Update and Mobility

[Iber]

Hello everyone. I’m updating my husband’s progress after 7 months from his diagnosis. He will be receiving his 6th docetaxel treatment tomorrow and that is cause for celebration and as of his 5th treatment his PSA went from 885 at diagnosis to 11.9. We are hoping it continues to move downward and that the Nubeqa will continue to do its job. Unfortunately, since he had so many Mets to throughout his body and especially his hips, he is having a lot of pain and is using a cane at times. It’s his left hip that bothers him the most and the doctor has prescribed hydromorphone however he doesn’t like to take it often. My concern ( because I always worry) is that his mobility will continue to deteriorate. He plans on going to a physio therapist for stretching exercises and strength building once chemo is done. His orthopaedic surgeon says there is little that can be done for him because of the deterioration.

Always looking for encouragement from this amazing group!

[Tall_Allen]

It is common to experience a pain flare from chemo caused by inflammation as the chemo destroys cancer cells. It should be temporary. NSAIDs or steroidal anti-inflammatories should help.

[Iber in reply to Tall_Allen]

Thanks. I really hope so!

[Professorgary in reply to Iber]

If you plan on using NSAIDs I recommend discussing Celebrex with your doctor. It does not block the Cox 1 enzyme as the others do. The Cox 1 enzyme protects the gastric tract. Also google Celebrex and curcumin for prostate cancer. Something you need to be aware of is that NSAIDs aren’t really painkillers like Tylenol. They relieve inflammation and can take up to 8 weeks to realize full benefit. It takes this long to enter the bone,muscle tissue even though it is in the bloodstream. God bless.

[erjlg3]

I'm not sure if it would help your dad but it's worth putting it out there to ask if he could try Xgeva to heal his bones. The doctors said it miraculously healed my husbands. Best wishes 🌻

[Iber in reply to erjlg3]

Thank you.

[j-o-h-n]

My doc took me off of Casodex and replaced it with Nubeqa (in April 2023) and that plus the Lupron which I've been on for centuries is working.

Your Dear Hubby is 63 and I would think that a hip replacement would be available for him. I'm 88 and my Orthopedist said if I had more pain that he would fix it for me. That's at the Hospital for Special Surgery (HSS) in New York City (Great Hospital and he's a well known surgeon and knows his stuff. Maybe if you're in the NYC area (Manhattan, or Long Island or Westchester) you may wish to see him. If so let me know. Regards.

Good Luck, Good Health and Good Humor.

j-o-h-n

[Iber in reply to j-o-h-n]

I forgot to mention that he had hip replacement surgery in that hip 3 years ago!

[j-o-h-n in reply to Iber]

Oops!

Good Luck, Good Health and Good Humor.

j-o-h-n

[Kaliber]

hi iber …..

Let’s hope hubby retains the use of his legs upmost, if however, he looses his walking abilities … it’s FAR from the calamity it might seem. There is a catalog of possibilities and what I call “ workarounds “ to keep him going and enjoying a high quality of life. QOL.

aPCa took my knees , feet and to some degree my hips , starting about 4-5 years ago. All this time my mobility has been primarily in a wheelchair but I still have an active life and get around fine anyway. I’m not running any marathons or even walking out to my truck in the driveway but I still am very mobile and you hardly notice after long enough. You can ask on the group ( so everyone sees my answers ) or pm me and I’ll share my workarounds that keep me mobile and active.

Losing your hip/s knees and or feet doesn’t necessarily need to be much more than an inconvenience. Hang in there and cheer up … hubby’s lack of mobility can be managed easily.

P.s. imho , tell hubby to stick with his pain management , there is no point in going thru the time we have left in pain when pain is so easily dealt with. Make sure hubby is on your provider palliative care register and specialist doctors there will work overtime to keep him pain free and upbeat. Palliative care also helps caregivers with their emotional trauma as well, if you need to , don’t hesitate to talk with them. This is what they do all day , every day and they are very good at it.

❤️❤️❤️