Please Help.

[xxstayceexx]

Hi everyone, i am 24 years old and have recently been diagnosed with Fibromialgia and CFS. I have been suffering for around 18 months now with the CFS but do believe the Fibromialgia has been present since my teens.

Im really struggling to come to terms with this illness mentally and physically i know everyone always says try to stay positive and strong etc but im really bad at the minute. I cant begin to explain how confused i keep getting and memory loss is crazy at the minute. Pain wise I would say if i had to rate it out of 10 then im luckily on about 3/4 but fatigue wise i would be on a 9!

I am currently taking antidepressants, vitamin D and calcium supplement, co-codamol and ibuprofen as and when i need them.

My partner is very understanding and supportive thankfully and helps me in anyway possible. Im just finding life a struggle at the minute as resting in bed helps me physical with the pain and fatigue but really doesnt help me mentally as i feel useless.

I do work but only three days a week as a swimming teacher. Luckily i dont work consecutive days so i always get atleast one days rest before im at work again. I force myself to work amd to work through the pain and fatigue mkst of the time as i worked really hard to get where i am. If work was to stop then i dont know how i would cope mentally. I already feel like a waste of space.

Im basically just wanting some advice on what to do and where to go from here from all you guys who are suffering too please. Im hoping thw doctor will refer me to a neurologist but i know the waiting list is really long so that wont be any time soon i dont think.

Sorry for the long post. Wishing you all good health.

Stacey x

[Shardi]

Just a brief answer for now… but I can recommend organizations for you to contact for helpful information if you'd like,, just let me know.

The main thing at the moment is to give yourself time to come to terms with the diagnosis, it's not easy – please be gentle with yourself, be kinder to yourself –and know that you are never a waste of space. You are a person of value no matter what you can or can't do. I've struggled with this massively! Learn to pace yourself as best you can to avoid "boom and bust" and gain a little more control over things.

Things will improve but it takes time and it's a process of relearning how to approach life. Best of luck, you are full of courage and reaching out is the best thing you could have done.

Take care.

Sara😌

[SaraGhafira]

I know how you feel I'm 27 and I was diagnosed 6 years ago, back then I couldn't come to terms with it either, but you have to live with it, it will never go away, there is no cure so get used to it..... Sorry to be blunt but that's how I delt with it. I'm here if you want to chat xx Sara xx