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long term nebs

merryxmas2013 profile image
5 Replies

hi i am new having COPD for 10years but just try to get on with it lol ! i have frequent exacerbations take STEROIDS IPATROPIUM BROMIDE AND SALBUTAMOL by nebs if i cannot use my inhalers spiriva and flutoform , i have been on the nebs since being in hospital having pnuemonia for 7 weeks , chest infection psuedomonas , the reps nurse is not happy i cannot take my spIriva inhaler INSTEAD OF THE NEBULISER IS THERE ANY LONG TERM PROBLEM ?? does any one know please amny thanks x

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merryxmas2013
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syntax profile image
syntax

Not nsure on the Nebs, because the last time,4yrs ago,it appeared to start up an

exacerbation.This may have been a coincidence ,not sure.But have not used it since

and probably have maybe three exacerbation's a year.Now we are all different so please

do not take it as read.I do however use a Spiriva Respimat Inhaler.This makes it far easier

to take the meds,in that it comes out in like a smoke form which you inhale slowly,as

opposed to having to almost inhale deeply.

This maybe of some help to you,l cannot be sure.Perhaps you could suggest to GP ??

merryxmas2013 profile image
merryxmas2013 in reply to syntax

thanks love x

lovejoyliz profile image
lovejoyliz

Hi merryxmas2013

I have been in the same boat as you with the same antibiotics and all the other crap that simply went nowhere so I researched other areas of help. I refused to take any more steroids like prednisolone as my weight has spiraled out of control and had more exacerbation's and the same chest infection of psuedomonas, contracted bad bout of pneumonia after getting the flu jab, ended up in hospital for 16 days, which did not help with making any improvement.

Now I have managed to bring the condition under control to at least get the mucus moving out by using the Aerobika device.......

trudellmed.com/aerobika

getyourbreathback.com/

I also use my Spiriva Respimat Inhaler as it is a mist that reaches the lungs better, I have been able to cut right back on using the Nebs as I found that using any of them makes my hands shake terribly and leaves me not in control of my life and although I found another way of dealing with my COPD it has all worked out very well for me.

I hope this helps

merryxmas2013 profile image
merryxmas2013 in reply to lovejoyliz

have tried an aero sure but was unable to have enough puff to do it i may try this then it depend on if it is too hard to start with thanks so much for the reply x

lovejoyliz profile image
lovejoyliz in reply to merryxmas2013

Hi,

Yes I have the Aerosure, but I find the Aerobika a lot easier to use and you can get it on prescription from your GP or Respiratory Nurse. Make sure you read everything on the website as it is all worth reading.

Good luck

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