Biotin clinical trial

[monkeybus]

Has this already been posted?

clinicaltrials.gov/ct2/show...

I'm doing my own, ongoing trial with Biotin.

And 4-AP.

And 4-AP-3-MEOH.

And Modafinil.

I'll recommend them all, and Lyrica for the spasms (if you enjoy being stoned).

Biotin is cheap and OTC. Worth a go.

[deengo]

I wouldn't qualify for the trial even if they were still recruiting. I have another nerve disease besides ANN, HNPP. It disqualified me in another trial a few years ago because of having to demylenating diseases.

So, time to buy some biotin. My neurologist won't prescribe monifidal I got denied again by her. I've tried Ampyra a few times and it helped me walk better for awhile and then my legs got super weak.

It's all trial and error. Thanks for the info.

[monkeybus in reply to deengo]

Did you try regular 4-AP as well deengo ?

[deengo in reply to monkeybus]

No, I always thought it was the same thing

[monkeybus in reply to deengo]

Yeah same, but Ampyra is sustained release

[nan17]

Thanks for posting this information. It led me to a whole new world of clinical trial information. Nice to know somebody is working on something. I am in Canada and wish something was going on here. Nan17

[monkeybus in reply to nan17]

Seems like a whole lot of nothing is going on.

Multiple Sclerosis - thisisms.com/forum/

Take a look at these treatments.

Granted, a lot more people with MS, so a lot more raw cash being funneled into research.

We are low down on any list.

So far, the 3 medicines that help me the most:

Modafinil

4-AP/meoh

Lyrica

I learned about from the MS boards.

And Biotin.

Stay well, folks.

[bluejadedwho]

Can you tell me more about the beneficial effects you find with Modafinil?

[monkeybus in reply to bluejadedwho]

Modafinil, I'm well into a two year love affair with it.

I've posted before, I suffered a decade with fatigue, then spasticity.

To say Modafinil wakes you up doesn't do it justice, completely eliminates my fatigue.

Wipes out the mental fatigue, means I can live my life, and gives me the mental ability to concentrate on balancing/walking. Changes my spasticity. Hard to describe.

Not that well used, even in the MS community. Expensive.

mod4all.com I've plugged them more than enough.

Note, I've been prescribed it by neurologists (after I demanded it), just cannot afford it.

[bluejadedwho]

Thank you for responding. I am in Canada. I will see if I can get it through my doctor.

I recently found out I had really low iron. As it is going up through iron supplementation, my energy is better, however I can't do much more than one activity in a day.

[monkeybus in reply to bluejadedwho]

I've tried every supplement under the sun.

Just doing the dishes and my leg muscles are so tired.

I'll post a list of every supplement I've done. A long list.

Modafinil and 4-ap, with a side order of Lyrica.

I'll give iron another try though. Can't hurt.