Follow Up: Hi guys, I know you will... - Lung Conditions C...

Lung Conditions Community Forum

56,323 members66,955 posts

Follow Up

Ern007 profile image
37 Replies

Hi guys, I know you will remember the farce that was my treatment - so no no need to do 10 A4 worth of words.

Just say last year I never got a follow up - until almost a year later.

This time I had my BCG treatment for BC and a week Wednesday I have a Cystoscopy to see if the treatment has worked. Just a day case, overnight at worse.

However last time my consultant was happy to have me continue with BSG - i felt good at last,, that did not last long if you remember.

So thins time is a crunch - If my cancer is still in situ (still in bladder) even if it has not spread, I have been told I won't be offered BCG any more Although thus far no spread.

At the last follow up they wanted to remove the whole problem by surgery, then he said you can have BCG which I did, but ringing in my ears is what that consultant said.

i won't see you next follow up, I don;t do those types of operation and you next follow up, you will be talking to a surgeon.

Not as good as it sounds you have to be fit enough to stand that op.

So if I am lucky and all the cells are gone - then that would be fantastic. If my affected cells are still in situ (not spread) at my age and my health. I doubt I will accept their king request of all or nothing, I will ask for alternative like Chemo and or radiation.

The only way I think at the moment I will accept such a major op, is if my cancer has spread.

Sorry for the long boring post - I will soon have an idea and will follow this up...

Written by
Ern007 profile image
Ern007
To view profiles and participate in discussions please or .
Read more about...
37 Replies
Karenanne61 profile image
Karenanne61

Not boring and thankyou for the update.

Ern007 profile image
Ern007 in reply toKarenanne61

Thank you.

sassy59 profile image
sassy59

Definitely not a boring post Ern and good to hear from you. I do hope you get the best treatment possible and am sending you my very best wishes. Xxx❤️

Ern007 profile image
Ern007 in reply tosassy59

Thank you and for your wishes, I will update x

CDPO16 profile image
CDPO16

I wish your situation was more straight forward Ern. I hope everything works out for the best. Carole x

Ern007 profile image
Ern007 in reply toCDPO16

Thank you Carole and spot on, it being not certain that in the worst .

CDPO16 profile image
CDPO16 in reply toErn007

Yes, I can imagine that being the case.

Donald_1931 profile image
Donald_1931

I’ll keep my fingers crossed for you that all the cells are gone and you can get on with your life unfettered. With this arthritis and cramp my fingers are pretty useless anyway. Never apologise for giving us an update no matter how long. Wondering how members are is much worse.

Ern007 profile image
Ern007

Thank you Donald - The Tumour was took out by TURBT in 2001 and the tumour as not returned, but the cells are the problem and mine is G2 - but even so to date it still has not spread.

Katinka46 profile image
Katinka46

It is quite a tale and not boring. You do seem to be very clued up about the options. But these things are worrying so I do hope you get the news you want.

All the best

Kate

Ern007 profile image
Ern007 in reply toKatinka46

Thank you Kate - I felt I had to find if there was option, rather than be led blind.

peege profile image
peege

Just to say I'm thinking of you and wishing you the very best outcome Ern. 🤞🤞🤞🤞🤞

Ern007 profile image
Ern007 in reply topeege

Thank you.

Patk1 profile image
Patk1

Hope it all works out as u wish xxxxx

Ern007 profile image
Ern007 in reply toPatk1

Thank you

Cloudancer profile image
Cloudancer

Sending you gentle hugs and loadsa good wishes and am keeping you in my thoughts .

Ern007 profile image
Ern007 in reply toCloudancer

Thank you.

Ergendl profile image
Ergendl

Hoping whatever treatment you are able to opt for, it will have the results you most want.

Ern007 profile image
Ern007 in reply toErgendl

Thank you.

Mellywelly profile image
Mellywelly

Best wishes to you. Fingers crossed it hasn't gone any further 🤞🏻🤞🏻🤞🏻🤞🏻🤞🏻

Ern007 profile image
Ern007 in reply toMellywelly

Thank you, that would be half the battle.

Patk1 profile image
Patk1

Wishing u well Xxx

Ern007 profile image
Ern007 in reply toPatk1

Thank you x

Izb1 profile image
Izb1

Thanks for the update Ern. I am praying that all the cells are gone and you can get on with life without this worry, if not then i pray that you have the strength to deal with it whatever the path you have to travel, know that we will be with you along the way. Sending love and hugs x

Ern007 profile image
Ern007 in reply toIzb1

Thank you for your very kind post x

Musicalways profile image
Musicalways

Hoping for you alls cells have disappeared. Hugs for every day 🙏

Ern007 profile image
Ern007 in reply toMusicalways

Thank you, yes it's the cells that matter,

Nula2 profile image
Nula2

Oh what a lot you are dealing with. Can only echo what everyone else has said and please keep us posted. All my best wishes xxx

Ern007 profile image
Ern007 in reply toNula2

Thank you, for sure I will update x

pegbl profile image
pegbl

Truly hope everything works out for you 🤞xxx

Ern007 profile image
Ern007

Thank you pegbl x

jackdup profile image
jackdup

I hope and pray everything works out for you, best of luck.

Ern007 profile image
Ern007 in reply tojackdup

Thank you

Morrison10 profile image
Morrison10

my very best wishes for a good outcome, thinking of you and praying for you. Jean x

Ern007 profile image
Ern007 in reply toMorrison10

Thank you Jean. x

Alberta56 profile image
Alberta56

Thinking of you and hoping for the best possible outcome. Your posts aren't boring; we want to know how you are doing. xxx

leo60 profile image
leo60

Got my fingers crossed for you, all the best, Laurie xx

Not what you're looking for?

You may also like...

My results and treatment plan after my Cystoscopy OP.

I got a telephone call early morning last week after my Cystoscopy and biopsies. Although...
Ern007 profile image

So Yet Another Follow Up - Starting I think 2020 - Bizzar,

Well those who know me will know not long ago I had scan including PET Scan for suspected Lung...
Ern007 profile image

BCG Finished - CT SCAN - UPDATE.

First the good news - My CT scan result I was told in clinic today shows the 6mm growth has not...
Ern007 profile image

Bladder Cancer Another Update.

I went for my 11th BCG treatment at hospital this afternoon, am feeling tired and fed up, Eye...
Ern007 profile image

My Bladder Cancer Update.

My latest flexy cystoscopy showed I had no tumour in my bladder, backing up what was said in Autumn...
Ern007 profile image

Moderation team

See all
AsthmaandLung profile image
AsthmaandLungAdministrator
moderator_AandLUK profile image
moderator_AandLUKAdministrator
Claire_ALUK profile image
Claire_ALUKAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.