I have addisons disease, but not sure if I have AMN

Hello

I am a 55 year old women new here, and have questions regarding the relationship between addisons and AMN. I have had addisons disease for about 27 years and it was preceded by a diagnosis of graves disease. My children are grown and have neither. I've never really known the cause of my addisons but believe that I had it long before I was diagnosed. As a child, my legs always hurt and I craved salt all my life. Currently I am post menapausal and have recently been seeing a neurologist for "internal tremor", (weird I know). I am being tested for MS and Parkinson's. My legs still hurt quite a bit, but I continue to excersise and take care of myself. I would appreciate any feedback, as I educate myself and decide whether to approach my doctors with the possibility of testing me for AMN.

Thank you

8 Replies

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  • Hi Sally5677

    I think you have done pretty good analysis of your situation. Some of your symptoms sound similar to AMN. But the only definitive proof that you may or may not have AMN is to have the VLCFA test. That will tell you, and it's an easy and cheap test to do, being a blood test.

    One symptom that you don't mention is fatigue and/or mood swings. It may help you to take a look at a post a few months ago on this topic. You should be able to find it by doing a search (here, on AMN-Easier, not Google) for "Mood swings". Once you find it, there are 20 comments. Scroll down near the end you will see that I commented about the seeming lack of female AMN patients who also have Addison's. One of our volunteers, Jolocny, mentioned that she was going to quiz the doctors at the recent ULF conference about this issue, so she may have some thoughts or updated information.

  • Thank you for that information.

  • Women with AMN don't get Addison's disease so I think it is very unlikely

  • Thank you and that's Great news!

  • hello mam. i'm 40. I've had Addison's since 17. addison's is no trouble. you take 2 small pills everyday and you'll be fine. I've had one crisis with addison's. my hospital is quite stupid and it took 2 hours just for a intervenous drip. I was diagnosed with AMN 10 years ago. the two seem to go hand in hand. It's a simple blood test to find out. if your that age I wouldn't worry about AMN. you can have all the salt you want with addisons. my dr told me about people that have had salt sandwiches. I haven't but I load my food with salt. that wont hurt you :-) do you watch television? most people do. let me tell you more. I watch a channel called investigation discovery. its true crime shows. I like it. its all I watch. I hope any of this is a help to you. if you need to know more, just email me at mikewithers@cogeco.ca. have a good day

    Mike

  • Female suspected of being a carrier for ALD should test via DNA as testing PVLCFA is not 100% accurate for female carriers and can give false negatives. If you start with the PVLCFA test and the results are negative, I would definitely do the DNA testing to be absolutely sure. Also, female carriers can have Addison's Disease though it's not very common.

  • I have had Adrenal insufficiency and hypothyroidism for 7 years and now appear to be developing AMN symptoms. Seems like my symptoms are going right down line, long history of MS in family for four generations, DHEA is hardly existent, shaky and trembling legs that started in arms, difficulty standing, degenerative disc disease, vision changes, personality changes, mood swings and anxiety, super slow cognition especially trying to speak, no appetite but retaining fluid. Anyone ever hear of symptoms like these? These symptoms showed up acutely approximately 4 months ago and seem to be getting worse. I shake all over like every part if my body is over stimulated. My MRI was normal but will get an EMG in a couple of weeks. I'm really thinking of asking my neurologist to order the DNA test. Any thoughts?

  • I have had Adrenal insufficiency and hypothyroidism for 7 years and now appear to be developing AMN symptoms. Seems like my symptoms are going right down line, long history of MS in family for four generations, DHEA is hardly existent, shaky and trembling legs that started in arms, difficulty standing, degenerative disc disease, vision changes, personality changes, mood swings and anxiety, super slow cognition especially trying to speak, no appetite but retaining fluid. Anyone ever hear of symptoms like these? These symptoms showed up acutely approximately 4 months ago and seem to be getting worse. I shake all over like every part if my body is over stimulated. My MRI was normal but will get an EMG in a couple of weeks. I'm really thinking of asking my neurologist to order the DNA test. Any thoughts?

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