospital have neglected, my Thyroid consultant, never seen them for years, she sorts that out. I am painting something a bit different for the 23rd, never tried this before. It's fun to do HH.

[HungryHufflepuff in reply to Ern007]

I’m intrigued about your painting! I’ll look forward to seeing it. Thank you for sharing your paintings with us.

[Ern007 in reply to HungryHufflepuff]

More than welcome HH could not think of a better place to share.

[Threecats]

Hi Ern, well that sounds a lot more positive doesn’t it. Thank goodness for your GP, she’s a star! It’s quite understandable why you would have been feeling down before, given the very confusing messages you had from the hospital. Not knowing where you stand and what you’re dealing with is very demoralising. I’m very pleased things are looking brighter for you now.

Intrigued and looking forward to seeing your new work on the 23rd😊 x

[Ern007 in reply to Threecats]

Thank you Threecats - My GP is very reliable. hospital OK but, info is sparse at best,x

[Ergendl]

So good to hear such better news from you after this visit. Long may the improvements continue.

[Ern007 in reply to Ergendl]

Thank you.

[watergazer]

So glad your mind is put at ease after your GP visit. We are here to moan, rant, laugh and share experiences Ern so don’t apologise. Worry can eat away at us so always good to share them. Take care and enjoy Christmas x

[Ern007 in reply to watergazer]

Thank you watergazer - I hope you have a gfeat Christmas also. x

[Izb1]

Well this visit was so much better Ern and has left you with a clearer picture, thank goodness you have such a good gp. You can now relax and have a better Christmas, rest up and catch up on much needed sleep x

[Ern007 in reply to Izb1]

Thank you, you hit the nail on the head, my sleep has been poor, looking better now x

[Mellywelly]

Hey, nobody would say anything if you posted a downer, that's what we are all here for. Information, support as best any of us can give and chit chat. I am so happy you are in a better place at the moment as that's really good news. Couldn't come at a better time. Hope you enjoy Christmas 🎄 and things keep going good for you 😉

[Ern007 in reply to Mellywelly]

Thank you Mellywelly and hope you enjoy you Christmas also.

[Morrison10]

Your meeting with your GP is very good and pleasing, hope this helpful attitude lasts. Just what you need as we head up to Xmas, New Year Hollidays. Best wishes, Jean x

[Ern007 in reply to Morrison10]

Hi Jean, Thank you - Since moving to village 3 or 4 years ago, GP has given me the help i needed every time, a refreshing change.x

[Nula2]

Hi Ern 🙋‍♀️. Glad you had a proactive appointment with your GP 👍. Never feel sorry for your posts you have so many thing to cope with, anybody would find it hard to deal with them as well as you do. You still do the things that are relaxing for you (painting ) whereas you could have given up even trying to help yourself. Looking forward to your painting on 23rd 😊xxx

[Ern007 in reply to Nula2]

Thank you Nula2 - I can't see a time when I won't be using a brush, x

[Nula2 in reply to Ern007]

Brilliant 👍😊xxx

[Bingo88]

So pleased that you got more positive news from your G.P. Long may it continue as long as you feel well enough in yourself. I have always said its about Quality of life above everything else. Take care. Brian

[Ern007 in reply to Bingo88]

Thank you Brian, I think I am lucky to have her batting for me, really good one

[Mooka]

Don’t feel you need to apologise for any of your posts. I’m in awe of you the way you understand what is going on. Great news about the bc - makes all that treatment worthwhile. I sympathise with the back pain.

[Ern007 in reply to Mooka]

Thank you Mooka - Back pain stops a lot, Anne thinks it's with painting. I think after this X ray I should be glowing xx

[Alberta56]

Quite understandable if you have the occasional downer- you have so much to cope with- but very glad you've climbed out of it. Bless your doctor. Look forward to the painting. xxxx

[Ern007 in reply to Alberta56]

Thank you, I look forward to posting xxx

[Patk1]

Yr dr sounds very thorough.all sounds yo b going right way.u deserve a gd run.will look forward to Yr nx painting xx

[Ern007 in reply to Patk1]

Thank you Pat, she really is on the ball. Always has been,xx

[Patk1 in reply to Ern007]

It's gd to have one u can trustx

[Ern007 in reply to Patk1]

Yes, few and far between x

[Nicholatracy]

so glad you had a good visit. 🐞

[Ern007 in reply to Nicholatracy]

Thank you Nicholatracy