Hi everyone -
I am new to this post so please forgive me if i am asking a question that has been already answered.
One of my cousin in India has recently been diagnosed with AMN.. he is 34 years old.
he had his younger brother died of this disease at the age of 7 (I think its called ALD for kids) around 20 years ago
Can someone please share your experiences if you are in the same age-group in terms of how fast this disease will progress and/or what supplements/vitamins he can take to reduce the progression?
I believe he is taking some kind of prescription steroids to reduce the symptoms.
We all are very scared looking at his condition (difficulty walking, periods of loosing memory and reduced sight) and any information you can provide is greatly appreciated.