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My reality is drifting from that version of reality that is shared by everyone else on the planet. It isn't that it is alien and strange to ...

Greetings all, this is Jeff with an update. All along this forum has been through the efforts of an ex-dentist and an ex-engineer, both with...

I’ve come to a realization of late concerning conversations that I’m involved in. I’ve known for some time that I’m becoming increasingly un...

Simple question really; we have mothers, fathers, secretaries day, you name it, they got a day to be treated special. Why not caregivers? I...

My grandmother is 63 and a recovering cancer survivor. She has had a history with sepsis infection due to a bile leakage. She has a tendency...

This is a long post and as such it often takes me hours to days to complete as a cohesive, readable post. Having said that please realize th...

After receiving the the news of the rapid advancement of my Lewy Body Disease I’ve been doing some serious thinking and have had some diffic...

This is strictly aimed at patients with caregivers who are also our wives, husbands, etc. Not that it needs repeating but many dementia pati...

I’ve be wrestling with whether or not to write this post since Friday afternoon. I get really tired of being a Debbie Downer when writing th...

Having recently learned of a relative's AD diagnosis, I set out to do all the research I could on this horrible disease. I've come across t...

One of the rather unsettling things about having LBD is getting the occasional notice that you owe a bill for something you don’t think you ...

Bad news first: when you get diagnosed for Lewy Body Dementia is way AFTER you "get it". Therefore there is a definite before and after thin...

Hi everyone,

This is my first time posting and I'm really confused, frustrated and not even sure if should be in this group.

Way back in my la...

Its more exciting than Guardians of the Galaxy 2, The Matrix, Matrix 2, Avengers, Age of Ultron, XMen and Xmen First class, Bruce Lee movies...

Note: I apologize for this; I originally wrote this for my page and forgot this place has hostile policies for putting multiple graphics in ...

The following is more or less a recounting of an email I sent to Jeff a few days ago that sparked a good little discussion. I just wanted to...

My uncle now aged 92 had a stroke 4 years ago. After a couple of years his symptoms were diagnosed as vascular dementia. Early this year his...

Since beginning my walk down this long, misty path and receiving an official diagnosis of LBD, my wife and I have basically assumed that I w...

Hey kids, I would like to ping the crowd here and see what anyone else knows of this. I was reading an article the other day, something medi...

When I first started noticing the symptoms of my slow walk into oblivion, it wasn’t uncommon for me to walk to another part of the house for...

One of the problems that slaps you in the face as your dementia progresses is a faulty memory. Or more to the point, you can’t trust yoursel...

Hi everyone, just joined. I'm 36, male. Hoping to sort out meds. I just increased my dose of Oxcarbazepine to 600mg, twice a day for auditor...

I am trying to find out if my condition can get worse plus if so what kind of problem would I get.

I don't mind contributing when I can but I was first and foremost here to learn from others...but when only a few consistently post, it beco...

There is an old tired reply you hear when someone states: "I have a stupid question...", which goes something like "The only stupid question...

American Dr. Mike seems to be suggesting that positive results have been seen.

If caring for my parents during their time with dementia taught me anything, it taught me the importance of having a plan in place for how y...

I’ve often wondered about the cognitive awareness of patients with differing forms of dementia. My most intimate knowledge of dementia lies ...

Poor little Hiro, the 12 lb rescue we got about a year ago, some unholy mix of miniature poodle, cocker spaniel, freaking schnauzer (sp) and...

Greetings. Have been in a bit of a down-spell of late. Not depressed or anything; things are simply malfunctioning on me more than is usual ...